Totals
- Total revenue
- $179,333
- Total expenses
- $307,982
- Contributions and grants received
- $100,270
- Grants paid
- $151,037
- Program service revenue
- $0
- Investment income
- $30,367
- Other revenue
- $48,696
- Total assets, end of year
- $869,371
- Total liabilities, end of year
- $68,531
- Net assets or fund balances, end of year
- $800,840
- Program services expenses (Part IX)
- $221,488
- Management and general expenses
- $19,757
- Fundraising expenses
- $66,737
- Program service expenses (Part III)
- $221,488
Program services were 71.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1a · Federated campaigns
$0
-
1b · Membership dues
$0
-
1c · Fundraising events
$0
-
1d · Related organizations
$0
-
1e · Government grants (contributions)
$0
-
1f · All other contributions, gifts and grants
$100,270
-
1g · Noncash contributions included above
$0
-
3 · Investment income
total $30,367 · related or exempt $30,367 · unrelated business $0 · excluded $0
-
4 · Income from investment of tax-exempt bond proceeds
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
5 · Royalties
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
6c · Rental income or loss
real property $0 · personal property $0
-
7c · Gain or loss
securities $0 · other assets $0
-
8a · Fundraising events: gross income
$85,701
-
8a · Fundraising events: contributions included on line 1c
$0
-
8b · Fundraising events: direct expenses
$37,005
-
8c · Net income from fundraising events
total $48,696 · unrelated business $0 · excluded $48,696
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $151,037 · program services $151,037
-
2 · Grants to domestic individuals
total $0 · program services $0
-
3 · Grants to foreign organizations and individuals
total $0 · program services $0
-
4 · Benefits paid to or for members
total $0 · program services $0
-
5 · Compensation of officers, directors and key employees
total $62,500 · program services $41,667 · management and general $10,417 · fundraising $10,416
-
6 · Compensation of disqualified persons
total $0 · program services $0 · management and general $0 · fundraising $0
-
7 · Other salaries and wages
total $0 · program services $0 · management and general $0 · fundraising $0
-
8 · Pension plan contributions
total $0 · program services $0 · management and general $0 · fundraising $0
-
9 · Other employee benefits
total $0 · program services $0 · management and general $0 · fundraising $0
-
10 · Payroll taxes
total $5,038 · program services $3,359 · management and general $840 · fundraising $839
-
11a · Fees: management
total $0 · program services $0 · management and general $0 · fundraising $0
-
11b · Fees: legal
total $0 · program services $0 · management and general $0 · fundraising $0
-
11c · Fees: accounting
total $6,776 · management and general $3,388 · fundraising $3,388
-
11d · Fees: lobbying
total $0 · program services $0 · management and general $0 · fundraising $0
-
11e · Fees: professional fundraising services
total $0 · fundraising $0
-
11f · Fees: investment management
total $0 · program services $0 · management and general $0 · fundraising $0
-
11g · Fees: other
total $64,600 · program services $21,533 · fundraising $43,067
-
13 · Office expenses
total $10,424 · program services $3,567 · management and general $3,595 · fundraising $3,262
-
15 · Royalties
total $0 · program services $0 · management and general $0 · fundraising $0
-
16 · Occupancy
total $0 · program services $0 · management and general $0 · fundraising $0
-
18 · Travel or entertainment for public officials
total $0 · program services $0 · management and general $0 · fundraising $0
-
20 · Interest
total $0 · program services $0 · management and general $0 · fundraising $0
-
23 · Insurance
total $1,842 · program services $325 · management and general $1,517
-
24a · Other expenses: Donation Payment Processing
total $5,765 · program services $0 · management and general $0 · fundraising $5,765
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $62,744 · end of year $65,007
-
2 · Savings and temporary cash investments
beginning of year $904,929 · end of year $803,951
-
3 · Pledges and grants receivable
beginning of year $17,166
-
8 · Inventories for sale or use
beginning of year $113 · end of year $413
-
9 · Prepaid expenses and deferred charges
beginning of year $5,879
-
17 · Accounts payable and accrued expenses
beginning of year $11,342 · end of year $18,531
-
18 · Grants payable
beginning of year $50,000 · end of year $50,000
-
27 · Net assets without donor restrictions
beginning of year $929,489 · end of year $800,840
-
28 · Net assets with donor restrictions
beginning of year $0 · end of year $0
Mission and programs · 2024
Mission
The mission of CureNFwithJack is to accelerate awareness and find a cure or effective treatment through the funding of research. CureNFwithJack provides seed money for innovate research in multiple areas, including but not limited to drug discovery/tumor reduction, gene therapy and quality of life issues. As neurofibromatosis (NF) is a precancer disposition syndrome, CureNFwithJack's reach expands beyond strictly NF research, and has or will fund research in diagnostics to detect rare cancer, new therapeutics for pediatric brainstem gliomas, and cognitive and behavioral health. CureNFwithJack hosts multiple events and campaigns throughout the year to educate the community on NF and to raise awareness and funds.
-
Assist in educating the public about neurofibromatosis and funding research to lead to a cure and treatment for neurofibromatosis.
Expenses $221,488 · Grants $151,037 · Revenue $185,971
As filed on the 2024 return.
Listed in Part VII
-
Elizabeth O'Brien
President
- Total calculated
- $62,500
- From this org
- $62,500
- From related orgs
- $0
- Other
- $0
- Hours/week
- 25
-
Patricia Ramstrom
Treasurer
- Total calculated
- $0
- Hours/week
- 3
-
Marilee Hamilton
Secretary
- Total calculated
- $0
- Hours/week
- 3
-
Nani Parker
Director
- Total calculated
- $0
- Hours/week
- 3
-
Dan Allen
Director
- Total calculated
- $0
- Hours/week
- 3
-
Matt Benson
Director
- Total calculated
- $0
- Hours/week
- 3
-
Kevin Swindon
Director
- Total calculated
- $0
- Hours/week
- 3
-
Jonathan Marks
Director
- Total calculated
- $0
- Hours/week
- 3
-
Kevin Coker
Director
- Total calculated
- $0
- Hours/week
- 3
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$101,037
Advance NF initiatives for research at Childrens Tumor Foundation.
-
Advance NF research projects at Grant Walker Lab, Massachusetts General Hospital
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 14 November 2025
- IRS schema version
- 2024v5.0
- Source object
- 202523189349304627
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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