Totals
- Total revenue
- $1,142,743
- Total expenses
- $879,866
- Contributions and grants received
- $958,592
- Grants paid
- $13,500
- Program service revenue
- $177,501
- Investment income
- $0
- Other revenue
- $6,650
- Total assets, end of year
- $591,444
- Total liabilities, end of year
- $69,193
- Net assets or fund balances, end of year
- $522,251
- Program services expenses (Part IX)
- $734,490
- Management and general expenses
- $140,884
- Fundraising expenses
- $4,492
- Program service expenses (Part III)
- $734,490
Program services were 83.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1b · Membership dues
$194,325
-
1e · Government grants (contributions)
$98,030
-
1f · All other contributions, gifts and grants
$666,237
-
2a · Program service revenue: RENT A NEUROSCIENTIST
total $93,368 · related or exempt $93,368
-
2b · Program service revenue: BIOREPOSITORY INCOME
total $84,133 · related or exempt $84,133
-
11a · Other revenue: CONFERENCE FEES
total $6,100 · related or exempt $6,100
-
11b · Other revenue: MISCELLANEOUS INCOME
total $550 · related or exempt $550
-
11e · Other revenue, total
$6,650
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $13,500 · program services $13,500
-
5 · Compensation of officers, directors and key employees
total $89,837 · program services $76,361 · management and general $8,984 · fundraising $4,492
-
7 · Other salaries and wages
total $202,397 · program services $172,452 · management and general $29,945
-
9 · Other employee benefits
total $19,011 · program services $18,084 · management and general $927
-
10 · Payroll taxes
total $12,949 · program services $11,033 · management and general $1,916
-
11b · Fees: legal
total $12,445 · management and general $12,445
-
11c · Fees: accounting
total $33,474 · management and general $33,474
-
11g · Fees: other
total $300,837 · program services $298,555 · management and general $2,282
-
13 · Office expenses
total $7,256 · management and general $7,256
-
14 · Information technology
total $54,902 · program services $51,165 · management and general $3,737
-
17 · Travel
total $7,854 · management and general $7,854
-
19 · Conferences, conventions and meetings
total $24,296 · management and general $24,296
-
20 · Interest
total $790 · management and general $790
-
24a · Other expenses: BIOREPOSITORY EXPENSE
total $93,340 · program services $93,340
-
24b · Other expenses: BAD DEBT
total $5,453 · management and general $5,453
-
24c · Other expenses: FRANCHISE AND EXCISE TA
total $1,412 · management and general $1,412
-
24d · Other expenses: LICENSE AND FEE
total $113 · management and general $113
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $260,602 · end of year $447,021
-
4 · Accounts receivable
beginning of year $97,389 · end of year $144,137
-
15 · Other assets
beginning of year $286 · end of year $286
-
17 · Accounts payable and accrued expenses
beginning of year $31,953 · end of year $69,193
-
25 · Other liabilities
beginning of year $66,950 · end of year $0
-
27 · Net assets without donor restrictions
beginning of year $259,374 · end of year $522,251
Mission and programs · 2023
Mission
THE CONSORTIUM FOR OUTCOME MEASURES AND BIOMARKERS FOR NEURODEVELOPMENTAL DISORDERS IS A NON-PROFIT ORGANIZATION DEVOTED TO SPEEDING THE PATH TO CLINICAL TREATMENTS FOR PEOPLE WITH RARE GENETIC NEURODEVELOPMENTAL DISORDERS BY POOLING EFFORTS, STUDIES, AND DATA.
