ALS NORTHWEST

As filed

Subsection

03

NTEE code

E86

Classification

1000

Street

825 NE MULTNOMAH ST STE 940

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

• OUTREACH AND ADVOCACYALS NORTHWEST PROVIDES ONGOING FINANCIAL SUPPORT TO SUPPORT FEDERAL AND STATE PUBLIC POLICY INITIATIVES TO IMPROVE THE LIVES OF FAMILIES LIVING WITH ALS, OUTREACH EFFORTS TO RAISE PUBLIC AWARENESS ABOUT ALS, AS WELL AS CUTTING EDGE GLOBAL RESEARCH WORKING TOWARD AN EFFECTIVE TREATMENT AND ULTIMATELY A CURE FOR ALS. THE ORGANIZATION CONTRIBUTED TO A NATIONAL EFFORT THAT FUNDED SIGNIFICANT PROJECTS TO UNDERSTAND THE CAUSE OF ALS, THE DISEASE MECHANISM, GENETICS, BIOMARKERS FOR ALS, ENVIRONMENTAL FACTORS, AND TRANSLATIONAL RESEARCH TO MOVE THERAPY IDEAS FROM THE LAB BENCH TO THERAPY. PUBLIC POLICY ACCOMPLISHMENTS DURING THE YEAR ENDED JANUARY 31, 2026, INCLUDE ADVOCACY OF PEOPLE WITH ALS TO CONNECT WITH LEGISLATORS IN WASHINGTON DC TO ADVOCATE FOR CONTINUED FUNDING FOR THE NATIONAL ALS REGISTRY, THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE, THE ACT FOR ALS ACT AND FEDERAL SUPPORT FOR ALS RESEARCH. AWARENESS EVENTS SPONSORED BY THE ORGANIZATION INCLUDE WALK ALS, SKI ALS, RIDE ALS, MAY ALS AWARENESS MONTH, ALS RESEARCH SYMPOSIUM, CREATION OF PUBLIC SERVICE ANNOUNCEMENTS, MISSION CONNECTED SOCIAL MEDIA, AND CREATION OF VIDEOS THAT ILLUSTRATE WHAT ALS IS AND HOW THE ORGANIZATIONS SERVICES CAN HELP.NOVEMBER NATIONAL FAMILY CAREGIVER MONTH ACTIVITIES SERVE AS OPPORTUNITIES TO BRING HOPE AND COMMUNITY TO PEOPLE WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER AT AWARENESS EVENTS, PEOPLE WITH ALS AND THEIR FAMILIES AS WELL AS THOSE WHO HAVE LOST A LOVED ONE TO ALS FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. THE LARGE NUMBER OF PEOPLE WHO PARTICIPATE IN THESE EFFORTS RAISE THE PROFILE OF ALS ACROSS THE REGION AND ENGAGE COMMUNITY AWARENESS OF THE SERVICES AND RESOURCES AVAILABLE FROM ALS NORTHWEST. RESEARCH IS A CRITICAL PART OF THE ORGANIZATIONS MISSION.AS PART OF THE EFFORT TO INCREASE THE KNOWLEDGE OF ALS AND THOSE AFFECTED, THE ORGANIZATION PROMOTES ALS EVENTS THAT PROMOTE THE NATIONAL ALS REGISTRY. THIS EFFORT IS VITAL TO UNDERSTAND THE FULL INCIDENCE AND PREVALENCE OF ALS ACROSS OREGON AND SOUTHWEST WASHINGTON SO THAT WE CAN IDENTIFY AND STRATEGICALLY PLAN TO SERVE AS MANY FAMILIES LIVING WITH ALS IN THE NORTHWEST.

  Expenses $847,879 · Grants $247,937

• INDEPENDENCE PROGRAMSTO SUPPORT AND EMPOWER PEOPLE LIVING WITH ALS TO LIVE INDEPENDENTLY AND AS FULLY AS POSSIBLE, THE ORGANIZATION PROVIDES SERVICES THAT HELP PEOPLE WITH EQUIPMENT AND TOOLS TO ASSIST IN THEIR DAILY LIVES. THE MEDICAL EQUIPMENT LOAN PROGRAM PROVIDES EQUIPMENT SUCH AS MANUAL WHEELCHAIRS, POWER WHEELCHAIRS, BATHROOM EQUIPMENT AND PATIENT LIFTS TO FAMILIES FOR SHORT AND LONG-TERM LOAN. PARTNERING WITH MEDICAL EQUIPMENT COMPANIES ACROSS THE CHAPTER, THE ORGANIZATION FULFILLED 429 MEDICAL EQUIPMENT LOAN REQUESTS DURING THE YEAR ENDED JANUARY 31, 2026.THE ORGANIZATION ALSO HAS A UNIQUE PROGRAM TO ASSIST FAMILIES LIVING WITH ALS IN ACCESSING AUGMENTATIVE AND ALTERNATIVE COMMUNICATION (AAC) EQUIPMENT AS WELL AS ADAPTIVE TECHNOLOGY FOR COMPUTER ACCESS AND ENVIRONMENTAL CONTROLS FOR PEOPLE WITH ALS. THIS PROGRAM PROVIDED SUPPORT, TRAINING, ASSISTIVE AND COMMUNICATION EQUIPMENT LOANS, TECHNICAL ASSISTANCE, AND HOME-BASED SUPPORT TO 75 FAMILIES DURING THE YEAR ENDED JANUARY 31, 2026.THE ORGANIZATIONS FINANCIAL ASSISTANCE PROGRAM IS DESIGNED TO PROVIDE HELP WITH THE HIGH COSTS OF CARE FOR FAMILIES LIVING WITH ALS. OVER $128,990 IN GRANTS WERE MADE TO 190 FAMILIES FOR WELL-BEING AND FAMILY SUPPORT, COMMUNICATION SUPPORT, TRANSPORTATION ASSISTANCE, HOME MODIFICATIONS, AND MEDICAL EXPENSES.

