Totals
- Total revenue
- $30,807,703
- Total expenses
- $18,339,178
- Contributions and grants received
- $30,574,294
- Grants paid
- $0
- Program service revenue
- $0
- Investment income
- $233,409
- Other revenue
- $0
- Total assets, end of year
- $22,298,749
- Total liabilities, end of year
- $3,196,035
- Net assets or fund balances, end of year
- $19,102,714
- Program services expenses (Part IX)
- $16,488,232
- Management and general expenses
- $1,282,507
- Fundraising expenses
- $568,439
- Program service expenses (Part III)
- $16,488,232
Program services were 89.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$30,574,294
-
1g · Noncash contributions included above
$1,171,095
-
3 · Investment income
total $233,409 · excluded $233,409
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7d · Net gain or loss
total $0
-
8c · Net income from fundraising events
total $0
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $0
-
2 · Grants to domestic individuals
total $0
-
3 · Grants to foreign organizations and individuals
total $0
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $1,211,277 · program services $995,898 · management and general $136,677 · fundraising $78,702
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $4,568,176 · program services $3,763,876 · management and general $508,442 · fundraising $295,858
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $442,875 · program services $349,242 · management and general $63,072 · fundraising $30,561
-
10 · Payroll taxes
total $342,300 · program services $269,930 · management and general $48,749 · fundraising $23,621
-
11a · Fees: management
total $0
-
11b · Fees: legal
total $322,056 · program services $249,082 · management and general $72,974
-
11c · Fees: accounting
total $177,929 · program services $137,612 · management and general $40,317
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $0
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $214,831 · program services $166,153 · management and general $48,678
-
12 · Advertising and promotion
total $10,468 · program services $2,617 · fundraising $7,851
-
13 · Office expenses
total $245,575 · program services $33,308 · management and general $209,612 · fundraising $2,655
-
14 · Information technology
total $175,968 · program services $158,371 · management and general $17,597
-
15 · Royalties
total $0
-
16 · Occupancy
total $596,525 · program services $536,873 · management and general $59,652
-
17 · Travel
total $0
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $185,315 · program services $13,595 · management and general $42,529 · fundraising $129,191
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $342,083 · program services $307,875 · management and general $34,208
-
23 · Insurance
total $0
-
24a · Other expenses: RESEARCH & DEVELOPMENT
total $9,503,800 · program services $9,503,800
-
24e · All other expenses
total $0
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $143,013 · end of year $450,947
-
2 · Savings and temporary cash investments
beginning of year $5,085,312 · end of year $11,815,084
-
3 · Pledges and grants receivable
beginning of year $4,683,948 · end of year $8,133,170
-
4 · Accounts receivable
end of year $43,120
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
beginning of year $204,193 · end of year $248,521
-
10a · Land, buildings and equipment: cost or other basis
$1,782,889
-
10b · Land, buildings and equipment: accumulated depreciation
$979,095
-
10c · Land, buildings and equipment, net
beginning of year $977,184 · end of year $803,794
-
11 · Investments: publicly traded securities
end of year $0
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
end of year $0
-
15 · Other assets
beginning of year $1,182,832 · end of year $804,113
-
17 · Accounts payable and accrued expenses
beginning of year $1,906,718 · end of year $1,730,358
-
19 · Deferred revenue
beginning of year $2,525,455 · end of year $624,640
-
25 · Other liabilities
beginning of year $1,210,120 · end of year $841,037
-
27 · Net assets without donor restrictions
beginning of year $3,614,409 · end of year $11,941,916
-
28 · Net assets with donor restrictions
beginning of year $3,019,780 · end of year $7,160,798
Mission and programs · 2025
Mission
N-LOREM'S MISSION IS CREATING INDIVIDUAL TREATMENTS FOR PATIENTS IN THE UNITED STATES WITH NANO-RARE DISEASES CAUSED BY GENETIC MUTATIONS THAT AFFECT APPROXIMATELY 30 PATIENTS IN THE WORLD.
-
TO PROVIDE ADVANCED, EXPERIMENTAL RNA-TARGETED MEDICINES, FREE OF CHARGE FOR LIFE, TO PATIENTS LIVING WITH NANO-RARE DISEASES.
Expenses $16,488,232
As filed on the 2025 return.
