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ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE

EIN 52-1841165 BETHESDA, MD

Revenue 2024
$622,219
Expenses 2024
$1,535,415

Program services were 18.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
Classification
1200
Street
7101 WISCONSIN AVE STE 1101

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

SUPPORT THE AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS' (ACMG) EDUCATIONAL MISSION TO "TRANSLATE GENES INTO HEALTH" BY RAISING FUNDS TO ATTRACT THE NEXT GENERATION OF MEDICAL GENETICISTS AND GENETIC COUNSELORS, TO SPONSOR IMPORTANT RESEARCH AND TO PROMOTE INFORMATION ABOUT MEDICAL GENETICS.

Activities or mission (Part I)

SEE PART III, LINE 1.

  • SUMMER GENETICS SCHOLARS PROGRAM: IN 2024 THERE WERE 11 SUMMER SCHOLARS ENROLLED IN THE SUMMER GENETICS SCHOLARS PROGRAM. ACMG FOUNDATION TREATMENT GUIDELINES DEVELOPMENT FUND: THE ACCELERATION OF SCIENTIFIC DISCOVERY OVER THESE LAST FEW YEARS HAS PUT INCREASING DEMANDS ON THE ACMG TO INTENSIFY ITS WORK IN THE DEVELOPMENT OF PRACTICE GUIDELINES, PARTICULARLY TO BE ABLE TO RESPOND QUICKLY AS NEW THERAPEUTICS FOR GENETIC DISEASES EMERGE.THE ACMG FOUNDATION, ON BEHALF OF ACMG, HAS ESTABLISHED A FUND TO DEVELOP AND DISSEMINATE BEST-PRACTICE GUIDELINES THAT RESPOND TO AND INCORPORATE FREQUENT, NEW SCIENTIFIC DISCOVERIES IN THE DIAGNOSIS, MANAGEMENT, AND TREATMENT OF GENETIC CONDITIONS, FROM DETECTION THROUGH NEWBORN SCREENING TO COMMON PROBLEMS OF ADULTHOOD.DAY OF CARING: THE DAY OF CARING IS AN EVENT WHERE FUNDS ARE RAISED TO PROVIDE BICYCLES AND HELMETS TO CHILDREN WITH GENETIC DISEASES. LOCAL GENETICS ORGANIZATIONS ARE TAPPED TO FIND RECIPIENTS AND AN EVENT IS HELD DURING THE ACMG ANNUAL MEETING TO PRESENT THESE BICYCLES.THE PURPOSE OF THE PFIZER/ACMG FOUNDATION'S "TRANSLATIONAL GENOMICS SCHOLARS" AWARD PROGRAM IS TO ADVANCE EDUCATION, RESEARCH AND STANDARDS OF PRACTICE IN MEDICAL GENETICS, AND TO DEVELOP AND EXPAND CLINICAL AND LABORATORY EXPERTISE IN MEDICAL GENETICS IN THE UNITED STATES. IT ALSO SEEKS TO INITIATE AND DEVELOP A BROAD-BASED INFRASTRUCTURE FOR INDUSTRY FUNDING OF HIGH QUALITY PROJECTS IN THE FIELDS OF MEDICAL GENETICS.OTHER AWARDS AND FELLOWSHIPS:- SANOFI CORPORATION FELLOWSHIP- TAKEDA CORPORATION FELLOWSHIP

    Expenses $286,218 · Grants $250,500

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Nancy Mendelsohn

    PRESIDENT

    Total calculated
    $0
    Hours/week
    3 + 3 related
  • Bruce Korf

    PAST PRESIDENT

    Total calculated
    $0
    Hours/week
    3 + 3 related
  • Brynn Levy

    PRESIDENT-ELECT

    Total calculated
    $0
    Hours/week
    3 + 3 related
  • Sarah Elsea

    TREASURER

    Total calculated
    $0
    Hours/week
    3 + 3 related
  • Madhuri Hegde

    SECRETARY

    Total calculated
    $0
    Hours/week
    3 + 3 related
  • Sucheta Bhatt

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Katie Johansen Taber

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Marilyn Jones

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • James Lu

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Rong Mao

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Harry Ostrer

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Aleksandar Rajkovic

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Lisa Shaffer

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • David Tilstra

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Melanie Wells

    CEO

    Total calculated
    $370,439
    From this org
    $330,016
    From related orgs
    $0
    Other
    $40,423
    Hours/week
    3.75 + 33.25 related

    Schedule J breakdown matched by us

    Base
    $330,016
    Bonus
    $0
    Other
    $0
    Deferred
    $19,914
    Nontaxable benefits
    $20,509
    Filer's total
    $370,439
  • Chris Pitro

