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← ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE

Form 990 for tax year 2022

Filed by ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE.

Totals

Total revenue
$1,409,009
Total expenses
$758,603
Contributions and grants received
$1,315,309
Grants paid
$302,222
Program service revenue
$0
Investment income
$59,808
Other revenue
$33,892
Total assets, end of year
$3,370,243
Total liabilities, end of year
$477,167
Net assets or fund balances, end of year
$2,893,076
Program services expenses (Part IX)
$351,031
Management and general expenses
$178,945
Fundraising expenses
$228,627
Program service expenses (Part III)
$351,031

Program services were 46.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $1,315,309

  • 3 · Investment income

    total $59,808 · excluded $59,808

  • 11a · Other revenue: MISCELLANEOUS

    total $22,892 · excluded $22,892

  • 11b · Other revenue: ACMG ADMIN. FEES

    total $11,000 · excluded $11,000

  • 11e · Other revenue, total

    $33,892

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $248,222 · program services $248,222

  • 2 · Grants to domestic individuals

    total $54,000 · program services $54,000

  • 5 · Compensation of officers, directors and key employees

    total $59,362 · program services $19,036 · fundraising $40,326

  • 7 · Other salaries and wages

    total $41,090 · program services $13,177 · fundraising $27,913

  • 8 · Pension plan contributions

    total $8,170 · program services $2,620 · fundraising $5,550

  • 9 · Other employee benefits

    total $17,497 · program services $5,611 · fundraising $11,886

  • 10 · Payroll taxes

    total $9,240 · program services $2,963 · fundraising $6,277

  • 11b · Fees: legal

    total $6 · management and general $6

  • 11c · Fees: accounting

    total $24,293 · management and general $24,293

  • 11e · Fees: professional fundraising services

    total $94,594 · fundraising $94,594

  • 11f · Fees: investment management

    total $18,663 · management and general $18,663

  • 11g · Fees: other

    total $38,031 · program services $1,000 · management and general $25,951 · fundraising $11,080

  • 12 · Advertising and promotion

    total $4,399 · management and general $1,434 · fundraising $2,965

  • 13 · Office expenses

    total $37,629 · management and general $25,988 · fundraising $11,641

  • 14 · Information technology

    total $15,947 · management and general $15,947

  • 16 · Occupancy

    total $16,289 · management and general $16,289

  • 17 · Travel

    total $30,906 · program services $963 · management and general $28,680 · fundraising $1,263

  • 22 · Depreciation, depletion and amortization

    total $10,353 · management and general $10,353

  • 24a · Other expenses: PAYROLL FEES

    total $13,274 · fundraising $13,274

  • 24b · Other expenses: DUES/SUBSCRIPTIONS

    total $9,119 · program services $2,779 · management and general $6,340

  • 24c · Other expenses: H.R. EXPENSES

    total $4,557 · program services $660 · management and general $2,039 · fundraising $1,858

  • 24d · Other expenses: CREDIT CARD PROC. FEES

    total $2,962 · management and general $2,962

Balance sheet

Part X, book values.

  • 2 · Savings and temporary cash investments

    beginning of year $242,049 · end of year $489,461

  • 3 · Pledges and grants receivable

    beginning of year $1,418,342 · end of year $197,746

  • 9 · Prepaid expenses and deferred charges

    beginning of year $1,732 · end of year $120

  • 10a · Land, buildings and equipment: cost or other basis

    $60,652

  • 10b · Land, buildings and equipment: accumulated depreciation

    $36,455

  • 10c · Land, buildings and equipment, net

    beginning of year $21,216 · end of year $24,197

  • 11 · Investments: publicly traded securities

    beginning of year $2,292,450 · end of year $2,238,302

  • 15 · Other assets

    beginning of year $138,237 · end of year $420,417

  • 17 · Accounts payable and accrued expenses

    beginning of year $533,633 · end of year $477,167

  • 24 · Unsecured notes and loans payable

    beginning of year $643,467

  • 25 · Other liabilities

    beginning of year $272,058 · end of year $0

  • 27 · Net assets without donor restrictions

    beginning of year $313,277 · end of year $518,739

  • 28 · Net assets with donor restrictions

    beginning of year $2,351,591 · end of year $2,374,337

Mission and programs · 2022

Mission

SUPPORT THE AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS' (ACMG) EDUCATIONAL MISSION TO "TRANSLATE GENES INTO HEALTH" BY RAISING FUNDS TO ATTRACT THE NEXT GENERATION OF MEDICAL GENETICISTS AND GENETIC COUNSELORS, TO SPONSOR IMPORTANT RESEARCH AND TO PROMOTE INFORMATION ABOUT MEDICAL GENETICS.

Activities or mission (Part I)

SEE PART III, LINE 1.

