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Nonprofiteer
← AMERICAN BRAIN FOUNDATION

Form 990 for tax year 2022

Filed by AMERICAN BRAIN FOUNDATION.

Totals

Total revenue
$5,946,773
Total expenses
$7,713,651
Contributions and grants received
$6,002,262
Grants paid
$5,297,664
Program service revenue
$0
Investment income
$54,689
Other revenue
-$110,178
Total assets, end of year
$16,866,097
Total liabilities, end of year
$3,676,391
Net assets or fund balances, end of year
$13,189,706
Program services expenses (Part IX)
$6,375,853
Management and general expenses
$705,078
Fundraising expenses
$632,720
Program service expenses (Part III)
$6,375,853

Program services were 82.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $0

  • 1b · Membership dues

    $0

  • 1c · Fundraising events

    $662,985

  • 1d · Related organizations

    $0

  • 1e · Government grants (contributions)

    $0

  • 1f · All other contributions, gifts and grants

    $5,339,277

  • 1g · Noncash contributions included above

    $0

  • 2f · All other program service revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 3 · Investment income

    total $193,526 · related or exempt $0 · unrelated business $0 · excluded $193,526

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 5 · Royalties

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 6a · Gross rents

    real property $0 · personal property $0

  • 6b · Less rental expenses

    real property $0 · personal property $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 6d · Net rental income or loss

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 7a · Gross sales of assets other than inventory

    securities $2,715,957 · other assets $0

  • 7b · Less cost or other basis and sales expenses

    securities $2,854,794 · other assets $0

  • 7c · Gain or loss

    securities -$138,837 · other assets $0

  • 7d · Net gain or loss

    total -$138,837 · related or exempt $0 · unrelated business $0 · excluded -$138,837

  • 8a · Fundraising events: gross income

    $32,200

  • 8a · Fundraising events: contributions included on line 1c

    $662,985

  • 8b · Fundraising events: direct expenses

    $143,083

  • 8c · Net income from fundraising events

    total -$110,883 · unrelated business $0 · excluded -$110,883

  • 9a · Gaming: gross income

    $0

  • 9b · Gaming: direct expenses

    $0

  • 9c · Net income from gaming

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 10a · Gross sales of inventory

    $0

  • 10b · Cost of goods sold

    $0

  • 10c · Net income from sales of inventory

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 11a · Other revenue: Miscellaneous Income

    total $705 · related or exempt $0 · unrelated business $0 · excluded $705

  • 11d · All other revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $705

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $5,296,664 · program services $5,296,664

  • 2 · Grants to domestic individuals

    total $1,000 · program services $1,000

  • 3 · Grants to foreign organizations and individuals

    total $0 · program services $0

  • 4 · Benefits paid to or for members

    total $0 · program services $0

  • 5 · Compensation of officers, directors and key employees

    total $355,055 · program services $127,820 · management and general $134,921 · fundraising $92,314

  • 6 · Compensation of disqualified persons

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 7 · Other salaries and wages

    total $663,086 · program services $238,711 · management and general $251,973 · fundraising $172,402

  • 8 · Pension plan contributions

    total $62,238 · program services $22,405 · management and general $23,651 · fundraising $16,182

  • 9 · Other employee benefits

    total $93,589 · program services $33,692 · management and general $35,564 · fundraising $24,333

  • 10 · Payroll taxes

    total $63,576 · program services $22,887 · management and general $24,159 · fundraising $16,530

  • 11a · Fees: management

    total $55,628 · program services $20,969 · management and general $20,013 · fundraising $14,646

  • 11b · Fees: legal

    total $14,252 · program services $896 · management and general $10,516 · fundraising $2,840

  • 11c · Fees: accounting

    total $125,844 · program services $42,322 · management and general $53,962 · fundraising $29,560

  • 11d · Fees: lobbying

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11e · Fees: professional fundraising services

    total $0 · fundraising $0

  • 11f · Fees: investment management

    total $8,951 · program services $0 · management and general $8,951 · fundraising $0

  • 11g · Fees: other

    total $490,842 · program services $373,717 · management and general $14,347 · fundraising $102,778

  • 12 · Advertising and promotion

    total $85,524 · program services $84,735 · management and general $0 · fundraising $789

  • 13 · Office expenses

    total $230,634 · program services $35,159 · management and general $78,700 · fundraising $116,775

  • 14 · Information technology

    total $31,924 · program services $12,034 · management and general $11,485 · fundraising $8,405