    CFO

    Total calculated
    $220,019
    From this org
    $210,362
    From related orgs
    $0
    Other
    $9,657
    Hours/week
    1.5 + 36 related

    Schedule J breakdown matched by us

    Base
    $210,362
    Bonus
    $0
    Other
    $0
    Deferred
    $7,654
    Nontaxable benefits
    $2,003
    Filer's total
    $220,019
  • Alexis Morgan

    COO

    Total calculated
    $187,886
    From this org
    $163,083
    From related orgs
    $0
    Other
    $24,803
    Hours/week
    1.5 + 36 related

    Schedule J breakdown matched by us

    Base
    $163,083
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $24,803
    Filer's total
    $187,886
  • Karl Moeller

    DIRECTOR OF DEVELOPMENT

    Total calculated
    $212,763
    From this org
    $180,322
    From related orgs
    $0
    Other
    $32,441
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $180,322
    Bonus
    $0
    Other
    $0
    Deferred
    $15,703
    Nontaxable benefits
    $16,738
    Filer's total
    $212,763
  • Amy Brower

    ASSOCIATE PROJECT DIRECTOR, NBS

    Total calculated
    $220,220
    From this org
    $183,984
    From related orgs
    $0
    Other
    $36,236
    Hours/week
    0 + 37.5 related

    Schedule J breakdown matched by us

    Base
    $183,984
    Bonus
    $0
    Other
    $0
    Deferred
    $16,181
    Nontaxable benefits
    $20,055
    Filer's total
    $220,220
  • Kathleen Moran

    DIRECTOR OF COMMUNICATIONS

    Total calculated
    $219,325
    From this org
    $183,490
    From related orgs
    $0
    Other
    $35,835
    Hours/week
    1.5 + 36 related

    Schedule J breakdown matched by us

    Base
    $183,490
    Bonus
    $0
    Other
    $0
    Deferred
    $18,624
    Nontaxable benefits
    $17,211
    Filer's total
    $219,325
  • Lynn Fleisher

    GENERAL COUNSEL

    Total calculated
    $183,607
    From this org
    $182,000
    From related orgs
    $0
    Other
    $1,607
    Hours/week
    1 + 36.5 related

    Schedule J breakdown matched by us

    Base
    $182,000
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $1,607
    Filer's total
    $183,607
  • Jane Dahlroth

    SNR DIRECTOR OF MEETINGS & EXHIBITS

    Total calculated
    $180,317
    From this org
    $148,064
    From related orgs
    $0
    Other
    $32,253
    Hours/week
    0 + 35 related

    Schedule J breakdown matched by us

    Base
    $148,064
    Bonus
    $0
    Other
    $0
    Deferred
    $15,090
    Nontaxable benefits
    $17,163
    Filer's total
    $180,317
  • Michelle McClure

    DIRECTOR OF PUBLIC POLICY

    Total calculated
    $167,558
    From this org
    $149,992
    From related orgs
    $0
    Other
    $17,566
    Hours/week
    0 + 35 related

    Schedule J breakdown matched by us

    Base
    $149,992
    Bonus
    $0
    Other
    $0
    Deferred
    $9,202
    Nontaxable benefits
    $8,364
    Filer's total
    $167,558

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $622,219
    Expenses
    $1,535,415
    Contributions
    $493,178
    Grants paid
    $250,500
  • 2023
    Revenue
    $1,821,908
    Expenses
    $835,586
    Contributions
    $1,484,501
    Grants paid
    $477,500
  • 2022
    Revenue
    $1,409,009
    Expenses
    $758,603
    Contributions
    $1,315,309
    Grants paid
    $302,222

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $1,600,164
    Expenses
    $702,023
    Assets (EOY)
    $4,114,026
  • 2020 · 990

    Revenue
    $982,286
    Expenses
    $908,079
    Assets (EOY)
    $3,151,168
  • 2019 · 990

    Revenue
    $869,825
    Expenses
    $1,260,140
    Assets (EOY)
    $2,116,821
  • 2018 · 990

    Revenue
    $646,255
    Expenses
    $949,832
    Assets (EOY)
    $2,538,965
  • 2017 · 990

    Revenue
    $730,485
    Expenses
    $1,037,475
    Assets (EOY)
    $3,002,758
  • 2016 · 990

    Revenue
    $2,612,580
    Expenses
    $742,332
    Assets (EOY)
    $3,304,172
  • 2015 · 990

    Revenue
    $1,068,695
    Expenses
    $1,176,197
    Assets (EOY)
    $1,138,279

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

No itemized grant names this organization as a recipient. Only grants over $5,000 are itemized, and only by filers of the full Form 990.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Declared on its 2024 return

Declared as related by

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility SOUNK.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 29 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.