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PROJECT ALIVE

EIN 46-4617970 DAVENPORT, FL

Revenue 2025
$468,046
Expenses 2025
$849,174

Program services were 76.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
T30
Classification
1000
Street
4704 WALTHAM FOREST DR

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

Mission

PROJECT ALIVE EXISTS TO FIND A CURE FOR HUNTER SYNDROME THROUGH RESEARCH AND ADVOCACY, AND PROVIDE EDUCATION AND RESOURCES TO THE HUNTER SYNDROME COMMUNITY.

  • RESEARCH GRANTS - PROVIDES FUNDING TO SUPPORT RESEARCH IN THE HUNTER SYNDROME SPACE THAT FILLS CRITICAL GAPS IN CURRENT KNOWLEDGE ACROSS BASIC SCIENCE, CRITICAL CARE AND TRANSLATIONAL THERAPEUTICS TO IMPROVE THE LIVES OF THOSE AFFECTED WITH HUNTER SYNDROME AND THEIR FAMILIES.

    Expenses $71,856 · Grants $46,015

  • FAMILY CASE MANAGEMENT - RECEIVES COMMUNITY ENROLLMENT FORMS FROM FAMILIES, MAKES CONTACT WITH THE ENROLLED FAMILY TO DISCUSS PROGRAMS OFFERED BY PROJECT ALIVE AND ASSISTS IN FINDING NEEDED RESOURCES, I.E.-CLINICAL TRIAL INFORMATION, LOCAL SUPPORT SERVICES, PHYSICIAN INFORMATION, ETC. THIS INCLUDES HUNTER HEALTH PROGRAM.

    Expenses $90,935 · Revenue $20,000

  • "N PERSON - THE YEARLY FAMILY FAIR BRINGS MPS II FAMILIES, THE MEDICALCOMMUNITY, EDUCATORS, AND INDUSTRY TOGETHER TO ATTEND SESSIONS ONSUBJECTS IMPORTANT TO THE COMMUNITY. FAMILIES HAVE THE OPPORTUNITY TO TALK WITH INDUSTRY PARTNERS, OTHER SUPPORT ORGANIZATIONS, AND MEET OTHER FAMILIES WHO ARE AFFECTED BY MPS II. HOSTED A MARKET INSIGHTS ROUNDTABLE TO DISCUSS WITH INSURANCE PAYORS THE NEED FOR THEM TO BE PROACTIVE IN HOW THEY WILL HANDLE COVERAGE OF NEWLY FDA APPROVED TREATMENTS FOR MPS II PATIENTS.

    Expenses $454,877 · Grants $13,644

  • HELPING HANDS PROGRAM - THIS PROGRAM IS TO RECOGNIZE FAMILIES THAT ARE DEALING WITH A MAJOR MEDICAL CRISIS WITH THEIR CHILD OR SUPPORT FOR THE DEATH OF A CHILD. PROJECT ALIVE WILL SEND A $50-$100 GIFT CARD FOR FOOD OR GAS TO PROVIDE SMALL RELIEF FOR THIS TIME. WE ALSO SEND FLOWERS FROM THE BOARD TO FUNERALS TO HONOR THE CHILD.

    Expenses $4,609

  • ALL OTHER - ADVOCACY

    Expenses $30,773

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Kyle Underwood

    CHAIR

    Total calculated
    $0
    Hours/week
    2

  • Elia Henriquez

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2

  • Kevin Fuhrmann

    TREASURER

    Total calculated
    $0
    Hours/week
    2

  • Jenn Estevez

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • John Barbour

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Cory Briddle

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Aaron Byzak

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Anne And Jeff Denneen

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Katey Hoffman

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Victor Nwaba

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Ashly Wiebelt

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Daiza Gordon

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Kyrah Jones

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Jeanette Henriquez

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Miriam Pedroza

    DIRECTOR (UNTIL 3/31/25)

    Total calculated
    $0
    Hours/week
    1

  • Kristin McKay

    PRESIDENT

    Total calculated
    $86,240
    From this org
    $86,240
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $468,046
    Expenses
    $849,174
    Contributions
    $415,302
    Grants paid
    $59,659
  • 2024
    Revenue
    $407,104
    Expenses
    $914,008
    Contributions
    $315,263
    Grants paid
    $350,596
  • 2023
    Revenue
    $301,636
    Expenses
    $439,138
    Contributions
    $83,680
    Grants paid
    $0
  • 2022
    Revenue
    $364,179
    Expenses
    $246,998
    Contributions
    $277,557
    Grants paid
    $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2025 · 990-T

    Revenue
    not reported
    Expenses
    not reported
    Assets (EOY)
    not reported

  • 2021 · 990

    Revenue
    $1,330,220
    Expenses
    $161,977
    Assets (EOY)
    $2,579,826

  • 2020 · 990

    Revenue
    $316,382
    Expenses
    $138,566
    Assets (EOY)
    $1,387,438

  • 2019 · 990

    Revenue
    $417,701
    Expenses
    $221,814
    Assets (EOY)
    $1,210,717

  • 2018 · 990

    Revenue
    $1,454,996
    Expenses
    $1,391,728
    Assets (EOY)
    $1,021,272

  • 2016 · 990

    Revenue
    $57,406
    Expenses
    $154,109
    Assets (EOY)
    $15,156

  • 2015 · 990-EZ

    Revenue
    $124,383
    Expenses
    $12,525
    Assets (EOY)
    $111,859

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Form 990-N e-Postcard, tax year 2014

Tax period
1 January 2014 to 31 December 2014
Principal officer
Melissa Hogan
Mailing address
5112 Heron Hill LaneThompsons Station TN 37179
Website
http://www.savingcase.com

As filed, from the IRS e-Postcard file of 26 October 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.

Grants made

Where these grants went next →

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 29 October 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.