Totals
- Total revenue
- $364,179
- Total expenses
- $246,998
- Contributions and grants received
- $277,557
- Grants paid
- $0
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $86,622
- Total assets, end of year
- $2,679,056
- Total liabilities, end of year
- $6,194
- Net assets or fund balances, end of year
- $2,672,862
- Program services expenses (Part IX)
- $170,932
- Management and general expenses
- $42,134
- Fundraising expenses
- $33,932
- Program service expenses (Part III)
- $170,932
Program services were 69.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1e · Government grants (contributions)
$17,690
-
1f · All other contributions, gifts and grants
$259,867
-
8a · Fundraising events: gross income
$119,663
-
8b · Fundraising events: direct expenses
$33,041
-
8c · Net income from fundraising events
total $86,622
Functional expenses
Part IX, the statement of functional expenses.
-
5 · Compensation of officers, directors and key employees
total $49,967 · program services $31,929 · management and general $10,593 · fundraising $7,445
-
7 · Other salaries and wages
total $84,500 · program services $53,995 · management and general $17,914 · fundraising $12,591
-
9 · Other employee benefits
total $9,434 · program services $6,028 · management and general $2,000 · fundraising $1,406
-
10 · Payroll taxes
total $11,788 · program services $7,533 · management and general $2,499 · fundraising $1,756
-
11c · Fees: accounting
total $7,500 · program services $4,792 · management and general $1,590 · fundraising $1,118
-
12 · Advertising and promotion
total $10,164 · program services $7,490 · fundraising $2,674
-
13 · Office expenses
total $28,501 · program services $18,213 · management and general $6,042 · fundraising $4,246
-
17 · Travel
total $11,223 · program services $9,551 · fundraising $1,672
-
19 · Conferences, conventions and meetings
total $3,554 · program services $2,271 · management and general $753 · fundraising $530
-
23 · Insurance
total $3,315 · program services $2,118 · management and general $703 · fundraising $494
-
24a · Other expenses: CONSULTING SERVICES
total $14,035 · program services $14,035
-
24b · Other expenses: ANNUAL STATE RENEWALS
total $7,352 · program services $7,352
-
24c · Other expenses: MEALS & ENTERTAINMENT
total $2,192 · program services $2,192
-
24d · Other expenses: OTHER NONPROFIT EXPENSES
total $1,433 · program services $1,433
-
24e · All other expenses
total $2,040 · program services $2,000 · management and general $40
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $2,574,930 · end of year $2,661,436
-
4 · Accounts receivable
end of year $17,620
-
9 · Prepaid expenses and deferred charges
beginning of year $4,896
-
17 · Accounts payable and accrued expenses
beginning of year $6,455 · end of year $6,194
-
25 · Other liabilities
beginning of year $17,690
-
27 · Net assets without donor restrictions
beginning of year $2,555,681 · end of year $2,672,862
Mission and programs · 2022
Mission
THE ORGANIZATION'S MISSION IS TO FUND RESEARCH TO TREAT/CURE HUNTER SYNDROME MPS II AND RAISE AWARENESS OF THE CONDITION IN THE PUBLIC AND MEDICAL COMMUNITY.
-
SUPPORT THE DEVELOPMENT OF AND PATIENT ACCESS TO TREATMENTS/CURES FOR HUNTER SYDROME MPS II AND RAISE AWARENESS OF THE CONDITION IN THE PUBLIC AND MEDICAL COMMUNITY.
Expenses $170,932
As filed on the 2022 return.
Listed in Part VII
-
Kim Stephens DbaKIM STEPHENS DBA
PRESIDENT
- Total calculated
- $49,967
- From this org
- $49,967
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Kyle UnderwoodKYLE UNDERWOOD
VICE PRESIDE
- Total calculated
- $0
- Hours/week
- 0.25
-
Jeanette HenriquezJEANETTE HENRIQUEZ
TREASURER
- Total calculated
- $0
- Hours/week
- 0.25
-
Julie FerrulloJULIE FERRULLO
SECRETARY
- Total calculated
- $0
- Hours/week
- 0.25
-
Cory BlainCORY BLAIN
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 0.25
-
Mario A EstevezMARIO A ESTEVEZ
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 0.25
-
Jennifer Hanebury-EstevezJENNIFER HANEBURY-ESTEVEZ
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 0.25
-
Dave FerrulloDAVE FERRULLO
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 0.25
-
Nathan GrantNATHAN GRANT
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 0.25
-
Adam HaasADAM HAAS
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 0.25
-
Andrew HoffmanANDREW HOFFMAN
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 0.25
-
Sarah MitchellSARAH MITCHELL
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 0.25
-
Jon MuedderJON MUEDDER
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 0.25
-
Aywon NguyenAYWON NGUYEN
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 0.25
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 31 July 2023
- IRS schema version
- 2022v5.0
- Source object
- 202302769349300110
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