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MYHRE SYNDROME FOUNDATION

EIN 83-4086943 KELLER, TX

Revenue 2024
$1,722,681
Expenses 2024
$567,231

Program services were 100.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G20
Classification
1000
Street
1710 KELLER PKWY PMB 8828

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

Myhre Syndrome Foundation is a Funding research and patient advocacy organization dedicated providing hope and improving the lives of those impacted by Myhre syndrome.

  • Research Assistant

    Expenses $364,580

  • Patient Advocacy Support

    Expenses $202,651

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Armelle pindon

    Chief Scientific Officer

    Total calculated
    $120,000
    From this org
    $120,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40
  • Kate Wears

    Executive Dir.

    Total calculated
    $64,921
    From this org
    $64,921
    From related orgs
    $0
    Other
    $0
    Hours/week
    21
  • Justin Smith

    Treasurer

    Total calculated
    $0
    Hours/week
    5
  • Ines White

    President

    Total calculated
    $0
    Hours/week
    5
  • Don Clark

    Vice President

    Total calculated
    $0
    Hours/week
    3
  • Kathy Young

    Director

    Total calculated
    $0
    Hours/week
    3
  • Michelle Smith

    Director

    Total calculated
    $0
    Hours/week
    3
  • Betsy Cox

    Director

    Total calculated
    $0
    Hours/week
    3
  • Jessica Simkins

    Director

    Total calculated
    $0
    Hours/week
    3
  • Zac Burns

    Director

    Total calculated
    $0
    Hours/week
    10
  • Matthew Kantor

    Director

    Total calculated
    $0
    Hours/week
    3
  • Susan Murphy

    Director

    Total calculated
    $0
    Hours/week
    3
  • Mary Young

    Director

    Total calculated
    $0
    Hours/week
    3

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $1,722,681
    Expenses
    $567,231
    Contributions
    $1,671,904
    Grants paid
    $0
  • 2023
    Revenue
    $853,869
    Expenses
    $103,124
    Contributions
    $848,036
    Grants paid
    $24,227
  • 2022
    Revenue
    $136,487
    Expenses
    $59,919
    Contributions
    $136,487
    Grants paid
    $24,227

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990-EZ

    Revenue
    $112,578
    Expenses
    $181,511
    Assets (EOY)
    $48,766
  • 2019 · 990-EZ

    Revenue
    $49,157
    Expenses
    $25,856
    Assets (EOY)
    $23,301

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

  • Mass General Development

    $24,227

    2023 Research Assistant

Where these grants went next →

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.