Skip to content
Nonprofiteer
← GLOBAL GENES

Form 990 for tax year 2022

Filed by GLOBAL GENES.

Totals

Total revenue
$5,557,435
Total expenses
$7,700,189
Contributions and grants received
$3,865,176
Grants paid
$469,253
Program service revenue
$1,690,520
Investment income
$1,739
Other revenue
$0
Total assets, end of year
$2,294,462
Total liabilities, end of year
$1,753,204
Net assets or fund balances, end of year
$541,258
Program services expenses (Part IX)
$6,222,906
Management and general expenses
$1,041,496
Fundraising expenses
$435,787
Program service expenses (Part III)
$6,222,906

Program services were 80.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $3,865,176

  • 2a · Program service revenue: MEMBERSHIP FEES

    total $1,230,634 · related or exempt $1,230,634

  • 2b · Program service revenue: CONFERENCE SPONSORSHIP

    total $445,400 · related or exempt $445,400

  • 2c · Program service revenue: EXHIBIT BOOTHS

    total $14,486 · related or exempt $14,486

  • 3 · Investment income

    total $1,597 · excluded $1,597

  • 7a · Gross sales of assets other than inventory

    securities $50,906 · other assets $65,522

  • 7b · Less cost or other basis and sales expenses

    securities $50,287 · other assets $65,999

  • 7c · Gain or loss

    securities $619 · other assets -$477

  • 7d · Net gain or loss

    total $142 · excluded $142

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $221,259 · program services $221,259

  • 3 · Grants to foreign organizations and individuals

    total $247,994 · program services $247,994

  • 5 · Compensation of officers, directors and key employees

    total $508,751 · program services $305,251 · management and general $50,875 · fundraising $152,625

  • 7 · Other salaries and wages

    total $1,812,826 · program services $1,442,206 · management and general $248,224 · fundraising $122,396

  • 9 · Other employee benefits

    total $48,332 · program services $36,380 · management and general $6,227 · fundraising $5,725

  • 10 · Payroll taxes

    total $202,284 · program services $151,713 · management and general $26,297 · fundraising $24,274

  • 11b · Fees: legal

    total $12,155 · management and general $12,155

  • 11c · Fees: accounting

    total $99,185 · management and general $99,185

  • 12 · Advertising and promotion

    total $57,420 · program services $57,420

  • 13 · Office expenses

    total $25,113 · program services $22,042 · management and general $3,071

  • 14 · Information technology

    total $611,619 · program services $491,150 · management and general $120,469

  • 16 · Occupancy

    total $84,772 · management and general $84,772

  • 17 · Travel

    total $618,632 · program services $614,398 · management and general $4,234

  • 19 · Conferences, conventions and meetings

    total $1,149 · program services $1,149

  • 22 · Depreciation, depletion and amortization

    total $10,917 · management and general $10,917

  • 23 · Insurance

    total $18,725 · program services $10,531 · management and general $6,509 · fundraising $1,685

  • 24a · Other expenses: SUPPLIES

    total $1,290,517 · program services $1,277,756 · management and general $12,761 · fundraising $0

  • 24b · Other expenses: OUTSIDE SERVICES

    total $1,227,671 · program services $843,800 · management and general $257,871 · fundraising $126,000

  • 24c · Other expenses: PROGRAM AWARENESS

    total $487,625 · program services $487,625

  • 24d · Other expenses: FEES AND TAXES

    total $56,272 · program services $679 · management and general $55,593

  • 24e · All other expenses

    total $56,971 · program services $11,553 · management and general $42,336 · fundraising $3,082

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,236,090 · end of year $945,899

