- Revenue 2025
- $7,843,535
- Expenses 2025
- $11,025,024
Program services were 81.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H96Z
- Classification
- 1000
- Street
- 2909 WAYZATA BLVD 62124
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
MICHELLE HERITAGE
EXECUTIVE DIRECTOR
- Total calculated
- $400,075
- From this org
- $365,800
- From related orgs
- $0
- Other
- $34,275
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $325,500
- Bonus
- $40,300
- Other
- $0
- Deferred
- $34,275
- Nontaxable benefits
- $0
- Filer's total
- $400,075
-
HEATHER HEART
DEPUTY DIRECTOR
- Total calculated
- $170,000
- From this org
- $170,000
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $168,000
- Bonus
- $2,000
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $170,000
-
JULIA MIGLETS-NELSON
DIRECTOR, RESEARCH PROGRAMS & PARTNERSHIPS
- Total calculated
- $143,175
- From this org
- $131,435
- From related orgs
- $0
- Other
- $11,740
- Hours/week
- 40
-
KIMBERLY HOWARD
DIRECTOR OF OPERATIONS
- Total calculated
- $128,462
- From this org
- $128,000
- From related orgs
- $0
- Other
- $462
- Hours/week
- 40
-
SEAN SANSIVERI
CHAIR
- Total calculated
- $0
- Hours/week
- 1.5
-
BEN LENAIL
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
ALYX B PORTER UMPHREY
SECRETARY
- Total calculated
- $0
- Hours/week
- 1
-
RALPH R LESLIE
TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
PHYLLIS C ZEE
EX OFFICIO VOTING DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
PAUL J CAIRNS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
MERIT CUDKOWICZ
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
DAVID W DODICK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
CHRISTINA M FRANCIS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
JACQUELINE FRENCH
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
FRANCES JENSEN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
BRUCE KAHNE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
THABELE LESLIE-MAZWI
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
MATTHEW S PICARD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
ALFREDO QUIONES-HINOJOSA
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
RICHARD RANSOHOFF
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
JOANNE L SMIKLE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $7,843,535
- Expenses
- $11,025,024
- Contributions
- $7,608,054
- Grants paid
- $8,135,005
-
2024
- Revenue
- $6,240,028
- Expenses
- $5,254,803
- Contributions
- $5,775,187
- Grants paid
- $2,384,275
-
2023
- Revenue
- $10,383,820
- Expenses
- $4,956,400
- Contributions
- $10,120,592
- Grants paid
- $2,401,988
-
2022
- Revenue
- $5,946,773
- Expenses
- $7,713,651
- Contributions
- $6,002,262
- Grants paid
- $5,297,664
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
-
AMERICAN ACADEMY OF NEUROLOGY INSITUTE
$8,076,423
2025 CLINICAL RESEARCH TRAINING SCHOLARSHIPS, SCIENTIFIC AWARDS, AND NON SCIENTIFIC AWARDS FOR WORK ON DISEASES OF THE BRAIN AND NERVOUS SYSTEM.
-
American Academy of Neurology Institute
$5,493,094
2022 Clinical Research Training Scholarships, Scientific Awards, and Non-scientific Awards for work on diseases of the brain and nervous system. See Part IV for more details.
-
AMERICAN ACADEMY OF NEUROLOGY INSITUTE
$2,384,275
2024 CLINICAL RESEARCH TRAINING SCHOLARSHIPS, SCIENTIFIC AWARDS, AND NON SCIENTIFIC AWARDS FOR WORK ON DISEASES OF THE BRAIN AND NERVOUS SYSTEM.
-
American Academy of Neurology Institute
$2,260,973
2023 Clinical Research Training Scholarships, Scientific Awards, and Non Scientific Awards for work on diseases of the brain and nervous system. See Part IV for more details.
-
2023 Clinician Scientist Development Award in Multiple Sclerosis
-
2022 Clinician Scientist Development Award in Multiple Sclerosis
-
2025 PROGRAM SUPPORT
-
$25,000
2025 PROGRAM SUPPORT
-
$16,378
2023 Funding grant for research in Alzheimer's and related neurodegenerative disorders
-
$10,000
2022 Public Leadership in Neurology Award
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
AMERICAN ACADEMY OF NEUROLOGY INSTITUTE
$1,250,000
2022 Grant
-
2022 UNRESTRICTED GENERAL SUPPORT
-
AMYOTROPHIC LATERAL SCLEROSIS ASSN
$323,000
2024 CLINICAL SCIENTIST DEVELOPMENT AWARD/CLINICAL RESEARCH TRAINING FELLOWSHIP/SHELIA ESSEY AWARD
-
GREATER HOUSTON COMMUNITY FOUNDATION
$300,000
2023 HEALTH
-
GREATER HOUSTON COMMUNITY FOUNDATION
$300,000
2024 HEALTH
-
AMYOTROPHIC LATERAL SCLEROSIS ASSN
$267,000
2023 SHELIA ESSEY AWARD; CLINICAL RESEARCH TRAINING FELLOWSHIP; CLINICAL SCIENTIST DEVELOPMENT AWARD; CRTS
-
2023 CLINICAL RESEARCH SCHOLARSHIPS
-
$200,000
2024 MEDICAL RESEARCH
-
MUSCULAR DYSTROPHY ASSOCIATION
$162,500
2022 RESEARCH
-
NATIONAL MULTIPLE SCLEROSIS SOCIETY
$150,000
2024 RESEARCH
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.