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Nonprofiteer
← NATIONAL LEIOMYOSARCOMA FOUNDATION

Form 990 for tax year 2023

Filed by NATIONAL LEIOMYOSARCOMA FOUNDATION.

Totals

Total revenue
$257,583
Total expenses
$259,406
Contributions and grants received
$257,583
Grants paid
$235,000
Program service revenue
$0
Investment income
$0
Other revenue
$0
Total assets, end of year
$463,463
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$463,463
Program services expenses (Part IX)
$245,579
Management and general expenses
$6,728
Fundraising expenses
$7,099
Program service expenses (Part III)
$245,579

Program services were 94.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $230

  • 1f · All other contributions, gifts and grants

    $257,353

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $235,000 · program services $235,000

  • 11c · Fees: accounting

    total $300 · management and general $300

  • 11g · Fees: other

    total $919 · management and general $919

  • 12 · Advertising and promotion

    total $4,575 · management and general $2,075 · fundraising $2,500

  • 13 · Office expenses

    total $1,099 · management and general $1,099

  • 14 · Information technology

    total $903 · management and general $903

  • 19 · Conferences, conventions and meetings

    total $4,847 · program services $4,847

  • 23 · Insurance

    total $1,432 · management and general $1,432

  • 24a · Other expenses: PATIENT EDUCATION

    total $5,732 · program services $5,732

  • 24b · Other expenses: BANK & CREDIT CARD CHARGES

    total $4,599 · fundraising $4,599

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $465,287 · end of year $463,463

  • 27 · Net assets without donor restrictions

    beginning of year $465,287 · end of year $463,463

  • 28 · Net assets with donor restrictions

    beginning of year $0 · end of year $0

  • 29 · Capital stock, trust principal or current funds

    beginning of year $0 · end of year $0

  • 30 · Paid-in or capital surplus, or land, building or equipment fund

    beginning of year $0 · end of year $0

  • 31 · Retained earnings, endowment or other funds

    beginning of year $0 · end of year $0

Mission and programs · 2023

Mission

THE NBSP;NLMSF NBSP;IS NBSP;AN NBSP;IMPORTANT NBSP;ORGANIZATION NBSP;THAT NBSP;STRIVES NBSP;TO NBSP;GATHER NBSP;A NBSP;CRITICAL NBSP;MASS NBSP;OF NBSP;PATIENTS NBSP;SCIENTISTS NBSP;ADVOCATES NBSP;AND NBSP;PHYSICIAN NBSP;TO NBSP;RESEARCH NBSP;AND NBSP;TREAT NBSP;THE NBSP;RARE NBSP;DISEASE

Activities or mission (Part I)

PROVIDING EDUCATION, ADVOCACY, SUPPORT AND RESEARCH FOR THE LMS COMMUNITY. AS WE MOVE FORWARD IN A QUEST FOR A CURE, THE NLMSF STRIVES TO GATHER CRITICAL MASS OF PATIENTS, SCIENTIST, PATIENT ADVOCATES AND PHYSICIANS TO LEARN MORE ABOUT THE RARE DISEASE. WITHIN THE NMLSF THE LMS ROUNDTABLE ORGANIZES CUTTING EDGE RESEARCH IN THIS AREA AND INNOVATES THE WAYS THAT THIS DISEASE IS TREATED.

  • RESEARCH GRANTS TO VARIOUS MEDICAL RESEARCH PARTNERS. SEE SCHEDULE I

    Expenses $235,000 · Grants $235,000

  • PATIENT EDUCATION PROGRAMMING

    Expenses $5,732

  • LMS INTERNATIONAL ROUND TABLE CONFERENCE

    Expenses $4,847

As filed on the 2023 return.

Listed in Part VII

  • Annie Achee

    PRESIDENT

    Total calculated
    $0
    Hours/week
    20

  • Lynne Forges

    TREASURER

    Total calculated
    $0
    Hours/week
    5

  • Mitchell Achee MD

    ASSISTANT TREASUER

    Total calculated
    $0
    Hours/week
    20

  • Jim Matthews

    COMMUNITY AWARENESS

    Total calculated
    $0
    Hours/week
    5

  • Chris Hancock

    WEB IT SUPPORT

    Total calculated
    $0
    Hours/week
    1

  • Jacqueline Sebany

    MARKETING

    Total calculated
    $0
    Hours/week
    1

  • Bruce Kobritz

    COMMUNITY OUTREACH

    Total calculated
    $0

  • Greg Lee

    COMMUNITY OUTREACH

    Total calculated
    $0

  • Denny Hoh

    COMMUNITY OUTREACH

    Total calculated
    $0

  • Mariana Stoddard

    COMMUNITY OUTREACH

    Total calculated
    $0

  • Chandalyn Williams

    COMMUNITY OUTREACH

    Total calculated
    $0

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
15 July 2024
IRS schema version
2023v5.1
Source object
202441989349300929

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