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Nonprofiteer
← PROJECT ALIVE

Form 990 for tax year 2025

Filed by PROJECT ALIVE.

Totals

Total revenue
$468,046
Total expenses
$849,174
Contributions and grants received
$415,302
Grants paid
$59,659
Program service revenue
$20,000
Investment income
$42,535
Other revenue
-$9,791
Total assets, end of year
$1,882,123
Total liabilities, end of year
$183,056
Net assets or fund balances, end of year
$1,699,067
Program services expenses (Part IX)
$653,050
Management and general expenses
$105,638
Fundraising expenses
$90,486
Program service expenses (Part III)
$653,050

Program services were 76.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $73,410

  • 1f · All other contributions, gifts and grants

    $341,892

  • 1g · Noncash contributions included above

    $14,799

  • 2a · Program service revenue: LISENSING FEES

    total $20,000 · related or exempt $20,000

  • 3 · Investment income

    total $45,512 · excluded $45,512

  • 7a · Gross sales of assets other than inventory

    securities $414,000

  • 7b · Less cost or other basis and sales expenses

    securities $416,977

  • 7c · Gain or loss

    securities -$2,977

  • 7d · Net gain or loss

    total -$2,977 · excluded -$2,977

  • 8a · Fundraising events: gross income

    $19,800

  • 8a · Fundraising events: contributions included on line 1c

    $73,410

  • 8b · Fundraising events: direct expenses

    $28,514

  • 8c · Net income from fundraising events

    total -$8,714 · excluded -$8,714

  • 10a · Gross sales of inventory

    $1,425

  • 10b · Cost of goods sold

    $2,502

  • 10c · Net income from sales of inventory

    total -$1,077 · unrelated business -$1,077

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $46,015 · program services $46,015

  • 2 · Grants to domestic individuals

    total $13,644 · program services $13,644

  • 5 · Compensation of officers, directors and key employees

    total $86,239 · program services $35,358 · management and general $15,523 · fundraising $35,358

  • 7 · Other salaries and wages

    total $176,341 · program services $151,074 · management and general $232 · fundraising $25,035

  • 8 · Pension plan contributions

    total $9,922 · program services $7,045 · management and general $595 · fundraising $2,282

  • 9 · Other employee benefits

    total $20,301 · program services $13,654 · management and general $2,333 · fundraising $4,314

  • 10 · Payroll taxes

    total $21,544 · program services $15,296 · management and general $1,293 · fundraising $4,955

  • 11b · Fees: legal

    total $110 · management and general $110

  • 11c · Fees: accounting

    total $10,050 · management and general $10,050

  • 11f · Fees: investment management

    total $2,732 · management and general $2,732

  • 11g · Fees: other

    total $78,849 · program services $72,154 · management and general $6,695

  • 12 · Advertising and promotion

    total $1,111 · program services $741 · fundraising $370

  • 13 · Office expenses

    total $4,977 · program services $1,684 · management and general $2,351 · fundraising $942

  • 14 · Information technology

    total $15,180 · program services $15,180

  • 16 · Occupancy

    total $4,458 · program services $3,303 · fundraising $1,155

  • 17 · Travel

    total $66,485 · program services $55,351 · management and general $5,073 · fundraising $6,061

  • 19 · Conferences, conventions and meetings

    total $13,124 · program services $3,381 · management and general $9,053 · fundraising $690

  • 23 · Insurance

    total $5,495 · management and general $5,495

  • 24a · Other expenses: UBIT

    total $1,672 · management and general $1,672

  • 24b · Other expenses: COMMUNITY ENGAGEMENT

    total $213,455 · program services $213,455

  • 24c · Other expenses: SUBSCRIPTIONS & SOFTWAR

    total $23,405 · program services $5,715 · management and general $10,747 · fundraising $6,943

  • 24d · Other expenses: PROFESSIONAL DEVELOPMEN

    total $18,118 · management and general $18,118

  • 24e · All other expenses

    total $15,947 · management and general $13,566 · fundraising $2,381

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,848,623 · end of year $194,919

  • 2 · Savings and temporary cash investments

    end of year $1,147,331

  • 3 · Pledges and grants receivable

    beginning of year $27,311 · end of year $32,792

  • 9 · Prepaid expenses and deferred charges

    beginning of year $36,148 · end of year $89,276

  • 11 · Investments: publicly traded securities

    beginning of year $404,028 · end of year $417,805

  • 17 · Accounts payable and accrued expenses

    beginning of year $250,657 · end of year $136,848

  • 19 · Deferred revenue

    end of year $46,208

  • 27 · Net assets without donor restrictions

    beginning of year $1,863,142 · end of year $1,491,275

  • 28 · Net assets with donor restrictions

    beginning of year $202,311 · end of year $207,792

Mission and programs · 2025

Mission

PROJECT ALIVE EXISTS TO FIND A CURE FOR HUNTER SYNDROME THROUGH RESEARCH AND ADVOCACY, AND PROVIDE EDUCATION AND RESOURCES TO THE HUNTER SYNDROME COMMUNITY.