  • SUMMER GENETICS SCHOLARS PROGRAM: IN 2022 THERE WERE 18 SUMMER SCHOLARS ENROLLED IN THE SUMMER GENETICS SCHOLARS PROGRAM. ACMG FOUNDATION TREATMENT GUIDELINES DEVELOPMENT FUND: THE ACCELERATION OF SCIENTIFIC DISCOVERY OVER THESE LAST FEW YEARS HAS PUT INCREASING DEMANDS ON THE ACMG TO INTENSIFY ITS WORK IN THE DEVELOPMENT OF PRACTICE GUIDELINES, PARTICULARLY TO BE ABLE TO RESPOND QUICKLY AS NEW THERAPEUTICS FOR GENETIC DISEASES EMERGE.THE ACMG FOUNDATION, ON BEHALF OF ACMG, HAS ESTABLISHED A FUND TO DEVELOP AND DISSEMINATE BEST-PRACTICE GUIDELINES THAT RESPOND TO AND INCORPORATE FREQUENT, NEW SCIENTIFIC DISCOVERIES IN THE DIAGNOSIS, MANAGEMENT, AND TREATMENT OF GENETIC CONDITIONS, FROM DETECTION THROUGH NEWBORN SCREENING TO COMMON PROBLEMS OF ADULTHOOD.DAY OF CARING: THE DAY OF CARING IS AN EVENT WHERE FUNDS ARE RAISED TO PROVIDE BICYCLES AND HELMETS TO CHILDREN WITH GENETIC DISEASES. LOCAL GENETICS ORGANIZATIONS ARE TAPPED TO FIND RECIPIENTS AND AN EVENT IS HELD DURING THE ACMG ANNUAL MEETING TO PRESENT THESE BICYCLES.THE PURPOSE OF THE PFIZER/ACMG FOUNDATION'S "TRANSLATIONAL GENOMICS SCHOLARS" AWARD PROGRAM IS TO ADVANCE EDUCATION, RESEARCH AND STANDARDS OF PRACTICE IN MEDICAL GENETICS, AND TO DEVELOP AND EXPAND CLINICAL AND LABORATORY EXPERTISE IN MEDICAL GENETICS IN THE UNITED STATES. IT ALSO SEEKS TO INITIATE AND DEVELOP A BROAD-BASED INFRASTRUCTURE FOR INDUSTRY FUNDING OF HIGH QUALITY PROJECTS IN THE FIELDS OF MEDICAL GENETICS.OTHER AWARDS AND FELLOWSHIPS:- SANOFI CORPORATION FELLOWSHIP- TAKEDA CORPORATION FELLOWSHIP

    Expenses $351,031 · Grants $302,222

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Bruce R Korf

    PRESIDENT

    Total calculated
    $0
    Hours/week
    3 + 3 related

  • David A Whiteman

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    2

  • Madhuri Hedge

    SECRETARY/TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Robert G Best

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Sarah Elsea

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Nasha Fitter

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Evan Jones

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Brynn Levy

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Matthew Rabinowtiz

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Aleksandar Rajkovic

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Nancy Mendelsohn

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • David Tilstra

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Marc Williams

    EX-OFFICIO REPRESENTATIVE

    Total calculated
    $0
    Hours/week
    1 + 5 related

  • Susan Klugman

    EX-OFFICIO REPRESENTATIVE

    Total calculated
    $0
    Hours/week
    1 + 3 related

  • Maximilian Muenke

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $452,471
    From this org
    $424,360
    From related orgs
    $0
    Other
    $28,111
    Hours/week
    3 + 34.5 related

    Schedule J breakdown matched by us

    Base
    $424,360
    Bonus
    $0
    Other
    $0
    Deferred
    $20,365
    Nontaxable benefits
    $7,746
    Filer's total
    $452,471

  • Melanie Wells

    CHIEF OPERATING OFFICER

    Total calculated
    $289,555
    From this org
    $254,385
    From related orgs
    $0
    Other
    $35,170
    Hours/week
    3.75 + 33.75 related

    Schedule J breakdown matched by us

    Base
    $254,385
    Bonus
    $0
    Other
    $0
    Deferred
    $15,180
    Nontaxable benefits
    $19,990
    Filer's total
    $289,555

  • Chris Pitro

    CHIEF FINANCIAL OFFICER

    Total calculated
    $206,473
    From this org
    $194,658
    From related orgs
    $0
    Other
    $11,815
    Hours/week
    1.5 + 36 related

    Schedule J breakdown matched by us

    Base
    $194,658
    Bonus
    $0
    Other
    $0
    Deferred
    $11,635
    Nontaxable benefits
    $180
    Filer's total
    $206,473

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2022
Filed
7 November 2023
IRS schema version
2022v5.0
Source object
202323119349303972

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