Listed in Part VII
-
Sarah GlassSARAH GLASS
COO
- Total calculated
- $501,818
- From this org
- $487,199
- From related orgs
- $0
- Other
- $14,619
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $425,774
- Bonus
- $61,425
- Other
- not reported
- Deferred
- $14,619
- Nontaxable benefits
- not reported
- Filer's total
- $501,818
-
Julie Douville
VP ASO Disc & Dev
- Total calculated
- $369,834
- From this org
- $353,113
- From related orgs
- $0
- Other
- $16,721
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $309,382
- Bonus
- $43,731
- Other
- not reported
- Deferred
- $10,593
- Nontaxable benefits
- $6,128
- Filer's total
- $369,834
-
Laury MignonLAURY MIGNON
ExDir Clinical Dev
- Total calculated
- $364,874
- From this org
- $336,405
- From related orgs
- $0
- Other
- $28,469
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $290,942
- Bonus
- $45,463
- Other
- not reported
- Deferred
- $10,716
- Nontaxable benefits
- $17,753
- Filer's total
- $364,874
-
Amy WillifordAMY WILLIFORD
VP FDN DEVELOPMENT
- Total calculated
- $314,195
- From this org
- $295,060
- From related orgs
- $0
- Other
- $19,135
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $258,835
- Bonus
- $36,225
- Other
- not reported
- Deferred
- $8,984
- Nontaxable benefits
- $10,151
- Filer's total
- $314,195
-
Virginia SankeyVIRGINIA SANKEY
VP of Finance
- Total calculated
- $302,680
- From this org
- $280,600
- From related orgs
- $0
- Other
- $22,080
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $253,012
- Bonus
- $27,588
- Other
- not reported
- Deferred
- $8,664
- Nontaxable benefits
- $13,416
- Filer's total
- $302,680
-
Kimberly ButlerKIMBERLY BUTLER
Sr. Dir. of Op
- Total calculated
- $300,529
- From this org
- $277,430
- From related orgs
- $0
- Other
- $23,099
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $240,205
- Bonus
- $37,225
- Other
- not reported
- Deferred
- $8,597
- Nontaxable benefits
- $14,502
- Filer's total
- $300,529
-
Megan Knutsen
SR DIRECTOR
- Total calculated
- $262,733
- From this org
- $249,166
- From related orgs
- $0
- Other
- $13,567
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $218,018
- Bonus
- $31,148
- Other
- not reported
- Deferred
- $7,548
- Nontaxable benefits
- $6,019
- Filer's total
- $262,733
-
Konstantina Skourti-Stathaki
Exec Dir ASO Disc
- Total calculated
- $243,586
- From this org
- $236,491
- From related orgs
- $0
- Other
- $7,095
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $208,428
- Bonus
- $28,063
- Other
- not reported
- Deferred
- $7,095
- Nontaxable benefits
- not reported
- Filer's total
- $243,586
-
Joseph Gleeson MDJOSEPH GLEESON MD
CMO
- Total calculated
- $106,250
- From this org
- $106,250
- From related orgs
- $0
- Other
- $0
- Hours/week
- 15
-
Stanley T Crooke MD PhDSTANLEY T CROOKE MD PHD
CHAIR/CEO
- Total calculated
- $0
- Hours/week
- 0.15
-
Rosanne Crooke PhDROSANNE CROOKE PHD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Lynne Parshall EsqLYNNE PARSHALL ESQ
Treasurer
- Total calculated
- $0
- Hours/week
- 0.15
-
Richard S Geary PHD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
C Frank Bennett PhDC FRANK BENNETT PHD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Gene Yeo PhD MBAGENE YEO PHD MBA
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Jason WoodJASON WOOD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Joseph Loscalzo PhDJOSEPH LOSCALZO PHD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Alan Lotvin MDALAN LOTVIN MD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Andrew W Lo PhDANDREW W LO PHD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Amy McCooeAMY MCCOOE
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Frank Sasinowski Ms MPH JDFRANK SASINOWSKI MS MPH JD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Paul ComptonPAUL COMPTON
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Neil Shneider MD PhDNEIL SHNEIDER MD PHD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Michael Hayden Mbchb PhDMICHAEL HAYDEN MBCHB PHD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
None.
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2025
- Filed
- 3 June 2026
- IRS schema version
- 2025v4.1
- Source object
- 202621549349300207
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