  • RESEARCH GRANTS - PROVIDES FUNDING TO SUPPORT RESEARCH IN THE HUNTER SYNDROME SPACE THAT FILLS CRITICAL GAPS IN CURRENT KNOWLEDGE ACROSS BASIC SCIENCE, CRITICAL CARE AND TRANSLATIONAL THERAPEUTICS TO IMPROVE THE LIVES OF THOSE AFFECTED WITH HUNTER SYNDROME AND THEIR FAMILIES.

    Expenses $71,856 · Grants $46,015

  • FAMILY CASE MANAGEMENT - RECEIVES COMMUNITY ENROLLMENT FORMS FROM FAMILIES, MAKES CONTACT WITH THE ENROLLED FAMILY TO DISCUSS PROGRAMS OFFERED BY PROJECT ALIVE AND ASSISTS IN FINDING NEEDED RESOURCES, I.E.-CLINICAL TRIAL INFORMATION, LOCAL SUPPORT SERVICES, PHYSICIAN INFORMATION, ETC. THIS INCLUDES HUNTER HEALTH PROGRAM.

    Expenses $90,935 · Revenue $20,000

  • "N PERSON - THE YEARLY FAMILY FAIR BRINGS MPS II FAMILIES, THE MEDICALCOMMUNITY, EDUCATORS, AND INDUSTRY TOGETHER TO ATTEND SESSIONS ONSUBJECTS IMPORTANT TO THE COMMUNITY. FAMILIES HAVE THE OPPORTUNITY TO TALK WITH INDUSTRY PARTNERS, OTHER SUPPORT ORGANIZATIONS, AND MEET OTHER FAMILIES WHO ARE AFFECTED BY MPS II. HOSTED A MARKET INSIGHTS ROUNDTABLE TO DISCUSS WITH INSURANCE PAYORS THE NEED FOR THEM TO BE PROACTIVE IN HOW THEY WILL HANDLE COVERAGE OF NEWLY FDA APPROVED TREATMENTS FOR MPS II PATIENTS.

    Expenses $454,877 · Grants $13,644

  • HELPING HANDS PROGRAM - THIS PROGRAM IS TO RECOGNIZE FAMILIES THAT ARE DEALING WITH A MAJOR MEDICAL CRISIS WITH THEIR CHILD OR SUPPORT FOR THE DEATH OF A CHILD. PROJECT ALIVE WILL SEND A $50-$100 GIFT CARD FOR FOOD OR GAS TO PROVIDE SMALL RELIEF FOR THIS TIME. WE ALSO SEND FLOWERS FROM THE BOARD TO FUNERALS TO HONOR THE CHILD.

    Expenses $4,609

  • ALL OTHER - ADVOCACY

    Expenses $30,773

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Kyle Underwood

    CHAIR

    Total calculated
    $0
    Hours/week
    2

  • Elia Henriquez

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2

  • Kevin Fuhrmann

    TREASURER

    Total calculated
    $0
    Hours/week
    2

  • Jenn Estevez

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • John Barbour

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Cory Briddle

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Aaron Byzak

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Anne And Jeff Denneen

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Katey Hoffman

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Victor Nwaba

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Ashly Wiebelt

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Daiza Gordon

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Kyrah Jones

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Jeanette Henriquez

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Miriam Pedroza

    DIRECTOR (UNTIL 3/31/25)

    Total calculated
    $0
    Hours/week
    1

  • Kristin McKay

    PRESIDENT

    Total calculated
    $86,240
    From this org
    $86,240
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

  • SOCIETY FOR MUCOPOLYSACHARIDE DISEASES (MPS SOCIETY)

    $31,931

    PHASE II OF THE MPS AIRWAY PROJECT, PUBLICATION PHASE OF INTERNATIONAL CONSENSUS GUIDELINES ON AIRWAY MANAGEMENT.

  • BRIANNA YUND PHD LP-UNIVERSITY OF MN

    $14,084

    PROJECT: COGNITIVE AND SOMATIC OUTCOMES OF HEMATOPOIETIC CELL TRANSPLANTATION FOR HUNTER SYNDROME.

Provenance

Return type
form_990
Tax year
2025
Filed
1 June 2026
IRS schema version
2025v4.1
Source object
202601529349301120

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