Totals
- Total revenue
- $3,729,208
- Total expenses
- $3,120,040
- Contributions and grants received
- $3,816,969
- Grants paid
- $83,000
- Program service revenue
- $0
- Investment income
- $63,602
- Other revenue
- -$151,363
- Total assets, end of year
- $4,982,342
- Total liabilities, end of year
- $930,566
- Net assets or fund balances, end of year
- $4,051,776
- Program services expenses (Part IX)
- $2,290,264
- Management and general expenses
- $508,634
- Fundraising expenses
- $321,142
- Program service expenses (Part III)
- $2,290,264
Program services were 73.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$359,084
-
1e · Government grants (contributions)
$169,910
-
1f · All other contributions, gifts and grants
$3,287,975
-
3 · Investment income
total $59,625 · excluded $59,625
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7a · Gross sales of assets other than inventory
securities $5,740
-
7b · Less cost or other basis and sales expenses
securities $1,763
-
7c · Gain or loss
securities $3,977
-
7d · Net gain or loss
total $3,977 · excluded $3,977
-
8a · Fundraising events: contributions included on line 1c
$359,084
-
8b · Fundraising events: direct expenses
$151,363
-
8c · Net income from fundraising events
total -$151,363 · excluded -$151,363
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $83,000 · program services $83,000
-
2 · Grants to domestic individuals
total $0
-
3 · Grants to foreign organizations and individuals
total $0
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $186,936 · program services $157,120 · management and general $14,511 · fundraising $15,305
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $908,268 · program services $763,524 · management and general $70,149 · fundraising $74,595
-
8 · Pension plan contributions
total $43,070 · program services $36,151 · management and general $3,485 · fundraising $3,434
-
9 · Other employee benefits
total $111,682 · program services $93,741 · management and general $9,036 · fundraising $8,905
-
10 · Payroll taxes
total $96,737 · program services $82,748 · management and general $6,551 · fundraising $7,438
-
11a · Fees: management
total $0
-
11b · Fees: legal
total $0
-
11c · Fees: accounting
total $0
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $0
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $375,460 · program services $17,771 · management and general $321,974 · fundraising $35,715
-
12 · Advertising and promotion
total $45,647 · program services $41,584 · management and general $3,788 · fundraising $275
-
13 · Office expenses
total $140,503 · program services $94,086 · management and general $11,039 · fundraising $35,378
-
14 · Information technology
total $0
-
15 · Royalties
total $0
-
16 · Occupancy
total $124,761 · program services $104,957 · management and general $13,068 · fundraising $6,736
-
17 · Travel
total $78,049 · program services $36,648 · fundraising $41,401
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $47,542 · program services $15,575 · fundraising $31,967
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $503,407 · program services $503,407
-
22 · Depreciation, depletion and amortization
total $7,314 · management and general $7,314
-
23 · Insurance
total $6,922 · program services $5,956 · management and general $644 · fundraising $322
-
24a · Other expenses: CHAPTER GRANTS
total $173,212 · program services $173,212
-
24b · Other expenses: Printing and Publications
total $57,490 · program services $28,672 · management and general $1,784 · fundraising $27,034
-
24c · Other expenses: SUPPLIES AND RESOURCE MATERIAL
total $36,002 · program services $4,369 · management and general $5,658 · fundraising $25,975
-
24d · Other expenses: VOLUNTEER EXPENSES
total $28,094 · program services $27,781 · management and general $313
-
24e · All other expenses
total $65,944 · program services $19,962 · management and general $39,320 · fundraising $6,662
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $201,378 · end of year $1,116,181
-
2 · Savings and temporary cash investments
beginning of year $830,686 · end of year $253,639
-
3 · Pledges and grants receivable
end of year $40,000
-
4 · Accounts receivable
end of year $0
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
beginning of year $13,809 · end of year $24,820
-
10a · Land, buildings and equipment: cost or other basis
$38,521
-
10b · Land, buildings and equipment: accumulated depreciation
$27,377
-
10c · Land, buildings and equipment, net
beginning of year $18,458 · end of year $11,144
-
11 · Investments: publicly traded securities
beginning of year $2,494,758 · end of year $2,918,804
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
end of year $617,754
-
15 · Other assets