-
BIOREPOSITORY: IN A 2023 STRATEGIC PLANNING PROCESS, SURVEYS WERE SENT SEPARATELY TO THE CLINICAL ADVISORY BOARD (CAB), SCIENTIFIC ADVISORY BOARD (SAB), PATIENT ADVOCACY ADVISORY BOARD (PAB) AND INDUSTRY ADVISORY BOARD (IAB), AND EACH INDEPENDENTLY PRIORITIZED BIOMARKER STUDIES ABOVE ALL OTHER EFFORTS. ACROSS ALL OF THE ADVISORY BOARDS, NATURAL HISTORY WAS THE SECOND MOST COMMONLY CHOSEN AREA OF CONCERN, BUT AMONGST THE PAB, CONSTRUCTION OF RESEARCH STRATEGIC PLANS WAS THE SECOND HIGHEST PRIORITY. BASED ON THESE PRIORITIES, COMBINEDBRAIN HAS FOCUSED EXTENSIVE EFFORTS ON HOSTING A BIOREPOSITORY AND ORGANIZING PRE-COMPETITIVE BIOMARKER PROJECTS. THE REPOSITORY IS FUNDED AND GOVERNED BY MEMBER PAGS.
Expenses $395,270 · Grants $6,750 · Revenue $90,783
-
RENT A NEUROSCIENTIST: TO RESPOND TO THE PAB REQUEST FOR HELP WITH STRATEGIC RESEARCH PLANS, COMBINEDBRAIN HIRES POST-DOCTORAL FELLOWS, AND STUDENT INTERNS. THESE TEAMS STAFF THE RENT-A-BRAIN PROGRAM, WHICH ASSISTS WITH THE ROADSHOW, BUT PRIMARILY SERVES AS PART-TIME SCIENTIFIC OFFICERS FOR MEMBER PAGS. WHEN REQUESTED, THESE TEAMS REVIEW THE LANDSCAPE OF DRUG DEVELOPMENT FOR A GIVEN DISORDER IN AN OBJECTIVE AND ECONOMICAL WAY, RESULTING IN A SERIES OF RECOMMENDATIONS FOR MOVING AS FAST AS POSSIBLE FROM DIAGNOSIS TO AN FDA-APPROVED DRUG. THE RENT-A-BRAIN TEAMS ALSO ASSIST PAGS WITH GRANT APPLICATIONS, GRANT REVIEWS, LITERATURE SUMMARIES, DISEASE CONCEPT STUDIES, AND MANUSCRIPT PREPARATION. RENTA-BRAIN ACTIVITIES VARY WIDELY, AS DEMANDED BY THE PAGS AND ADVISORY BOARDS. FOR EXAMPLE, ONE TEAM HAS PREPARED SCIENTIFIC RATIONALE FOR ADDING MEMBER DISORDERS TO DIAGNOSTIC MICROARRAYS, ANOTHER HAS PREPARED APPLICATIONS FOR ICD-10 CODES, AND ANOTHER HAS DRAFTED A SURVEY OF TOILETING ABILITIES TO BE PILOTED ACROSS NEURODEVELOPMENTAL DISORDERS, AMONGST MANY OTHER PROJECTS.
Expenses $339,220 · Grants $6,750 · Revenue $93,368
As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Terry Jo BichellTERRY JO BICHELL
EXECUTIVE DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
Amber FreedAMBER FREED
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
Geraldine BlissGERALDINE BLISS
SECRETARY
- Total calculated
- $0
- Hours/week
- 0.5
-
Mike GragliaMIKE GRAGLIA
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
Keith McArthurKEITH MCARTHUR
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
Sunitha MalepatiSUNITHA MALEPATI
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
Kim NyeKIM NYE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
Jeff D'AngeloJEFF D'ANGELO
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
Nuala SummerfieldNUALA SUMMERFIELD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
Bina ShahBINA SHAH
TREASURER
- Total calculated
- $0
- Hours/week
- 0.5
-
Charlene Son RigbyCHARLENE SON RIGBY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
Sarah GlassSARAH GLASS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
Kristin HatcherKRISTIN HATCHER
DEPUTY DIRECTOR
- Total calculated
- $48,423
- From this org
- $36,619
- From related orgs
- $0
- Other
- $11,804
- Hours/week
- 40
-
Taylor MorrisTAYLOR MORRIS
DEPUTY DIRECTOR
- Total calculated
- $41,414
- From this org
- $40,644
- From related orgs
- $0
- Other
- $770
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
SALARY FOR CHIEF SCIENCE OFFICER, RESEARCHER
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 22 October 2024
- IRS schema version
- 2023v5.1
- Source object
- 202402989349301010
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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