Totals
- Total revenue
- $205,453
- Total expenses
- $246,009
- Contributions and grants received
- $115,971
- Grants paid
- $123,000
- Program service revenue
- $0
- Investment income
- $26,474
- Other revenue
- $63,008
- Total assets, end of year
- $990,831
- Total liabilities, end of year
- $61,342
- Net assets or fund balances, end of year
- $929,489
- Program services expenses (Part IX)
- $178,771
- Management and general expenses
- $26,960
- Fundraising expenses
- $40,278
- Program service expenses (Part III)
- $178,771
Program services were 72.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1a · Federated campaigns
$0
-
1b · Membership dues
$0
-
1c · Fundraising events
$0
-
1d · Related organizations
$0
-
1e · Government grants (contributions)
$0
-
1f · All other contributions, gifts and grants
$115,971
-
1g · Noncash contributions included above
$0
-
3 · Investment income
total $26,474 · related or exempt $0 · unrelated business $0 · excluded $26,474
-
4 · Income from investment of tax-exempt bond proceeds
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
5 · Royalties
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
6c · Rental income or loss
real property $0 · personal property $0
-
7c · Gain or loss
securities $0 · other assets $0
-
8a · Fundraising events: gross income
$121,278
-
8a · Fundraising events: contributions included on line 1c
$0
-
8b · Fundraising events: direct expenses
$58,270
-
8c · Net income from fundraising events
total $63,008 · unrelated business $0 · excluded $63,008
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $123,000 · program services $123,000
-
5 · Compensation of officers, directors and key employees
total $62,500 · program services $31,250 · management and general $15,625 · fundraising $15,625
-
10 · Payroll taxes
total $5,038 · program services $2,520 · management and general $1,259 · fundraising $1,259
-
11c · Fees: accounting
total $5,381 · management and general $5,381
-
11g · Fees: other
total $39,500 · program services $19,750 · fundraising $19,750
-
12 · Advertising and promotion
total $0
-
13 · Office expenses
total $1,305 · program services $256 · fundraising $1,049
-
14 · Information technology
total $5,189 · management and general $2,594 · fundraising $2,595
-
17 · Travel
total $1,448 · program services $1,448
-
19 · Conferences, conventions and meetings
total $547 · program services $547 · management and general $0 · fundraising $0
-
23 · Insurance
total $1,600 · management and general $1,600
-
24a · Other expenses: Miscellaneous
total $501 · program services $0 · management and general $501 · fundraising $0
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $290,710 · end of year $62,744
-
2 · Savings and temporary cash investments
beginning of year $678,455 · end of year $904,929
-
3 · Pledges and grants receivable
beginning of year $0 · end of year $17,166
-
4 · Accounts receivable
beginning of year $403
-
8 · Inventories for sale or use
beginning of year $114 · end of year $113
-
9 · Prepaid expenses and deferred charges
beginning of year $966 · end of year $5,879
-
17 · Accounts payable and accrued expenses
beginning of year $603 · end of year $11,342
-
18 · Grants payable
end of year $50,000
-
27 · Net assets without donor restrictions
beginning of year $970,045 · end of year $929,489
-
28 · Net assets with donor restrictions
beginning of year $0 · end of year $0
Mission and programs · 2023
Mission
Assist in funding of research into neurofibromatosis. Educate the public about Neurofibromatosis and raise awareness of new avenues of research for NF to include gene therapy.
Activities or mission (Part I)
CureNFwithJack is a non-profit organization whose mission is to find an effective treatment or cure for NF through the funding of research. Donations to CureNFwithJack provide seed money to NF researchers and research-based NF entities for the most promising preclinical research and clinical trials. We educate the public about Neurofibromatosis and raise awareness of new avenues of research for NF to include gene therapy.
-
Assist in educating the public about neurofibromatosis and funding research to lead to a cure and treatment for neurofibromatosis.
Expenses $178,771 · Grants $123,000
As filed on the 2023 return.
Listed in Part VII
-
Elizabeth O'Brien
President
- Total calculated
- $62,500
- From this org
- $62,500
- From related orgs
- $0
- Other
- $0
- Hours/week
- 25
-
Patricia Ramstrom
Treasurer
- Total calculated
- $0
- Hours/week
- 3
-
Marilee Hamilton
Secretary
- Total calculated
- $0
- Hours/week
- 3
-
Nani Parker
Director
- Total calculated
- $0
- Hours/week
- 3
-
Dan Allen
Director
- Total calculated
- $0
- Hours/week
- 3
-
Matt Benson
Director
- Total calculated
- $0
- Hours/week
- 3
-
Kevin Swindon
Director
- Total calculated
- $0
- Hours/week
- 3
-
Jonathan Marks
Director
- Total calculated
- $0
- Hours/week
- 3
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
UAB Heersink School of Medicine Office of Advancement
$73,000
Advance NF research at UAB.
-
Advance NF research at Grant Walker Lab, Massachusetts General Hospital.
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 4 June 2024
- IRS schema version
- 2023v5.0
- Source object
- 202441669349300114
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