beginning of year $380,756 · end of year $0
-
17 · Accounts payable and accrued expenses
beginning of year $25,167 · end of year $258,197
-
19 · Deferred revenue
beginning of year $252,243 · end of year $45,209
-
25 · Other liabilities
end of year $627,160
-
27 · Net assets without donor restrictions
beginning of year $3,662,435 · end of year $3,986,776
-
28 · Net assets with donor restrictions
end of year $65,000
Mission and programs · 2022
Mission
LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH ALS (LOU GEHRIGS DISEASE) AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
-
OUTREACH AND ADVOCACYAS A CHAPTER OF THE NATIONAL ALS ASSOCIATION, THE OREGON AND SOUTHWEST WASHINGTON CHAPTER PROVIDES ONGOING FINANCIAL SUPPORT FOR THE NATIONAL ALS ASSOCIATION TO SUPPORT FEDERAL PUBLIC POLICY INITIATIVES TO IMPROVE THE LIVES OF FAMILIES LIVING WITH ALS, OUTREACH EFFORTS TO RAISE PUBLIC AWARENESS ABOUT ALS, AS WELL AS CUTTING EDGE GLOBAL RESEARCH WORKING TOWARD AN EFFECTIVE TREATMENT AND ULTIMATELY A CURE FOR ALS. THE ORGANIZATION CONTRIBUTED TO A NATIONAL EFFORT THAT FUNDED SIGNIFICANT PROJECTS TO UNDERSTAND THE CAUSE OF ALS, THE DISEASE MECHANISM, GENETICS, BIOMARKERS FOR ALS, ENVIRONMENTAL FACTORS, AND TRANSLATIONAL RESEARCH TO MOVE THERAPY IDEAS FROM THE LAB BENCH TO THERAPY. RESEARCH SUPPORT WENT TO OVER 150 RESEARCH GRANTS AROUND THE GLOBE. PUBLIC POLICY ACCOMPLISHMENTS DURING THE YEAR ENDED JANUARY 31, 2023 INCLUDE ONLINE ADVOCACY OF PEOPLE WITH ALS TO CONNECT WITH LEGISLATORS IN WASHINGTON DC TO ADVOCATE FOR THE NATIONAL ALS REGISTRY, THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE, PASSING ACT FOR ALS ACT AND PROMOTING FEDERAL SUPPORT FOR ALS RESEARCH. THE ORGANIZATION PROVIDED OVER $500,000 TO SUPPORT THESE NATIONAL PUBLIC POLICY AND RESEARCH EFFORTS.AWARENESS EVENTS SPONSORED BY THE ORGANIZATION INCLUDE THE WALK TO DEFEAT ALS, SKI TO DEFEAT ALS, RIDE TO DEFEAT ALS, MAY ALS AWARENESS MONTH, CREATION OF PUBLIC SERVICE ANNOUNCEMENTS, MISSION CONNECTED SOCIAL MEDIA, AND CREATION OF VIDEOS THAT ILLUSTRATE WHAT ALS IS AND HOW CHAPTER SERVICES CAN HELP. NOVEMBER NATIONAL FAMILY CAREGIVER MONTH ACTIVITIES SERVE AS OPPORTUNITIES TO BRING HOPE AND COMMUNITY TO PEOPLE WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER AT AWARENESS EVENTS, PEOPLE WITH ALS AND THEIR FAMILIES AS WELL AS THOSE WHO HAVE LOST A LOVED ONE TO ALS FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. THE LARGE NUMBER OF PEOPLE WHO PARTICIPATE IN THESE EFFORTS RAISE THE PROFILE OF ALS ACROSS THE CHAPTER AND ENGAGE COMMUNITY AWARENESS OF THE SERVICES AND RESOURCES AVAILABLE FROM THE OREGON AND SOUTHWEST WASHINGTON CHAPTER. RESEARCH IS A CRITICAL PART OF THE CHAPTER MISSION. AS PART OF THE EFFORT TO INCREASE THE KNOWLEDGE OF ALS AND THOSE AFFECTED, THE ORGANIZATION PROMOTES DEFEAT ALS EVENTS THAT PROMOTE THE NATIONAL ALS REGISTRY. THIS EFFORT IS VITAL TO UNDERSTAND THE FULL INCIDENCE AND PREVALENCE OF ALS ACROSS OREGON AND SOUTHWEST WASHINGTON SO THAT WE CAN IDENTIFY AND STRATEGICALLY PLAN TO SERVE AS MANY FAMILIES LIVING WITH ALS IN OUR CHAPTER TERRITORY AS POSSIBLE.
Expenses $1,127,643 · Grants $50,000
-
INDEPENDENCE PROGRAMSTO SUPPORT AND EMPOWER PEOPLE LIVING WITH ALS TO LIVE INDEPENDENTLY AND AS FULLY AS POSSIBLE, THE ORGANIZATION PROVIDES SERVICES THAT HELP PEOPLE WITH EQUIPMENT AND TOOLS TO ASSIST IN THEIR DAILY LIVES. THE MEDICAL EQUIPMENT LOAN PROGRAM PROVIDES EQUIPMENT SUCH AS MANUAL WHEELCHAIRS, POWER WHEELCHAIRS, BATHROOM EQUIPMENT AND PATIENT LIFTS TO FAMILIES FOR SHORT AND LONG-TERM LOAN. PARTNERING WITH MEDICAL EQUIPMENT COMPANIES ACROSS THE CHAPTER, THE ORGANIZATION FULFILLED 250 MEDICAL EQUIPMENT LOAN REQUESTS DURING THE YEAR ENDED JANUARY 31, 2023. THE ORGANIZATION ALSO HAS A UNIQUE PROGRAM TO ASSIST FAMILIES LIVING WITH ALS IN ACCESSING AUGMENTATIVE AND ALTERNATIVE COMMUNICATION (AAC) EQUIPMENT AS WELL AS ADAPTIVE TECHNOLOGY FOR COMPUTER ACCESS AND ENVIRONMENTAL CONTROLS FOR PEOPLE WITH ALS. THIS PROGRAM PROVIDED SUPPORT, TRAINING, ASSISTIVE AND COMMUNICATION EQUIPMENT LOANS, TECHNICAL ASSISTANCE, AND HOME-BASED SUPPORT TO 186 FAMILIES DURING THE YEAR ENDED JANUARY 31, 2023. THE CHAPTER GRANT PROGRAM IS DESIGNED TO PROVIDE FINANCIAL ASSISTANCE FOR FAMILIES LIVING WITH ALS. OVER $169,000 IN GRANTS WERE MADE TO 414 FAMILIES FOR WELL-BEING AND FAMILY SUPPORT, COMMUNICATION SUPPORT, TRANSPORTATION ASSISTANCE, HOME MODIFICATIONS, AND MEDICAL EXPENSES.THE ORGANIZATIONS MISSION IS ALSO CARRIED ON THROUGH SERVICES PROVIDED BY THE NATIONAL ALS ASSOCIATION (NATIONAL). THE ALS CHAPTERS HAVE A REVENUE SHARING AGREEMENT WITH NATIONAL WHEREBY APPROXIMATELY 13.6% OF REVENUES NET OF CREDIT FOR SUPPORTING ALS RESEARCH AND PUBLIC POLICY ACTIVITIES ARE PAID TO THE NATIONAL ORGANIZATION.