  Expenses $565,259 · Grants $120,542

• EDUCATION AND SUPPORT PROGRAMSSTRATEGICALLY BASED IN AND NEAR PATIENTS HOME COMMUNITIES, CARE SERVICES COORDINATORS WORK DIRECTLY WITH PEOPLE WITH ALS AND THEIR FAMILIES TO HELP THEM NAVIGATE MANAGEMENT OF ALS AS WELL AS ACCESS COMMUNITY RESOURCES. DURING THE YEAR ENDED JANUARY 31, 2026, CARE SERVICE COORDINATORS MADE 300 HOME VISITS. IN THESE VISITS, COORDINATORS ARE OFTEN THE CRUCIAL SUPPORT PEOPLE NEED WITH GUIDANCE ON FINANCE, EMPLOYMENT ISSUES, INSURANCE QUESTIONS, SOCIAL SECURITY DISABILITY, MEDICARE, MEDICAID, AND LONG-TERM ARE QUESTIONS. COORDINATORS FACILITATED 182 ALS SUPPORT GROUPS IN PERSON AND ONLINE. CARE SERVICES STAFF ALSO PROVIDED PROFESSIONAL EDUCATION FOR COMMUNITY PARTNERS SUCH AS HOSPICE, HOME HEALTH AND HOME CARE AGENCIES TO INCREASE THEIR KNOWLEDGE OF ALS.

  Expenses $371,499

• CAREGIVER SUPPORT PROGRAMSTHE CAREGIVER SUPPORT PROGRAM PROVIDES NEEDED EMOTIONAL SUPPORT AND PRACTICAL GUIDANCE AND INFORMATION SUPPORT FOR FAMILY AND OTHER CAREGIVERS OF PEOPLE LIVING WITH ALS. WITH SUPPORT GROUPS AND ONE-ON-ONE CAREGIVER CONSULTATIONS THE ORGANIZATION SUPPORTED 590 FAMILIES DURING THE YEAR ENDED JANUARY 31, 2026.THE FAMILY SUPPORT PROGRAM OFFERS INFORMATION AND LIVE SUPPORT EVENTS FOR FAMILIES LIVING WITH ALS WHO HAVE CHILDREN OR GRANDCHILDREN. OUR FAMILY FUN WEEK PROVIDED EDUCATION AND RECREATION TO MULTIPLE FAMILIES ACROSS OREGON AND SOUTHWEST WASHINGTON. WE PARTNERED WITH THE PROVIDENCE ALS CENTER TO SPONSOR CAREGIVER 101 TRAININGS WHERE FAMILY CAREGIVERS LEARNED PRACTICAL SKILLS FOR CARING FOR THEIR LOVED ONE WITH ALS.THE BEREAVEMENT PROGRAM PROVIDED SUPPORT FOR 500 FAMILIES WHO HAD LOST A LOVED ONE WITH ALS IN THE LAST YEAR WITH MAIL, TELEPHONE, AND EDUCATIONAL OUTREACH COMMUNICATIONS TO ASSIST FAMILY MEMBERS MOVING THROUGH THE GRIEVING PROCESS.

