Form 990 for tax year 2023
Filed by CASTLEMAN DISEASE COLLABORATIVE NETWORK.
Totals
- Total revenue
- $1,265,979
- Total expenses
- $827,118
- Contributions and grants received
- $1,193,164
- Grants paid
- $320,099
- Program service revenue
- $0
- Investment income
- $72,815
- Other revenue
- $0
- Total assets, end of year
- $2,959,883
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $2,959,883
- Program services expenses (Part IX)
- $795,353
- Management and general expenses
- $31,765
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $795,353
Program services were 96.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$1,193,164
-
1g · Noncash contributions included above
$3,894
-
3 · Investment income
total $72,815 · excluded $72,815
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7a · Gross sales of assets other than inventory
securities $8,664 · other assets $3,330,000
-
7b · Less cost or other basis and sales expenses
securities $8,664 · other assets $3,330,000
-
7d · Net gain or loss
total $0
-
8c · Net income from fundraising events
total $0
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $289,999 · program services $289,999
-
2 · Grants to domestic individuals
total $0
-
3 · Grants to foreign organizations and individuals
total $30,100 · program services $30,100
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $0
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $0
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $0
-
10 · Payroll taxes
total $0
-
11a · Fees: management
total $0
-
11b · Fees: legal
total $0
-
11c · Fees: accounting
total $1,825 · management and general $1,825
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $0
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $0
-
12 · Advertising and promotion
total $2,983 · program services $2,983
-
13 · Office expenses
total $0
-
14 · Information technology
total $1,702 · management and general $1,702
-
15 · Royalties
total $0
-
16 · Occupancy
total $0
-
17 · Travel
total $14,804 · program services $14,804
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $161,182 · program services $161,182
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $0
-
23 · Insurance
total $1,500 · management and general $1,500
-
24a · Other expenses: RESEARCH CONSULTING/COORDINATI
total $158,932 · program services $158,932
-
24b · Other expenses: COMMUNICATION & DEVELOPMENT
total $82,597 · program services $82,597
-
24c · Other expenses: BIOMED CONSULTING/STUDY
total $22,184 · program services $22,184
-
24d · Other expenses: SOFTWARE
total $17,332 · management and general $17,332
-
24e · All other expenses
total $41,978 · program services $32,572 · management and general $9,406
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $361,449 · end of year $498,703
-
2 · Savings and temporary cash investments
beginning of year $2,159,572 · end of year $2,461,180
-
3 · Pledges and grants receivable
end of year $0
-
4 · Accounts receivable
end of year $0
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
end of year $0
-
10c · Land, buildings and equipment, net
end of year $0
-
11 · Investments: publicly traded securities
end of year $0
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
end of year $0
-
15 · Other assets
end of year $0
-
29 · Capital stock, trust principal or current funds
beginning of year $2,521,021 · end of year $2,959,883
Mission and programs · 2023
Mission
TO DEVELOP AWARENESS OF CASTLEMAN'S DISEASE AND TO RAISE MONEY TO FUND EDUCATION AND LABORATORY RESEARCH TO DETERMINE CAUSE, TREATMENT AND ULTIMATE CURE.
-
IN 2023, COMMUNITY CONTRIBUTIONS AND LARGE GRANTS WERE RECEIVED AND USED TO SUPPORT AN EDUCATIONAL SUMMIT MEETING HELD IN AUGUST 2023 FOR PATIENTS AND LOVED ONES DEALING WITH CASTLEMAN'S DISEASE. THE PURPOSE OF THIS MEETING WAS TO PROVIDE SUPPORTIVE RESOURCES, UP TO DATE INFORMATION ABOUT THE DISEASE, CURRENT RESEARCH AND TREATMENT OPTIONS AND WAYS TO SUPPORT THE EFFORTS IN THESE AREAS. FUNDS WERE EXPENDED FOR PROMOTION, PATIENT LITERATURE, LODGING, TRAVEL AND OTHER RELATED EXPENSES.TO SUPPORT THE ONGOING RESEARCH FOR CASTLEMAN'S DISEASE CAUSE AND TREATMENT:IN 2023, CASH CONTRIBUTIONS TOTALING $320,099 WERE MADE TO THE UNIVERSITY OF PENNSYLVANIA, ELSE CARE CARENITY IN PARIS, FRANCE AND THE UPLIFTING ATHLETES ORGANIZATION. THESE CASH CONTRIBUTIONS WERE MADE TO FUND FURTHER RESEARCH IN CASTLEMAN'S DISEASE. IN 2023 CASH EXPENDITURES OF $475,254 WERE MADE TO COVER CONSULTING FEES, PHYSICIAN EDUCATION, PATIENT EDUCATION AND MAINTAIN A DATABASE FOR RESEARCH TEAMS INVOLVED IN VARIOUS AREAS OF CASTLEMAN'S DISEASE RESEARCH. THESE RESEARCH STUDIES OFFER PROMISE TO UNDERSTAND THE CASTLEMAN'S DISEASE MECHANISMS AND PROVIDE INSIGHTS FOR DEVELOPMENT OF PERSONALIZED THERAPIES.IN 2024, FURTHER COMMUNITY CONTRIBUTION SOLICITATIONS AND FUNDRAISING EVENTS ARE PLANNED SO THAT MORE MONEY IS AVAILABLE TO FURTHER FUND THE EDUCATION, RESEARCH, CAUSE AND CURE OF CASTLEMAN'S DISEASE.
Expenses $795,353 · Grants $320,099
As filed on the 2023 return.
Listed in Part VII
-
Katherine HaeuselKATHERINE HAEUSEL
Director
- Total calculated
- $0
- Hours/week
- 0
-
Kevin SilkKEVIN SILK
Director
- Total calculated
- $0
- Hours/week
- 0
-
Bette JacobsBETTE JACOBS
Director
- Total calculated
- $0
- Hours/week
- 0
-
Peter BuckmanPETER BUCKMAN
Director
- Total calculated
- $0
- Hours/week
- 0
-
Tim HuvalTIM HUVAL
Director
- Total calculated
- $0
- Hours/week
- 0
-
Kim DriscollKIM DRISCOLL
Director
- Total calculated
- $0
- Hours/week
- 0
-
Charlyn PachecoCHARLYN PACHECO
Secretary
- Total calculated
- $0
- Hours/week
- 0
-
Greg PachecoGREG PACHECO
Chairman
- Total calculated
- $0
- Hours/week
- 0
-
Jason Clark DiefenderferJASON CLARK DIEFENDERFER
Vice President
- Total calculated
- $0
- Hours/week
- 0
-
David FajgenbaumDAVID FAJGENBAUM
President
- Total calculated
- $0
- Hours/week
- 0
-
Michael StiefMICHAEL STIEF
Treasurer
- Total calculated
- $0
- Hours/week
- 0
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$279,999
MEDICAL RESEARCH
-
ELSE CARE CARENITY
$30,100
MEDICAL RESEARCH
-
$10,000
MEDICAL RESEARCH
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 14 November 2024
- IRS schema version
- 2023v5.1
- Source object
- 202423199349311822
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