- Revenue 2025
- $30,807,703
- Expenses 2025
- $18,339,178
Program services were 89.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G20
- Classification
- 1000
- Street
- 2888 LOKER AVE E STE 110
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2025
Mission
N-LOREM'S MISSION IS CREATING INDIVIDUAL TREATMENTS FOR PATIENTS IN THE UNITED STATES WITH NANO-RARE DISEASES CAUSED BY GENETIC MUTATIONS THAT AFFECT APPROXIMATELY 30 PATIENTS IN THE WORLD.
-
TO PROVIDE ADVANCED, EXPERIMENTAL RNA-TARGETED MEDICINES, FREE OF CHARGE FOR LIFE, TO PATIENTS LIVING WITH NANO-RARE DISEASES.
Expenses $16,488,232
As filed on the 2025 return.
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Sarah GlassSARAH GLASS
COO
- Total calculated
- $501,818
- From this org
- $487,199
- From related orgs
- $0
- Other
- $14,619
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $425,774
- Bonus
- $61,425
- Other
- not reported
- Deferred
- $14,619
- Nontaxable benefits
- not reported
- Filer's total
- $501,818
-
Julie Douville
VP ASO Disc & Dev
- Total calculated
- $369,834
- From this org
- $353,113
- From related orgs
- $0
- Other
- $16,721
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $309,382
- Bonus
- $43,731
- Other
- not reported
- Deferred
- $10,593
- Nontaxable benefits
- $6,128
- Filer's total
- $369,834
-
Laury MignonLAURY MIGNON
ExDir Clinical Dev
- Total calculated
- $364,874
- From this org
- $336,405
- From related orgs
- $0
- Other
- $28,469
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $290,942
- Bonus
- $45,463
- Other
- not reported
- Deferred
- $10,716
- Nontaxable benefits
- $17,753
- Filer's total
- $364,874
-
Amy WillifordAMY WILLIFORD
VP FDN DEVELOPMENT
- Total calculated
- $314,195
- From this org
- $295,060
- From related orgs
- $0
- Other
- $19,135
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $258,835
- Bonus
- $36,225
- Other
- not reported
- Deferred
- $8,984
- Nontaxable benefits
- $10,151
- Filer's total
- $314,195
-
Virginia SankeyVIRGINIA SANKEY
VP of Finance
- Total calculated
- $302,680
- From this org
- $280,600
- From related orgs
- $0
- Other
- $22,080
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $253,012
- Bonus
- $27,588
- Other
- not reported
- Deferred
- $8,664
- Nontaxable benefits
- $13,416
- Filer's total
- $302,680
-
Kimberly ButlerKIMBERLY BUTLER
Sr. Dir. of Op
- Total calculated
- $300,529
- From this org
- $277,430
- From related orgs
- $0
- Other
- $23,099
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $240,205
- Bonus
- $37,225
- Other
- not reported
- Deferred
- $8,597
- Nontaxable benefits
- $14,502
- Filer's total
- $300,529
-
Megan Knutsen
SR DIRECTOR
- Total calculated
- $262,733
- From this org
- $249,166
- From related orgs
- $0
- Other
- $13,567
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $218,018
- Bonus
- $31,148
- Other
- not reported
- Deferred
- $7,548
- Nontaxable benefits
- $6,019
- Filer's total
- $262,733
-
Konstantina Skourti-Stathaki
Exec Dir ASO Disc
- Total calculated
- $243,586
- From this org
- $236,491
- From related orgs
- $0
- Other
- $7,095
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $208,428
- Bonus
- $28,063
- Other
- not reported
- Deferred
- $7,095
- Nontaxable benefits
- not reported
- Filer's total
- $243,586
-
Joseph Gleeson MDJOSEPH GLEESON MD
CMO
- Total calculated
- $106,250
- From this org
- $106,250
- From related orgs
- $0
- Other
- $0
- Hours/week
- 15
-
Stanley T Crooke MD PhDSTANLEY T CROOKE MD PHD
CHAIR/CEO
- Total calculated
- $0
- Hours/week
- 0.15
-
Rosanne Crooke PhDROSANNE CROOKE PHD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Lynne Parshall EsqLYNNE PARSHALL ESQ
Treasurer
- Total calculated
- $0
- Hours/week
- 0.15
-
Richard S Geary PHD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
C Frank Bennett PhDC FRANK BENNETT PHD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Gene Yeo PhD MBAGENE YEO PHD MBA
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Jason WoodJASON WOOD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Joseph Loscalzo PhDJOSEPH LOSCALZO PHD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Alan Lotvin MDALAN LOTVIN MD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Andrew W Lo PhDANDREW W LO PHD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Amy McCooeAMY MCCOOE
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Frank Sasinowski Ms MPH JDFRANK SASINOWSKI MS MPH JD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Paul ComptonPAUL COMPTON
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Neil Shneider MD PhDNEIL SHNEIDER MD PHD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
-
Michael Hayden Mbchb PhDMICHAEL HAYDEN MBCHB PHD
Board Member
- Total calculated
- $0
- Hours/week
- 0.15
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $30,807,703
- Expenses
- $18,339,178
- Contributions
- $30,574,294
- Grants paid
- $0
-
2024
- Revenue
- $11,008,892
- Expenses
- $15,803,117
- Contributions
- $10,882,635
- Grants paid
- $0
-
2023
- Revenue
- $6,864,176
- Expenses
- $14,216,401
- Contributions
- $6,498,151
- Grants paid
- $0
-
2022
- Revenue
- $17,644,122
- Expenses
- $8,953,463
- Contributions
- $17,508,022
- Grants paid
- $0
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $2,993,351
- Expenses
- $1,622,366
- Assets (EOY)
- $10,417,681
-
2020 · 990
- Revenue
- $5,284,720
- Expenses
- $395,655
- Assets (EOY)
- $8,940,657
-
2019 · 990
- Revenue
- $4,122,962
- Expenses
- $65,165
- Assets (EOY)
- $4,114,000
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
TRUSTEES OF COLUMBIA UNIVERSITY
$308,641
2023 RESEARCH
-
$301,500
2023 HEALTH
-
$100,000
2025 Advanced ASO Research
-
SILICON VALLEY COMMUNITY FOUNDATION
$100,000
2023 Health
-
$52,500
2022 HEALTH
-
$35,000
2024
-
2023 FOR RECIPIENT'S EXEMPT PURPOSE
-
$10,000
2024 FOR RECIPIENT'S EXEMPT PURPOSE
-
$10,000
2023 General support for programs, operations and other charitable purposes
-
2024 HEALTH
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 11 November 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.