- Revenue 2025
- $765,075
- Expenses 2025
- $539,269
Program services were 81.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- E60
- Classification
- 1000
- Street
- 9450 SW GEMINI DR PMB 49685
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2025
Mission
ALS United, Inc. is organized and operated exclusively for charitable, education, literary, and scientific purposes within the meaning of section 501c3 of the Internal Revenue Code, specifically to support those living with amyotrophic lateral sclerosis (ALS). The organization is funded primarily through member dues from 15 independent ALS organizations across the United States, each dedicated to serving their local ALS communities. These member organizations collaborate through ALS United to strengthen their collective impact.
Activities or mission (Part I)
ALS United, Inc operates to support those living with ALS by supporting its members. It is funded primarily through its member dues from 15 independent ALS organizations across the US.
-
ALS United, Inc. carries out its exempt purpose by serving as a collaborative organization for independent ALS service providers. Our activities include: 1. Providing coordination and shared services that benefit organizations serving the ALS community, 2. Carrying on activities and programs that strengthen local ALS support services, 3. Coordinating certain research activities with our members, and 4. Supporting the collective mission of helping those affected by ALS. The organization works with 15 independent charitable organizations, all qualified under section 501(c)(3), who pay membership dues to support this collaborative mission. Through this structure, ALS United helps strengthen and enhance the delivery of services to those affected by ALS across multiple regions.
Expenses $438,260 · Revenue $749,609
As filed on the 2025 return.
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Jerry Dawson
President and CEO
- Total calculated
- $279,254
- From this org
- $243,860
- From related orgs
- $0
- Other
- $35,394
- Hours/week
- 50
Schedule J breakdown matched by us
- Base
- $243,860
- Bonus
- not reported
- Other
- not reported
- Deferred
- not reported
- Nontaxable benefits
- $35,394
- Filer's total
- $279,254
-
Jim Mortensen
Board Chairperson
- Total calculated
- $0
- Hours/week
- 4
-
Tom Holt
Board Vice Chairperson
- Total calculated
- $0
- Hours/week
- 2
-
Dale Miller
Board Secretary
- Total calculated
- $0
- Hours/week
- 1
-
Marty Skolnick
Board Treasurer
- Total calculated
- $0
- Hours/week
- 1
-
Bill Nordmark
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Toby Kucharski
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Kathleen Boyce
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Nancy Miringoff
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Sheri Strahl
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Don Polednak
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Mark Stach
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Mark Hershey
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Ken McGunagle
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Ed Chavez
Former Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Sean Keating
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Jayne Leighton
Board Member
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $765,075
- Expenses
- $539,269
- Contributions
- $15,466
- Grants paid
- $0
-
2023
- Revenue
- $100,000
- Expenses
- $93
- Contributions
- $25,000
- Grants paid
- not reported
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
$72,937
2025 RESEARCH
-
$26,000
2025 RESEARCH SUPPORT
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility SO.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.