Totals
- Total revenue
- $765,075
- Total expenses
- $539,269
- Contributions and grants received
- $15,466
- Grants paid
- $0
- Program service revenue
- $749,609
- Investment income
- $0
- Other revenue
- $0
- Total assets, end of year
- $451,196
- Total liabilities, end of year
- $171,724
- Net assets or fund balances, end of year
- $279,472
- Program services expenses (Part IX)
- $438,260
- Management and general expenses
- $82,994
- Fundraising expenses
- $18,015
- Program service expenses (Part III)
- $438,260
Program services were 81.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$15,466
-
2a · Program service revenue: Member Dues
total $749,609 · related or exempt $749,609
-
6c · Rental income or loss
real property $0 · personal property $0
-
6d · Net rental income or loss
total $0
-
7c · Gain or loss
securities $0 · other assets $0
-
7d · Net gain or loss
total $0
-
8c · Net income from fundraising events
total $0
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
5 · Compensation of officers, directors and key employees
total $323,691 · program services $258,953 · management and general $48,554 · fundraising $16,184
-
10 · Payroll taxes
total $18,036 · program services $14,429 · management and general $2,705 · fundraising $902
-
11a · Fees: management
total $2,589 · program services $2,071 · management and general $389 · fundraising $129
-
11b · Fees: legal
total $10,342 · management and general $10,342
-
11c · Fees: accounting
total $6,475 · management and general $6,475
-
12 · Advertising and promotion
total $16,591 · program services $16,591
-
13 · Office expenses
total $1,361 · program services $149 · management and general $1,203 · fundraising $9
-
14 · Information technology
total $30,389 · program services $23,543 · management and general $6,693 · fundraising $153
-
17 · Travel
total $11,858 · program services $11,858
-
19 · Conferences, conventions and meetings
total $28,509 · program services $28,509
-
22 · Depreciation, depletion and amortization
total $0
-
23 · Insurance
total $4,721 · management and general $4,721
-
24a · Other expenses: Educational Materials Project
total $32,500 · program services $32,500
-
24b · Other expenses: Advocacy Services
total $30,000 · program services $30,000
-
24c · Other expenses: Legacy.com Campaign
total $12,746 · program services $10,196 · management and general $1,912 · fundraising $638
-
24d · Other expenses: Group Memberships
total $9,461 · program services $9,461
-
24e · All other expenses
total $0 · program services $0 · management and general $0 · fundraising $0
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $68,190 · end of year $328,861
-
4 · Accounts receivable
end of year $122,335
-
10a · Land, buildings and equipment: cost or other basis
$0
-
10b · Land, buildings and equipment: accumulated depreciation
$0
-
10c · Land, buildings and equipment, net
beginning of year $0 · end of year $0
-
17 · Accounts payable and accrued expenses
end of year $15,000
-
25 · Other liabilities
beginning of year $11,454 · end of year $156,724
-
27 · Net assets without donor restrictions
beginning of year $56,736 · end of year $279,472
Mission and programs · 2025
Mission
ALS United, Inc. is organized and operated exclusively for charitable, education, literary, and scientific purposes within the meaning of section 501c3 of the Internal Revenue Code, specifically to support those living with amyotrophic lateral sclerosis (ALS). The organization is funded primarily through member dues from 15 independent ALS organizations across the United States, each dedicated to serving their local ALS communities. These member organizations collaborate through ALS United to strengthen their collective impact.
Activities or mission (Part I)
ALS United, Inc operates to support those living with ALS by supporting its members. It is funded primarily through its member dues from 15 independent ALS organizations across the US.
-
ALS United, Inc. carries out its exempt purpose by serving as a collaborative organization for independent ALS service providers. Our activities include: 1. Providing coordination and shared services that benefit organizations serving the ALS community, 2. Carrying on activities and programs that strengthen local ALS support services, 3. Coordinating certain research activities with our members, and 4. Supporting the collective mission of helping those affected by ALS. The organization works with 15 independent charitable organizations, all qualified under section 501(c)(3), who pay membership dues to support this collaborative mission. Through this structure, ALS United helps strengthen and enhance the delivery of services to those affected by ALS across multiple regions.
Expenses $438,260 · Revenue $749,609
As filed on the 2025 return.
Listed in Part VII
-
Jerry Dawson
President and CEO
- Total calculated
- $279,254
- From this org
- $243,860
- From related orgs
- $0
- Other
- $35,394
- Hours/week
- 50
Schedule J breakdown matched by us
- Base
- $243,860
- Bonus
- not reported
- Other
- not reported
- Deferred
- not reported
- Nontaxable benefits
- $35,394
- Filer's total
- $279,254
-
Jim Mortensen
Board Chairperson
- Total calculated
- $0
- Hours/week
- 4
-
Tom Holt
Board Vice Chairperson
- Total calculated
- $0
- Hours/week
- 2
-
Dale Miller
Board Secretary
- Total calculated
- $0
- Hours/week
- 1
-
Marty Skolnick
Board Treasurer
- Total calculated
- $0
- Hours/week
- 1
-
Bill Nordmark
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Toby Kucharski
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Kathleen Boyce
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Nancy Miringoff
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Sheri Strahl
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Don Polednak
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Mark Stach
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Mark Hershey
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Ken McGunagle
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Ed Chavez
Former Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Sean Keating
Board Member
- Total calculated
- $0
- Hours/week
- 1
-
Jayne Leighton
Board Member
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 2 · Substantiation required before reimbursing expenses
- 3 · Form 990 of other organizations
- 3 · Written employment contract
- 3 · Approval by the board or compensation committee
Answered no
- 1b · Written policy on the line-1a expenses
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
- 9 · Followed the rebuttable-presumption procedure
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2025
- Filed
- 20 April 2026
- IRS schema version
- 2025v4.1
- Source object
- 202632439349301313
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