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Nonprofiteer
← ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE

Form 990 for tax year 2024

Filed by ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE.

Totals

Total revenue
$622,219
Total expenses
$1,535,415
Contributions and grants received
$493,178
Grants paid
$250,500
Program service revenue
$0
Investment income
$116,970
Other revenue
$12,071
Total assets, end of year
$3,524,087
Total liabilities, end of year
$265,047
Net assets or fund balances, end of year
$3,259,040
Program services expenses (Part IX)
$286,218
Management and general expenses
$970,291
Fundraising expenses
$278,906
Program service expenses (Part III)
$286,218

Program services were 18.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $493,178

  • 3 · Investment income

    total $116,970 · excluded $116,970

  • 11a · Other revenue: ACMG ADMIN. FEES

    total $12,000 · excluded $12,000

  • 11b · Other revenue: MISCELLANEOUS

    total $71 · excluded $71

  • 11e · Other revenue, total

    $12,071

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $250,500 · program services $250,500

  • 5 · Compensation of officers, directors and key employees

    total $41,779 · program services $3,585 · management and general $13,024 · fundraising $25,170

  • 7 · Other salaries and wages

    total $285,582 · program services $24,506 · management and general $89,026 · fundraising $172,050

  • 8 · Pension plan contributions

    total $14,916 · program services $1,280 · management and general $4,650 · fundraising $8,986

  • 9 · Other employee benefits

    total $29,283 · program services $2,513 · management and general $9,129 · fundraising $17,641

  • 10 · Payroll taxes

    total $23,087 · program services $17 · management and general $10,887 · fundraising $12,183

  • 11b · Fees: legal

    total $622,157 · management and general $622,157

  • 11c · Fees: accounting

    total $32,323 · management and general $32,323

  • 11f · Fees: investment management

    total $21,056 · management and general $21,056

  • 11g · Fees: other

    total $100,544 · program services $1 · management and general $98,587 · fundraising $1,956

  • 12 · Advertising and promotion

    total $5,340 · management and general $4,140 · fundraising $1,200

  • 13 · Office expenses

    total $15,436 · program services $1 · management and general $15,435

  • 14 · Information technology

    total $12,036 · management and general $12,036

  • 16 · Occupancy

    total $8,699 · management and general $8,699

  • 17 · Travel

    total $27,726 · program services $3,815 · management and general $23,911

  • 19 · Conferences, conventions and meetings

    total $39,720 · fundraising $39,720

  • 22 · Depreciation, depletion and amortization

    total $5,231 · management and general $5,231

Balance sheet

Part X, book values.

  • 2 · Savings and temporary cash investments

    beginning of year $925,399 · end of year $566,378

  • 3 · Pledges and grants receivable

    beginning of year $232,750 · end of year $293,188

  • 9 · Prepaid expenses and deferred charges

    beginning of year $1,152 · end of year $9

  • 10a · Land, buildings and equipment: cost or other basis

    $71,448

  • 10b · Land, buildings and equipment: accumulated depreciation

    $51,072

  • 10c · Land, buildings and equipment, net

    beginning of year $14,811 · end of year $20,376

  • 11 · Investments: publicly traded securities

    beginning of year $2,671,347 · end of year $1,951,450

  • 15 · Other assets

    beginning of year $564,774 · end of year $692,686

  • 17 · Accounts payable and accrued expenses

    beginning of year $275,271 · end of year $265,047

  • 18 · Grants payable

    beginning of year $210,000

  • 27 · Net assets without donor restrictions

    beginning of year $1,328,033 · end of year $631,110

  • 28 · Net assets with donor restrictions

    beginning of year $2,596,929 · end of year $2,627,930

Mission and programs · 2024

Mission

SUPPORT THE AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS' (ACMG) EDUCATIONAL MISSION TO "TRANSLATE GENES INTO HEALTH" BY RAISING FUNDS TO ATTRACT THE NEXT GENERATION OF MEDICAL GENETICISTS AND GENETIC COUNSELORS, TO SPONSOR IMPORTANT RESEARCH AND TO PROMOTE INFORMATION ABOUT MEDICAL GENETICS.

Activities or mission (Part I)

SEE PART III, LINE 1.

  • SUMMER GENETICS SCHOLARS PROGRAM: IN 2024 THERE WERE 11 SUMMER SCHOLARS ENROLLED IN THE SUMMER GENETICS SCHOLARS PROGRAM. ACMG FOUNDATION TREATMENT GUIDELINES DEVELOPMENT FUND: THE ACCELERATION OF SCIENTIFIC DISCOVERY OVER THESE LAST FEW YEARS HAS PUT INCREASING DEMANDS ON THE ACMG TO INTENSIFY ITS WORK IN THE DEVELOPMENT OF PRACTICE GUIDELINES, PARTICULARLY TO BE ABLE TO RESPOND QUICKLY AS NEW THERAPEUTICS FOR GENETIC DISEASES EMERGE.THE ACMG FOUNDATION, ON BEHALF OF ACMG, HAS ESTABLISHED A FUND TO DEVELOP AND DISSEMINATE BEST-PRACTICE GUIDELINES THAT RESPOND TO AND INCORPORATE FREQUENT, NEW SCIENTIFIC DISCOVERIES IN THE DIAGNOSIS, MANAGEMENT, AND TREATMENT OF GENETIC CONDITIONS, FROM DETECTION THROUGH NEWBORN SCREENING TO COMMON PROBLEMS OF ADULTHOOD.DAY OF CARING: THE DAY OF CARING IS AN EVENT WHERE FUNDS ARE RAISED TO PROVIDE BICYCLES AND HELMETS TO CHILDREN WITH GENETIC DISEASES. LOCAL GENETICS ORGANIZATIONS ARE TAPPED TO FIND RECIPIENTS AND AN EVENT IS HELD DURING THE ACMG ANNUAL MEETING TO PRESENT THESE BICYCLES.THE PURPOSE OF THE PFIZER/ACMG FOUNDATION'S "TRANSLATIONAL GENOMICS SCHOLARS" AWARD PROGRAM IS TO ADVANCE EDUCATION, RESEARCH AND STANDARDS OF PRACTICE IN MEDICAL GENETICS, AND TO DEVELOP AND EXPAND CLINICAL AND LABORATORY EXPERTISE IN MEDICAL GENETICS IN THE UNITED STATES. IT ALSO SEEKS TO INITIATE AND DEVELOP A BROAD-BASED INFRASTRUCTURE FOR INDUSTRY FUNDING OF HIGH QUALITY PROJECTS IN THE FIELDS OF MEDICAL GENETICS.OTHER AWARDS AND FELLOWSHIPS:- SANOFI CORPORATION FELLOWSHIP- TAKEDA CORPORATION FELLOWSHIP

