AMYOTROPHIC LATERAL SCLEROSIS ASSN

As filed

Subsection

03

NTEE code

G500

Classification

1000

Street

1300 WILSON BLVD STE 600

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Group exemption

The central organization of an IRS group exemption (group number 4119), covering 10 subordinate organizations. matched by us

The IRS lists each organization's group exemption number; we match a subordinate to its central organization by that number and the affiliation code the IRS assigns.

• ALABAMA CHAPTER

  AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION · EIN 20-2218566 · BIRMINGHAM, AL

• ARKANSAS CIO

  AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION · EIN 20-4863643 · ROGERS, AR

• INDIANA CHAPTER

  AMYOTROPHIC LATERAL SCLEROSIS · EIN 35-2029321 · INDIANAPOLIS, IN

• MID-AMERICA CHAPTER

  ALS ASSOCIATION MID AMERICA CHAPTER · EIN 48-1021611 · MISSION, KS

• MICHIGAN CHAPTER

  AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION OF MICHIGAN INC · EIN 38-2190726 · SOUTHFIELD, MI

• ALS ASSOCIATION TEXAS CHAPTER

  AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION · EIN 74-2678974 · SAINT PAUL, MN

• TENNESSEE CHAPTER

  AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION · EIN 94-3124723 · SAINT PAUL, MN

• ALS ASSOCIATION NORTHERN OHIO CHAPTER

  EIN 34-1595148 · INDEPENDENCE, OH

• EVERGREEN CHAPTER

  AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION · EIN 91-1950869 · KENT, WA

• ALS ASSOCIATION WISCONSIN CHAPTER

  AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION · EIN 39-1600965 · WAUWATOSA, WI

Mission and programs · 2024

• PATIENT AND COMMUNITY SERVICES: THE ASSOCIATION IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES.

  Expenses $34,218,725 · Grants $9,893,993

• THE ALS ASSOCIATION DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY AND ELECTED AND OTHER GOVERNMENT OFFICIALS. THE ALS ASSOCIATION'S ADVOCACY EFFORTS HELP SECURE FEDERAL AND STATE FUNDING IN SUPPORT OF ALS RESEARCH AND SUPPORT FOR PEOPLE LIVING WITH ALS. THE ADVOCACY EFFORTS INCLUDE ADVANCES IN LEGISLATION TO HELP THOSE LIVING WITH ALS NAVIGATE INSURANCE AND OTHER GOVERNMENT PROGRAMS.

  Expenses $14,717,404

• RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS).

  Expenses $7,548,065 · Grants $6,785,296

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

• 2024

  Revenue

  $68,583,051

  Expenses

  $82,239,637

  Contributions

  $65,814,797

  Grants paid

  $16,679,289

• 2023

  Revenue

  $126,450,238

  Expenses

  $98,839,577

  Contributions

  $124,090,097

  Grants paid

  $22,892,366

• 2022

  Revenue

  $55,567,608

  Expenses

  $84,199,819

  Contributions

  $53,676,289

  Grants paid

  $18,722,140

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990

  Revenue

  $39,792,803

  Expenses

  $44,852,298

  Assets (EOY)

  $98,343,083

• 2020 · 990

  Revenue

  $35,112,517

  Expenses

  $38,436,196

  Assets (EOY)

  $100,284,898

• 2019 · 990

  Revenue

  $37,031,804

  Expenses

  $41,808,503

  Assets (EOY)

  $98,033,652

• 2018 · 990

  Revenue

  $27,065,702

  Expenses

  $34,890,213

  Assets (EOY)

  $96,316,713

• 2017 · 990

  Revenue

  $24,669,735

  Expenses

  $37,818,211

  Assets (EOY)

  $99,633,005

• 2016 · 990

  Revenue

  $30,879,067

  Expenses

  $34,974,730

  Assets (EOY)

  $110,397,924

• 2015 · 990

  Revenue

  $25,645,150

  Expenses

  $35,461,862

  Assets (EOY)

  $113,419,744

• 2014 · 990

  Revenue

  $138,340,559

  Expenses

  $39,122,372

  Assets (EOY)

  $130,622,674

• 2013 · 990

  Revenue

  $24,030,687

  Expenses

  $21,164,365

  Assets (EOY)

  $24,512,086

• 2012 · 990

  Revenue

  — not reported

  Expenses

  $19,796,581

  Assets (EOY)

  $20,059,969

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

• PROJENX INC

  $750,000

  2023 · CLINICAL TRIAL AWARD

• UNIVERSITY OF MIAMI

  $652,154

  2024 · BITNER PLANTE QUARTERLY GRANT FY25

• UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC

  $600,000

  2023 · TRIAL CAPACITY PROGRAM; CLINICAL TRIAL AWARD

• UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL

  $554,508

  2022 · STRATEGIC INITIATIVE

• UNIVERSITY MEDICAL SERVICE ASSOCIATION INC

  $551,417

  2024 · BITNER PLANTE QUARTERLY GRANT FY25

• AQUILUS PHARMACEUTICALS INC

  $500,000

  2023 · CLINICAL TRIAL AWARD

• FOCUSED ULTRASOUND FOUNDATION

  $500,000

  2022 · PARTNERSHIP PROGRAM GRANT

• MASSACHUSETTS GENERAL HOSPITAL - RESEARCH

  $500,000

  2022 · STRATEGIC INITIATIVE

• TARGET ALS FOUNDATION

  $500,000

  2022 · PARTNERSHIP PROGRAM GRANT

• THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION (AFTD)

  $500,000

  2022 · PARTNERSHIP PROGRAM GRANT

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

• PAYPAL CHARITABLE GIVING FUND

  $2,121,406

  2024 · GENERAL SUPPORT

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $1,975,478

  2024 · For grant recipient's exempt purposes

• AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION

  $1,829,845

  2023 · LIQUIDATING DISTRIBUTION (SEE FORM 990, PART III, LINE 3 & SCHEDULE N)

• AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION

  $1,503,254

  2022 · RESEARCH

• NATIONAL PHILANTHROPIC TR

  $712,650

  2023 · PUBLIC, SOCIETAL BENEFIT

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $698,351

  2023 · For grant recipient's exempt purposes

• PAYPAL CHARITABLE GIVING FUND

  $575,355

  2023

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $529,361

  2022 · For grant recipient's exempt purposes

• DONOR ADVISED CHARITABLE GIVING

  $528,706

  2024 · HEALTH

• AMERICAN ONLINE GIVING FOUNDATION INC

  $485,745

  2024 · GENERAL SUPPORT

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

California fundraising campaigns

Campaigns run by paid fundraisers, commercial coventurers and thrift stores naming this organization, as California published them. Both figures are as filed, and what the first one counts depends on the campaign type — a coventurer or a thrift store files its own sales rather than money collected for the charity. The 990 reports this only as a yearly total, never per campaign.

• THE HERITAGE COMPANY INC.

  $430 raised

  2019 · Commercial Fundraiser

  $215 to charity

Amounts are as filed and do not add up: a commercial coventurer reports one promotion's whole gross once for each charity that shared in it. A campaign may also name more than one registered charity, in which case it appears on each.

Other IRS files