  • 2 · Savings and temporary cash investments

    beginning of year $1,693,150 · end of year $425,887

  • 3 · Pledges and grants receivable

    end of year $372,750

  • 4 · Accounts receivable

    beginning of year $59,565 · end of year $160,977

  • 8 · Inventories for sale or use

    beginning of year $1,246

  • 9 · Prepaid expenses and deferred charges

    beginning of year $307,820 · end of year $332,882

  • 10a · Land, buildings and equipment: cost or other basis

    $207,533

  • 10b · Land, buildings and equipment: accumulated depreciation

    $205,008

  • 10c · Land, buildings and equipment, net

    beginning of year $11,394 · end of year $2,525

  • 15 · Other assets

    beginning of year $6,576 · end of year $53,542

  • 17 · Accounts payable and accrued expenses

    beginning of year $439,509 · end of year $1,228,794

  • 19 · Deferred revenue

    beginning of year $507,504 · end of year $473,927

  • 25 · Other liabilities

    beginning of year $0 · end of year $50,483

  • 27 · Net assets without donor restrictions

    beginning of year $2,368,828 · end of year $541,258

Mission and programs · 2022

Mission

GLOBAL GENES' MISSION IS TO CONNECT, EMPOWER AND INSPIRE THE RARE DISEASE COMMUNITY.

Activities or mission (Part I)

INCREASE PUBLIC AWARENESS FOR RARE DISEASE AND GLOBALLY CONNECT, EMPOWER AND EDUCATE INDIVIDUALS AND RARE DISEASE FOUNDATIONS IN PERSON, PRINT AND ONLINE.

  • OUTREACH SERVICESPROVIDE CAPACITY BUILDING EDUCATIONAL AND CONNECTIVE NETWORKING OPPORTUNITIES TO PATIENTS, CAREGIVERS AND DISEASE FOUNDATIONS VIA IN PERSON MEETINGS, PRINT AND ONLINE TOOLS AND ONLINE EDUCATION.

    Expenses $6,222,906 · Grants $469,253 · Revenue $1,690,520

As filed on the 2022 return.

Listed in Part VII

  • CRAIG MARTIN

    INTERIM CEO

    Total calculated
    $420,000
    From this org
    $420,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $420,000
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $420,000

  • CHRISTOPHER NUNES

    FINANCE DIRECTOR

    Total calculated
    $65,001
    From this org
    $65,001
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • LAUREN ALFORD

    SENIOR DIRECTOR, MARKETING COMMUNICATIONS

    Total calculated
    $160,553
    From this org
    $160,475
    From related orgs
    $0
    Other
    $78
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $160,475
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $78
    Filer's total
    $160,553

  • VICTORIA WEISS

    SENIOR DIRECTOR, FINANCE

    Total calculated
    $23,750
    From this org
    $23,750
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • MARY K O'CONNOR

    SENIOR DIRECTOR, DEVELOPMENT

    Total calculated
    $149,534
    From this org
    $143,684
    From related orgs
    $0
    Other
    $5,850
    Hours/week
    40

  • MARIA DELLA ROCCA

    SENIOR DIRECTOR, SUPPORT & EDUCATION

    Total calculated
    $146,956
    From this org
    $146,875
    From related orgs
    $0
    Other
    $81
    Hours/week
    40

  • TIM EHRHARD

    SENIOR DIRECTOR, IT

    Total calculated
    $158,390
    From this org
    $158,312
    From related orgs
    $0
    Other
    $78
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $158,312
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $78
    Filer's total
    $158,390

  • SHANKAR RAMKELLAWAN

    MANAGER, DATA SCIENCE & INSIGHTS

    Total calculated
    $115,911
    From this org
    $111,064
    From related orgs
    $0
    Other
    $4,847
    Hours/week
    40

  • NICOLE BOICE

    FOUNDER

    Total calculated
    $0
    Hours/week
    10

  • PETER PELLIZZON

    BOARD CHAIRMAN

    Total calculated
    $0
    Hours/week
    1

  • CAROLINE LOEWY

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • JOHN CROWLEY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • CHRISTINA M HARTMAN

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • HUGH HEMPEL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • NEIL KUMAR

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • INDU NAVAR

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Form 990 of other organizations
  • 3 · Written employment contract
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2022
Filed
13 November 2023
IRS schema version
2022v5.0
Source object
202303189349314915

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.