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Nonprofiteer
← HIDRADENITIS SUPPURATIVA FOUNDATION

Form 990 for tax year 2024

Filed by HIDRADENITIS SUPPURATIVA FOUNDATION.

Totals

Total revenue
$1,803,205
Total expenses
$1,349,348
Contributions and grants received
$941,347
Grants paid
$347,000
Program service revenue
$818,997
Investment income
$42,861
Other revenue
$0
Total assets, end of year
$2,109,589
Total liabilities, end of year
$648,400
Net assets or fund balances, end of year
$1,461,189
Program services expenses (Part IX)
$1,063,676
Management and general expenses
$257,161
Fundraising expenses
$28,511
Program service expenses (Part III)
$1,063,676

Program services were 78.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $941,347

  • 2a · Program service revenue: CONFERENCE FEES

    total $734,997 · related or exempt $734,997

  • 2b · Program service revenue: PROJECTS

    total $84,000 · related or exempt $84,000

  • 3 · Investment income

    total $42,861 · excluded $42,861

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $345,000 · program services $345,000

  • 2 · Grants to domestic individuals

    total $2,000 · program services $2,000

  • 5 · Compensation of officers, directors and key employees

    total $242,923 · program services $81,379 · management and general $134,417 · fundraising $27,127

  • 10 · Payroll taxes

    total $13,843 · program services $4,153 · management and general $8,306 · fundraising $1,384

  • 11b · Fees: legal

    total $715 · management and general $715

  • 11c · Fees: accounting

    total $13,274 · management and general $13,274

  • 11f · Fees: investment management

    total $1,559 · management and general $1,559

  • 11g · Fees: other

    total $79,184 · management and general $79,184

  • 12 · Advertising and promotion

    total $1,749 · program services $1,749

  • 13 · Office expenses

    total $9,160 · management and general $9,160

  • 17 · Travel

    total $39,140 · program services $31,312 · management and general $7,828

  • 19 · Conferences, conventions and meetings

    total $591,682 · program services $591,682

  • 23 · Insurance

    total $1,582 · management and general $1,582

  • 24a · Other expenses: Dues and Subscriptions

    total $5,516 · program services $5,516

  • 24b · Other expenses: Miscellaneous

    total $1,136 · management and general $1,136

  • 24c · Other expenses: Taxes and Licenses

    total $885 · program services $885

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $691,865 · end of year $1,575,411

  • 2 · Savings and temporary cash investments

    beginning of year $4,661 · end of year $3,925

  • 4 · Accounts receivable

    beginning of year $128,400 · end of year $79,285

  • 9 · Prepaid expenses and deferred charges

    beginning of year $40,946 · end of year $25,727

  • 12 · Investments: other securities

    beginning of year $402,689 · end of year $425,241

  • 17 · Accounts payable and accrued expenses

    beginning of year $270,751 · end of year $243,400

  • 19 · Deferred revenue

    end of year $405,000

  • 27 · Net assets without donor restrictions

    beginning of year $997,810 · end of year $1,461,189

Mission and programs · 2024

Mission

THE MISSION OF THE HS FOUNDATION IS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY HS THROUGH ADVOCACY, EDUCATION AND RESEARCH.

Activities or mission (Part I)

THE HIDRADENITIS SUPPURATIVA FOUNDATION (HSF) IS A NONPROFIT PUBLIC BENEFIT CORPORATION DEDICATED TO IMPROVING THE QUALITY OF LIFE AND QUALITY OF CARE FOR INDIVIDUALS AND FAMILIES AFFECTED BY HIDRADENITIS SUPPURATIVA (HS). THE HSF FOSTERS AND ENCOURAGES WORLDWIDE RESEARCH BY DEVELOPING AND SUPPORTING AN INTERDISCIPLINARY FAMILY OF SCIENTISTS AND PHYSICIANS DEVOTED TO STUDYING THE MOLECULAR AND CELLULAR BASIS OF HS, IN ORDER TO DEVELOP AND DELIVER MORE EFFECTIVE FORMS OF TREATMENT AND PREVENTATIVE MEASURES FOR THOSE WITH THIS DEBILITATING AND EMINENTLY CHRONIC DISEASE.

  • The Ninth Annual Symposium on Hidradenitis Suppurativa Advances (SHSA) was held November 1-3, 2024, in Austin, Texas. Co-organized with the Canadian HS Foundation (CHSF), over 450 attendees from 18 countries participated in the event, including 39 patients and 65 medical students. The latest advancements in HS treatment and research were presented, including the submission of 150 abstracts.

    Expenses $382,654 · Revenue $584,997

  • Over $305,000 in grant funding was provided through three HSF programs. The Danby Grant provided five grants totaling $100,000, while the Translational Grant Program provided two grants totaling $150,000. Finally, the HSF funded a Career Development Award through a partnership with the Dermatology Foundation for $55,000. The grants all fund research and researchers focused on the field of HS.

    Expenses $347,000 · Grants $347,000

  • The HS Foundation held its fourth annual educational event for dermatology residents, called HS Academy. The purpose of the event is to educate the next generation of practicing dermatologists about the latest advancements in diagnosis, pathogenesis, epidemiology, and comorbidities, as well as medical and procedure-based treatments for Hidradenitis Suppurativa through lecture, break-out sessions, and case-based studies with renowned experts and patient faculty. The event takes place over the course of three days and all expenses for attendees, including travel, is completely covered by the Foundation.

    Expenses $206,974 · Revenue $150,000

  • Expenses $127,048 · Revenue $84,000

As filed on the 2024 return.

Listed in Part VII

  • Iltefat Hamzavi MD

    IMMEDIATE PAST PRESIDENT

    Total calculated
    $0
    Hours/week
    0.5

  • Joslyn R Sciacca Kirby MD

    PAST PRESIDENT

    Total calculated
    $0
    Hours/week
    0.5

  • Hadar Lev-Tov MD

    PRESIDENT

    Total calculated
    $0
    Hours/week
    3

  • Martin Okun MD

    PAST SECRETARY

    Total calculated
    $0
    Hours/week
    0.5

  • Athena Gierbolini

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Jennifer Hsiao MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Christopher Sayed MD

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Haley Naik MD

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Michelle Lowes Mbbs PhD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Amit Garg MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Barry Resnik MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Stephanie Goldberg MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Vivian Shi MD

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Steven Daveluy MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Afsaneh Alavi MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Donna Atherton

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Ginette Okoye MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Lauren Orenstein MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Colleen Cotton MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Brent Hazelett

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $243,108
    From this org
    $233,758
    From related orgs
    $0
    Other
    $9,350
    Hours/week
    45

    Schedule J breakdown matched by us

    Base
    $222,425
    Bonus
    $11,333
    Other
    $0
    Deferred
    $9,350
    Nontaxable benefits
    $0
    Filer's total
    $243,108

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Written employment contract

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2024
Filed
11 November 2025
IRS schema version
2024v5.2
Source object
202513159349304671

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