  Expenses $324,336

• ALS CLINICS AND CERTIFIED CENTER SUPPORTTO SUPPORT THE HIGHEST QUALITY HEALTHCARE FOR PEOPLE WITH ALS, THE ORGANIZATION PARTNERS WITH AND SUPPORTS COMMUNITY HEALTHCARE PROVIDERS IN OFFERING ALS SPECIALTY MULTIDISCIPLINARY CLINICS. THESE ONE-STOP SHOPS ARE EVIDENCE-BASED MODELS THAT PROMOTE COORDINATED CARE FOR PEOPLE WITH ALS AT THE PROVIDENCE ALS CENTER, THE VA PORTLAND HEALTH SYSTEM ALS CENTER, THE OHSU ALS CENTER, KAISER SUNNYSIDE MEDICAL CENTER IN CLACKAMAS, AND ST. CHARLES MEDICAL CENTER IN BEND.THE ORGANIZATION HAS ASSISTED WITH STAFFING, SUPPLIES, AND PROFESSIONAL EDUCATION FOR CLINIC PROVIDERS. DURING THE YEAR ENDED JANUARY 31, 2026, THE ORGANIZATION SUPPORTED OVER 652 CLINIC APPOINTMENTS FOR FAMILIES WITH ALS. IN ADDITION, THE ORGANIZATION PROVIDED FUNDING FOR SPECIAL PROJECTS THAT FUNDED COUNSELING SERVICES AND PROVIDED ONGOING COLLABORATION WITH THE PROVIDENCE ALS CENTER AND THE CAREGIVING 101 PROGRAM. ADDITIONAL FUNDS WERE SHARED TO THE ALS CENTER AT OHSU TO SUPPORT NURSING STAFFING.

  Expenses $253,669

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

• 2025

  Revenue

  $2,781,584

  Expenses

  $3,012,212

  Contributions

  $2,856,912

  Grants paid

  $368,479

• 2024

  Revenue

  $2,724,273

  Expenses

  $3,051,371

  Contributions

  $2,784,849

  Grants paid

  $322,165

• 2023

  Revenue

  $2,382,801

  Expenses

  $2,925,550

  Contributions

  $2,222,425

  Grants paid

  $133,000

• 2022

  Revenue

  $3,729,208

  Expenses

  $3,120,040

  Contributions

  $3,816,969

  Grants paid

  $83,000

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990

  Revenue

  $4,368,601

  Expenses

  $2,957,335

  Assets (EOY)

  $3,939,845

• 2020 · 990

  Revenue

  $2,541,270

  Expenses

  $2,035,185

  Assets (EOY)

  $2,610,290

• 2019 · 990

  Revenue

  $2,259,238

  Expenses

  $2,128,242

  Assets (EOY)

  $2,009,997

• 2018 · 990

  Revenue

  $1,936,812

  Expenses

  $1,868,748

  Assets (EOY)

  $1,799,233

• 2017 · 990

  Revenue

  $1,683,746

  Expenses

  $1,710,592

  Assets (EOY)

  $1,734,906

• 2016 · 990

  Revenue

  $1,689,321

  Expenses

  $1,835,047

  Assets (EOY)

  $1,776,864

• 2015 · 990

  Revenue

  $1,578,454

  Expenses

  $1,765,658

  Assets (EOY)

  $1,953,639

• 2014 · 990

  Revenue

  $2,330,532

  Expenses

  $1,712,814

  Assets (EOY)

  $2,077,108

• 2013 · 990

  Revenue

  $1,477,554

  Expenses

  $1,328,516

  Assets (EOY)

  $1,501,105

• 2012 · 990

  Revenue

  — not reported

  Expenses

  $1,143,452

  Assets (EOY)

  $1,290,069

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

• ALS NETWORK

  $150,000

  2024 · RESEARCH

• ALS NETWORK

  $150,000

  2025 · RESEARCH

• ALS UNITED

  $72,937

  2025 · RESEARCH

• THE ALS ASSOCIATION

  $50,000

  2022 · RESEARCH

• OHSU

  $30,000

  2024 · RESEARCH

• PROVIDENCE ST VINCENT

  $18,000

  2022 · ALS CLINIC SUPPORT

• PROVIDENCE ST VINCENT

  $18,000

  2024 · BRAIN/SPINE INSTITUTE

• PROVIDENCE ST VINCENT

  $18,000

  2025 · RESEARCH

• OHSU

  $15,000

  2022 · ALS CLINIC SUPPORT

• OHSU

  $0

  2023 · ALS CLINIC SUPPORT

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $1,028,250

  2022 · For grant recipient's exempt purposes

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $130,999

  2023 · For grant recipient's exempt purposes

• OREGON COMMUNITY FOUNDATION

  $107,500

  2023 · Physical Health

• PROVIDENCE HEALTH & SERVICES OREGON

  $65,000

  2024 · OPERATIONAL SUPPORT

• DONOR ADVISED CHARITABLE GIVING

  $53,531

  2024 · HEALTH

• DONOR ADVISED CHARITABLE GIVING

  $50,160

  2023 · HEALTH

• AMERICAN ONLINE GIVING FOUNDATION INC

  $44,697

  2024 · GENERAL SUPPORT

• AMERICAN ONLINE GIVING FOUNDATION INC

  $37,169

  2022 · GENERAL SUPPORT

• OCF JOSEPH E WESTON PUBLIC FOUNDATION

  $34,000

  2024 · Physical Health

• OCF JOSEPH E WESTON PUBLIC FOUNDATION

  $32,800

  2023 · Physical Health

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Other IRS files