  • 15 · Royalties

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 16 · Occupancy

    total $36,991 · program services $13,210 · management and general $14,554 · fundraising $9,227

  • 17 · Travel

    total $42,319 · program services $21,622 · management and general $8,680 · fundraising $12,017

  • 18 · Travel or entertainment for public officials

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 19 · Conferences, conventions and meetings

    total $25,616 · program services $14,583 · management and general $1,622 · fundraising $9,411

  • 20 · Interest

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 21 · Payments to affiliates

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 22 · Depreciation, depletion and amortization

    total $12,449 · program services $12,449 · management and general $0 · fundraising $0

  • 23 · Insurance

    total $9,198 · program services $0 · management and general $9,198 · fundraising $0

  • 24a · Other expenses: Miscellaneous Expense

    total $8,271 · program services $978 · management and general $2,782 · fundraising $4,511

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $653,804 · end of year $1,460,384

  • 2 · Savings and temporary cash investments

    beginning of year $2,018,103 · end of year $2,274,246

  • 3 · Pledges and grants receivable

    beginning of year $4,158,026 · end of year $3,281,095

  • 4 · Accounts receivable

    beginning of year $66,746 · end of year $321,854

  • 5 · Loans and receivables from officers and key people

    beginning of year $0 · end of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0 · end of year $0

  • 7 · Other notes and loans receivable

    beginning of year $0 · end of year $0

  • 8 · Inventories for sale or use

    beginning of year $0 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $38,631 · end of year $55,090

  • 10a · Land, buildings and equipment: cost or other basis

    $213,045

  • 10b · Land, buildings and equipment: accumulated depreciation

    $213,045

  • 10c · Land, buildings and equipment, net

    beginning of year $12,450 · end of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $11,230,468 · end of year $9,473,428

  • 12 · Investments: other securities

    beginning of year $0 · end of year $0

  • 13 · Investments: program-related

    beginning of year $0 · end of year $0

  • 14 · Intangible assets

    beginning of year $0 · end of year $0

  • 15 · Other assets

    beginning of year $0 · end of year $0

  • 17 · Accounts payable and accrued expenses

    beginning of year $154,343 · end of year $232,951

  • 18 · Grants payable

    beginning of year $1,492,927 · end of year $3,438,245

  • 19 · Deferred revenue

    beginning of year $4,250 · end of year $5,195

  • 20 · Tax-exempt bond liabilities

    beginning of year $0 · end of year $0

  • 21 · Escrow or custodial account liability

    beginning of year $0 · end of year $0

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 23 · Secured mortgages and notes payable

    beginning of year $0 · end of year $0

  • 24 · Unsecured notes and loans payable

    beginning of year $0 · end of year $0

  • 25 · Other liabilities

    beginning of year $0 · end of year $0

  • 27 · Net assets without donor restrictions

    beginning of year $5,880,256 · end of year $6,350,103

  • 28 · Net assets with donor restrictions

    beginning of year $10,646,452 · end of year $6,839,603

Mission and programs · 2022

Mission

The mission of the American Brain Foundation is to accelerate breakthrough research across all brain diseases and optimize brain health for all. We are passionate about our mission and believe that our vision of Life Without Brain Disease can be attained. Our motto is Cure One, Cure Many. Driven by the certainty that brain diseases are interconnected, our foundation invests in research on mechanisms shared by multiple brain diseases and conditions, setting the stage for new treatments for diseases that were previously untreatable to emerge.

Activities or mission (Part I)

The mission of the American Brain Foundation is to accelerate breakthrough research on brain disease and optimize brain health for all. We are passionate about our mission and believe that our vision of Life Without Brain Disease can be attained. The foundation enjoys a close research partnership with our primary partner, the American Academy of Neurology. The Academy's Science Committee is responsible for vetting all of the research grants we make, assuring that fund the best and brightest scientists. Our motto is Cure One, Cure Many. Driven by the certainty that brain diseases are interconnected, our foundation invests in research on mechanisms shared by multiple brain diseases and conditions, setting the stage for new treatments for diseases that were previously untreatable to emerge. To assure that the discoveries generated from research investments are developed and extended into the future, identifying and funding the best researchers is a high priority.

