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CASTLEMAN DISEASE COLLABORATIVE NETWORK

EIN 37-1510354 PASO ROBLES, CA

Revenue 2024
$979,030
Expenses 2024
$961,126

Program services were 87.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H12
Classification
1000
Street
PO BOX 3614

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

TO DEVELOP AWARENESS OF CASTLEMAN'S DISEASE AND TO RAISE MONEY TO FUND EDUCATION AND LABORATORY RESEARCH TO DETERMINE CAUSE, TREATMENT AND ULTIMATE CURE.

  • IN 2024, COMMUNITY CONTRIBUTIONS, LARGE GRANTS AND FUNDRAISER PROCEEDS WERE RECEIVED AND USED TO HELP FUND A CASTLEMAN'S DISEASE EDUCATIONAL CONFERENCE HELD IN DECEMBER 2024 IN SAN DIEGO, CALIFORNIA. THE CDCN (CASTLEMAN'S DISEASE COLLABORATIVE NETWORK) HELD THE 13TH ANNUAL "ACCELERATING RESEARCH & TREATMENT FOR CASTLEMAN'S DISEASE WORKING DINNER" WHERE A DIVERSE GROUP OF HEMATOLOGISTS, PATHOLOGISTS, PHYSICIAN-SCIENTISTS, TRANSLATIONAL RESEARCHERS AND PHARMACEUTICAL PARTNERS ATTENDED. THE MEETING FOCUSED ON THE GAPS THAT EXIST IN THE CURRENT STATE OF KNOWLEDGE REGARDING THE DISEASE, DIAGNOSTIC CRITERIA AND RECENTLY APPROVED TREATMENT OPTIONS. FUNDS WERE EXPENDED FOR FACILITY RENTAL, TRAVEL, LODGING MEALS AND OTHER RELATED EXPENSES.THE FUNDS WERE ALSO USED TO SUPPORT AN EDUCATIONAL SUMMIT MEETING HELD IN JULY 2024 IN PHILADELPHIA, PENNSYLVANIA FOR PATIENTS AND LOVED ONES DEALING WITH CASTLEMAN'S DISEASE. THE PURPOSE OF THIS MEETING WAS TO PROVIDE SUPPORTIVE RESOURCES, UP TO DATE INFORMATION ABOUT THE DISEASE, CURRENT RESEARCH AND TREATMENT OPTIONS AND WAYS TO SUPPORT THE EFFORTS IN THESE AREAS. FUNDS WERE EXPENDED FOR PROMOTION, PATIENT LITERATURE, LODGING, TRAVEL AND OTHER RELATED EXPENSES.TO SUPPORT THE ONGOING RESEARCH FOR CASTLEMAN'S DISEASE CAUSE AND TREATMENT:IN 2024, CASH CONTRIBUTIONS TOTALING $298,000 WERE MADE TO THE UNIVERSITY OF PENNSYLVANIA AND THE UPLIFTING ATHLETES ORGANIZATION. THESE CASH CONTRIBUTIONS WERE MADE TO FUND FURTHER RESEARCH IN CASTLEMAN'S DISEASE. IN 2024 CASH EXPENDITURES OF $537,833 WERE MADE TO COVER CONSULTING FEES, PHYSICIAN EDUCATION, PATIENT EDUCATION AND MAINTAIN A DATABASE FOR RESEARCH TEAMS INVOLVED IN VARIOUS AREAS OF CASTLEMAN'S DISEASE RESEARCH. THESE RESEARCH STUDIES OFFER PROMISE TO UNDERSTAND THE CASTLEMAN'S DISEASE MECHANISMS AND PROVIDE INSIGHTS FOR DEVELOPMENT OF PERSONALIZED THERAPIES.IN 2025, FURTHER COMMUNITY CONTRIBUTION SOLICITATIONS AND FUNDRAISING EVENTS ARE PLANNED SO THAT MORE MONEY IS AVAILABLE TO FURTHER FUND THE EDUCATION, RESEARCH, CAUSE AND CURE OF CASTLEMAN'S DISEASE.

    Expenses $835,833 · Grants $298,000

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • KATHERINE HAEUSEL

    Director

    Total calculated
    $0
    Hours/week
    0

  • KEVIN SILK

    Director

    Total calculated
    $0
    Hours/week
    0

  • BETTE JACOBS

    Director

    Total calculated
    $0
    Hours/week
    0

  • PETER BUCKMAN

    Director

    Total calculated
    $0
    Hours/week
    0

  • TIM HUVAL

    Director

    Total calculated
    $0
    Hours/week
    0

  • CHARLYN PACHECO

    Secretary

    Total calculated
    $0
    Hours/week
    0

  • GREG PACHECO

    Chairman

    Total calculated
    $0
    Hours/week
    0

  • JASON CLARK DIEFENDERFER

    Vice President

    Total calculated
    $0
    Hours/week
    0

  • DAVID FAJGENBAUM

    President

    Total calculated
    $0
    Hours/week
    0

  • MICHAEL STIEF

    Treasurer

    Total calculated
    $0
    Hours/week
    0

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $979,030
    Expenses
    $961,126
    Contributions
    $942,547
    Grants paid
    $298,000
  • 2023
    Revenue
    $1,265,979
    Expenses
    $827,118
    Contributions
    $1,193,164
    Grants paid
    $320,099
  • 2022
    Revenue
    $898,672
    Expenses
    $442,509
    Contributions
    $933,709
    Grants paid
    $136,405

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $788,631
    Expenses
    $670,727
    Assets (EOY)
    $2,064,859

  • 2020 · 990

    Revenue
    $1,031,462
    Expenses
    $615,045
    Assets (EOY)
    $1,946,955

  • 2019 · 990

    Revenue
    $1,184,161
    Expenses
    $603,315
    Assets (EOY)
    $1,530,537

  • 2017 · 990

    Revenue
    $647,670
    Expenses
    $414,060
    Assets (EOY)
    $848,284

  • 2016 · 990

    Revenue
    $453,798
    Expenses
    $196,088
    Assets (EOY)
    $614,674

  • 2015 · 990

    Revenue
    $328,160
    Expenses
    $228,226
    Assets (EOY)
    $356,964

  • 2014 · 990

    Revenue
    $227,445
    Expenses
    $86,497
    Assets (EOY)
    $257,030

  • 2013 · 990-EZ

    Revenue
    $114,962
    Expenses
    $5,564
    Assets (EOY)
    $116,019

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 29 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.