- Revenue 2024
- $179,333
- Expenses 2024
- $307,982
Program services were 71.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- B99
- Classification
- 1000
- Street
- 730 AUTUMN CLOSE
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2024
Mission
The mission of CureNFwithJack is to accelerate awareness and find a cure or effective treatment through the funding of research. CureNFwithJack provides seed money for innovate research in multiple areas, including but not limited to drug discovery/tumor reduction, gene therapy and quality of life issues. As neurofibromatosis (NF) is a precancer disposition syndrome, CureNFwithJack's reach expands beyond strictly NF research, and has or will fund research in diagnostics to detect rare cancer, new therapeutics for pediatric brainstem gliomas, and cognitive and behavioral health. CureNFwithJack hosts multiple events and campaigns throughout the year to educate the community on NF and to raise awareness and funds.
-
Assist in educating the public about neurofibromatosis and funding research to lead to a cure and treatment for neurofibromatosis.
Expenses $221,488 · Grants $151,037 · Revenue $185,971
As filed on the 2024 return.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Elizabeth O'Brien
President
- Total calculated
- $62,500
- From this org
- $62,500
- From related orgs
- $0
- Other
- $0
- Hours/week
- 25
-
Patricia Ramstrom
Treasurer
- Total calculated
- $0
- Hours/week
- 3
-
Marilee Hamilton
Secretary
- Total calculated
- $0
- Hours/week
- 3
-
Nani Parker
Director
- Total calculated
- $0
- Hours/week
- 3
-
Dan Allen
Director
- Total calculated
- $0
- Hours/week
- 3
-
Matt Benson
Director
- Total calculated
- $0
- Hours/week
- 3
-
Kevin Swindon
Director
- Total calculated
- $0
- Hours/week
- 3
-
Jonathan Marks
Director
- Total calculated
- $0
- Hours/week
- 3
-
Kevin Coker
Director
- Total calculated
- $0
- Hours/week
- 3
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $179,333
- Expenses
- $307,982
- Contributions
- $100,270
- Grants paid
- $151,037
-
2023
- Revenue
- $205,453
- Expenses
- $246,009
- Contributions
- $115,971
- Grants paid
- $123,000
-
2022
- Revenue
- $324,419
- Expenses
- $95,948
- Contributions
- $192,169
- Grants paid
- $0
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $138,351
- Expenses
- $105,244
- Assets (EOY)
- $741,574
-
2020 · 990
- Revenue
- $197,055
- Expenses
- $74,454
- Assets (EOY)
- $712,088
-
2019 · 990
- Revenue
- $207,438
- Expenses
- $51,178
- Assets (EOY)
- $589,488
-
2018 · 990
- Revenue
- $224,231
- Expenses
- $222,256
- Assets (EOY)
- $433,228
-
2017 · 990
- Revenue
- $279,552
- Expenses
- $128,073
- Assets (EOY)
- $431,253
-
2016 · 990
- Revenue
- $318,308
- Expenses
- $153,793
- Assets (EOY)
- $282,185
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Form 990-N e-Postcard, tax year 2014
- Tax period
- 1 January 2014 to 31 December 2014
- Principal officer
-
Elizabeth O'Brien
- Mailing address
- 730 Autumn CloseMilton GA 30004
- Website
- www.curenfwithjack.com
As filed, from the IRS e-Postcard file of 26 October 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.
Grants made
-
$101,037
2024 Advance NF initiatives for research at Childrens Tumor Foundation.
-
UAB Heersink School of Medicine Office of Advancement
$73,000
2023 Advance NF research at UAB.
-
2023 Advance NF research at Grant Walker Lab, Massachusetts General Hospital.
-
2024 Advance NF research projects at Grant Walker Lab, Massachusetts General Hospital
Grants received
-
$15,830
2023 GENERAL PURPOSE
-
2023 GENERAL SUPPORT
-
$12,190
2022 GENERAL PURPOSE
-
$10,285
2025 GENERAL SUPPORT
-
$10,173
2022 UNRESTRICTED
-
2024 GENERAL SUPPORT
-
2025 GENERAL SUPPORT
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.