  • GRANTS: In 2022, the American Brain Foundation funded Next Generation Research grants in Amyotrophic Lateral Sclerosis (ALS); Alzheimer's; Cognitive Aging and Age-Related Memory Loss; Epilepsy; Frontotemporal Degeneration; Lewy-Body Dementia; Multiple Sclerosis; Muscular Dystrophy; Neuromuscular Disease; Parkinson's Disease; Stroke; and Tourette Syndrome. These are two-year clinical innovative research projects that launch the research of early-career investigators. Over 80% of the nearly 300 researchers the foundation has funded have received additional research funding from the NIH and other entities to continue the research started with our grants. Also in 2022, the Amreican Brain Foundation funded a seed grant in autism to promote diversity, equity, and inclusion in autism research. Finally in 2022, the American Brain Foundation led in the development and funding of an initiative to find a biomarker for the early diagnosis of Lewy body dementia with partners the Alzheimer's Association, the Michael J. Fox Foundation, and the American Academy of Neurology. We expect this research to lead to more clarity and effective therapies for people struggling with LBD, and to increase our understanding of other neurodegenerative brain diseases, such as Alzheimer's disease and Parkinson's disease.

    Expenses $5,300,501 · Grants $5,105,575

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $248,449 · Grants $192,094

  • PUBLIC OUTREACH: The American Brain Foundation continued to invest in a large-scale public awareness campaign with the purpose of educating the public about the need for brain disease research. The multi-channel campaign provided resources and information about brain diseases and disorders, the latest brain research news, and stories from patients and caregivers. The American Brain Foundation produced free monthly webinars with neurology experts for the public on topics such as Deep Brain Stimulation, Sleep and the Brain, and Migraine Research and Treatment. The Commitment to Cures gala was a hybrid event and was attended by nearly 2,000 people and raised over $850,000. All key performance indicators for public outreach exceeded goals. Comparing 2022 to 2021, Social media followers increased 51%, website traffic increased 50%, and email subscribers increased 31%.

    Expenses $826,903

As filed on the 2022 return. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.

Listed in Part VII

  • Jane Ransom

    EXECUTIVE DIRECTOR

    Total calculated
    $355,055
    From this org
    $308,660
    From related orgs
    $0
    Other
    $46,395
    Hours/week
    41

    Schedule J breakdown matched by us

    Base
    $267,213
    Bonus
    $40,943
    Other
    $504
    Deferred
    $28,819
    Nontaxable benefits
    $17,576
    Filer's total
    $355,055
  • Emily Christian

    DEPUTY DIRECTOR

    Total calculated
    $166,399
    From this org
    $144,769
    From related orgs
    $0
    Other
    $21,630
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $127,485
    Bonus
    $16,780
    Other
    $504
    Deferred
    $13,300
    Nontaxable benefits
    $8,330
    Filer's total
    $166,399
  • David D Dodick

    CHAIR

    Total calculated
    $0
    Hours/week
    1.5
  • Ben Lenail

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    1
  • James Essey

    TREASURER

    Total calculated
    $0
    Hours/week
    1
  • Jacqueline French

    SECRETARY

    Total calculated
    $0
    Hours/week
    1
  • Orly Avitzur

    EX OFFICIO VOTING DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5
  • Robert C Griggs

    EX OFFICIO VOTING DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5
  • Merit Cudkowicz

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5
  • David Eagleman

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5
  • Dan Gasby

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5
  • James C Grotta

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5
  • Frances Jensen

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5
  • Ralph Lesile

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5
  • Ronald Petersen

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5
  • Alyx B Porter

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5
  • Sean Sansiveri

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5
  • Mary E Post

    EX OFFICIO NON-VOTING DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Independent compensation consultant
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

Schedule J, Part I, Line 3
The American Brain Foundation leases employees with American Academy of Neurology (AAN) through a contractual arrangement by which AAN's employees are leased to ABF. This arrangement included, as of 2022, the ABF's Executive Director being leased through AAN. The ABF's Board of Directors is responsible for hiring and setting the compensation for the Executive Director. The Board employs procedures (use of independent consultant, compensation survey and no involvement of persons with conflicts of interests) and last set compensation amounts in 2022.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

  • Clinical Research Training Scholarships, Scientific Awards, and Non-scientific Awards for work on diseases of the brain and nervous system. See Part IV for more details.

  • National Multiple Sclerosis Society

    $75,000

    Clinician Scientist Development Award in Multiple Sclerosis

  • Public Leadership in Neurology Award

Provenance

Return type
form_990
Tax year
2022
Filed
13 September 2023
IRS schema version
2022v5.0
Source object
202342569349300234

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