Expenses $379,653
-
EDUCATION AND SUPPORT PROGRAMSSTRATEGICALLY BASED IN AND NEAR PATIENTS HOME COMMUNITIES, CARE SERVICES COORDINATORS WORK DIRECTLY WITH PEOPLE WITH ALS AND THEIR FAMILIES TO HELP THEM NAVIGATE MANAGEMENT OF ALS AS WELL AS ACCESS COMMUNITY RESOURCES. DURING THE YEAR ENDED JANUARY 31, 2023, CARE SERVICE COORDINATORS MADE 356 HOME VISITS. IN THESE VISITS, COORDINATORS ARE OFTEN THE CRUCIAL SUPPORT PEOPLE NEED WITH GUIDANCE ON FINANCE, EMPLOYMENT ISSUES, INSURANCE QUESTIONS, SOCIAL SECURITY DISABILITY, MEDICARE, MEDICAID, AND LONG-TERM CARE QUESTIONS. COORDINATORS FACILITATED 188 ALS SUPPORT GROUPS IN PERSON AND ONLINE. CARE SERVICES STAFF ALSO PROVIDED PROFESSIONAL EDUCATION FOR COMMUNITY PARTNERS SUCH AS HOSPICE, HOME HEALTH AND HOME CARE AGENCIES TO INCREASE THEIR KNOWLEDGE OF ALS.
Expenses $315,259
As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Lance ChristianLANCE CHRISTIAN
Executive Dir.
- Total calculated
- $186,286
- From this org
- $166,346
- From related orgs
- $0
- Other
- $19,940
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $156,346
- Bonus
- $10,000
- Other
- not reported
- Deferred
- $9,981
- Nontaxable benefits
- $9,959
- Filer's total
- $186,286
-
Amy FrazeyAMY FRAZEY
President
- Total calculated
- $0
- Hours/week
- 2
-
Jason DruckerJASON DRUCKER
Vice President
- Total calculated
- $0
- Hours/week
- 2
-
Katherine HartKATHERINE HART
Treasurer
- Total calculated
- $0
- Hours/week
- 2
-
Kevin WrightKEVIN WRIGHT
Secretary
- Total calculated
- $0
- Hours/week
- 2
-
Tom HoltTOM HOLT
PAST PRES
- Total calculated
- $0
- Hours/week
- 2
-
Kenneth FinkKENNETH FINK
Director
- Total calculated
- $0
- Hours/week
- 2
-
Kim GoslinKIM GOSLIN
Director
- Total calculated
- $0
- Hours/week
- 2
-
Arturo GonzalezARTURO GONZALEZ
Director
- Total calculated
- $0
- Hours/week
- 2
-
Joe GrossJOE GROSS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Diana HendricksonDIANA HENDRICKSON
Director
- Total calculated
- $0
- Hours/week
- 2
-
James LobdellJAMES LOBDELL
Director
- Total calculated
- $0
- Hours/week
- 2
-
Doug McClureDOUG MCCLURE
Director
- Total calculated
- $0
- Hours/week
- 2
-
Ian McHoneIAN MCHONE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Alan TeoALAN TEO
Director
- Total calculated
- $0
- Hours/week
- 2
-
Mark TurnbullMARK TURNBULL
Director
- Total calculated
- $0
- Hours/week
- 2
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 3 · Approval by the board or compensation committee
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
-
$50,000
RESEARCH
-
$18,000
ALS CLINIC SUPPORT
-
OHSU
$15,000
ALS CLINIC SUPPORT
Related organizations on this return
Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.
-
ALS ASSOCIATION NATIONAL OFFICE
501(C)3 · ALS RESEARCH AND TREATMENT · DC
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 17 July 2023
- IRS schema version
- 2022v5.0
- Source object
- 202341989349301599
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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