    Expenses $286,218 · Grants $250,500

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Nancy Mendelsohn

    PRESIDENT

    Total calculated
    $0
    Hours/week
    3 + 3 related
  • Bruce Korf

    PAST PRESIDENT

    Total calculated
    $0
    Hours/week
    3 + 3 related
  • Brynn Levy

    PRESIDENT-ELECT

    Total calculated
    $0
    Hours/week
    3 + 3 related
  • Sarah Elsea

    TREASURER

    Total calculated
    $0
    Hours/week
    3 + 3 related
  • Madhuri Hegde

    SECRETARY

    Total calculated
    $0
    Hours/week
    3 + 3 related
  • Sucheta Bhatt

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Katie Johansen Taber

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Marilyn Jones

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • James Lu

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Rong Mao

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Harry Ostrer

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Aleksandar Rajkovic

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Lisa Shaffer

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • David Tilstra

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Melanie Wells

    CEO

    Total calculated
    $370,439
    From this org
    $330,016
    From related orgs
    $0
    Other
    $40,423
    Hours/week
    3.75 + 33.25 related

    Schedule J breakdown matched by us

    Base
    $330,016
    Bonus
    $0
    Other
    $0
    Deferred
    $19,914
    Nontaxable benefits
    $20,509
    Filer's total
    $370,439
  • Chris Pitro

    CFO

    Total calculated
    $220,019
    From this org
    $210,362
    From related orgs
    $0
    Other
    $9,657
    Hours/week
    1.5 + 36 related

    Schedule J breakdown matched by us

    Base
    $210,362
    Bonus
    $0
    Other
    $0
    Deferred
    $7,654
    Nontaxable benefits
    $2,003
    Filer's total
    $220,019
  • Alexis Morgan

    COO

    Total calculated
    $187,886
    From this org
    $163,083
    From related orgs
    $0
    Other
    $24,803
    Hours/week
    1.5 + 36 related

    Schedule J breakdown matched by us

    Base
    $163,083
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $24,803
    Filer's total
    $187,886
  • Karl Moeller

    DIRECTOR OF DEVELOPMENT

    Total calculated
    $212,763
    From this org
    $180,322
    From related orgs
    $0
    Other
    $32,441
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $180,322
    Bonus
    $0
    Other
    $0
    Deferred
    $15,703
    Nontaxable benefits
    $16,738
    Filer's total
    $212,763
  • Amy Brower

    ASSOCIATE PROJECT DIRECTOR, NBS

    Total calculated
    $220,220
    From this org
    $183,984
    From related orgs
    $0
    Other
    $36,236
    Hours/week
    0 + 37.5 related

    Schedule J breakdown matched by us

    Base
    $183,984
    Bonus
    $0
    Other
    $0
    Deferred
    $16,181
    Nontaxable benefits
    $20,055
    Filer's total
    $220,220
  • Kathleen Moran

    DIRECTOR OF COMMUNICATIONS

    Total calculated
    $219,325
    From this org
    $183,490
    From related orgs
    $0
    Other
    $35,835
    Hours/week
    1.5 + 36 related

    Schedule J breakdown matched by us

    Base
    $183,490
    Bonus
    $0
    Other
    $0
    Deferred
    $18,624
    Nontaxable benefits
    $17,211
    Filer's total
    $219,325
  • Lynn Fleisher

    GENERAL COUNSEL

    Total calculated
    $183,607
    From this org
    $182,000
    From related orgs
    $0
    Other
    $1,607
    Hours/week
    1 + 36.5 related

    Schedule J breakdown matched by us

    Base
    $182,000
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $1,607
    Filer's total
    $183,607
  • Jane Dahlroth

    SNR DIRECTOR OF MEETINGS & EXHIBITS

    Total calculated
    $180,317
    From this org
    $148,064
    From related orgs
    $0
    Other
    $32,253
    Hours/week
    0 + 35 related

    Schedule J breakdown matched by us

    Base
    $148,064
    Bonus
    $0
    Other
    $0
    Deferred
    $15,090
    Nontaxable benefits
    $17,163
    Filer's total
    $180,317
  • Michelle McClure

    DIRECTOR OF PUBLIC POLICY

    Total calculated
    $167,558
    From this org
    $149,992
    From related orgs
    $0
    Other
    $17,566
    Hours/week
    0 + 35 related

    Schedule J breakdown matched by us

    Base
    $149,992
    Bonus
    $0
    Other
    $0
    Deferred
    $9,202
    Nontaxable benefits
    $8,364
    Filer's total
    $167,558

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2024
Filed
17 November 2025
IRS schema version
2024v5.2
Source object
202523219349310102

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