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Nonprofiteer
← PROJECT ALIVE

Form 990 for tax year 2024

Filed by PROJECT ALIVE.

Totals

Total revenue
$407,104
Total expenses
$914,008
Contributions and grants received
$315,263
Grants paid
$350,596
Program service revenue
$7,784
Investment income
$80,359
Other revenue
$3,698
Total assets, end of year
$2,316,110
Total liabilities, end of year
$250,657
Net assets or fund balances, end of year
$2,065,453
Program services expenses (Part IX)
$754,224
Management and general expenses
$101,647
Fundraising expenses
$58,137
Program service expenses (Part III)
$754,224

Program services were 82.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $315,263

  • 1g · Noncash contributions included above

    $3,228

  • 2a · Program service revenue: PROGRAM EVENT

    total $7,784 · related or exempt $7,784

  • 3 · Investment income

    total $61,020 · excluded $61,020

  • 7a · Gross sales of assets other than inventory

    securities $394,000

  • 7b · Less cost or other basis and sales expenses

    securities $374,661

  • 7c · Gain or loss

    securities $19,339

  • 7d · Net gain or loss

    total $19,339 · excluded $19,339

  • 10a · Gross sales of inventory

    $5,837

  • 10b · Cost of goods sold

    $2,139

  • 10c · Net income from sales of inventory

    total $3,698 · unrelated business $3,698

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $319,482 · program services $319,482

  • 2 · Grants to domestic individuals

    total $31,114 · program services $31,114

  • 5 · Compensation of officers, directors and key employees

    total $88,292 · program services $33,551 · management and general $22,073 · fundraising $32,668

  • 7 · Other salaries and wages

    total $99,025 · program services $87,630 · management and general $758 · fundraising $10,637

  • 8 · Pension plan contributions

    total $4,040 · program services $2,707 · management and general $404 · fundraising $929

  • 9 · Other employee benefits

    total $10,649 · program services $8,708 · management and general $251 · fundraising $1,690

  • 10 · Payroll taxes

    total $16,177 · program services $10,839 · management and general $1,618 · fundraising $3,720

  • 11b · Fees: legal

    total $2,462 · management and general $2,462

  • 11c · Fees: accounting

    total $10,792 · management and general $10,792

  • 11f · Fees: investment management

    total $2,847 · management and general $2,847

  • 11g · Fees: other

    total $34,576 · program services $24,370 · management and general $10,206

  • 12 · Advertising and promotion

    total $4,666 · program services $4,666

  • 13 · Office expenses

    total $8,572 · program services $1,747 · management and general $6,825

  • 14 · Information technology

    total $13,915 · program services $13,915

  • 16 · Occupancy

    total $3,027 · program services $2,028 · management and general $303 · fundraising $696

  • 17 · Travel

    total $59,434 · program services $40,714 · management and general $13,118 · fundraising $5,602

  • 19 · Conferences, conventions and meetings

    total $9,392 · program services $3,902 · management and general $5,490

  • 23 · Insurance

    total $6,202 · management and general $6,202

  • 24a · Other expenses: PROGRAM EVENT

    total $141,695 · program services $141,695

  • 24b · Other expenses: COMMUNITY ENGAGEMENT

    total $18,746 · program services $18,746

  • 24c · Other expenses: SUBSCRIPTIONS & SOFTWAR

    total $17,179 · program services $8,410 · management and general $6,574 · fundraising $2,195

  • 24d · Other expenses: PROFESSIONAL DEVELOPMEN

    total $8,198 · management and general $8,198

  • 24e · All other expenses

    total $3,526 · management and general $3,526

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $2,584,090 · end of year $1,848,623

  • 3 · Pledges and grants receivable

    end of year $27,311

  • 9 · Prepaid expenses and deferred charges

    end of year $36,148

  • 11 · Investments: publicly traded securities

    end of year $404,028

  • 17 · Accounts payable and accrued expenses

    end of year $250,657

  • 27 · Net assets without donor restrictions

    beginning of year $2,584,090 · end of year $1,863,142

  • 28 · Net assets with donor restrictions

    end of year $202,311

Mission and programs · 2024

Mission

PROJECT ALIVE EXISTS TO FIND A CURE FOR HUNTER SYNDROME THROUGH RESEARCH AND ADVOCACY, AND PROVIDE EDUCATION AND RESOURCES TO THE HUNTER SYNDROME COMMUNITY.

  • RESEARCH GRANTS - PROVIDES FUNDING TO SUPPORT RESEARCH IN THE HUNTER SYNDROME SPACE THAT FILLS CRITICAL GAPS IN CURRENT KNOWLEDGE ACROSS BASIC SCIENCE, CRITICAL CARE AND TRANSLATIONAL THERAPEUTICS TO IMPROVE THE LIVES OF THOSE AFFECTED WITH HUNTER SYNDROME AND THEIR FAMILIES.

    Expenses $333,566 · Grants $333,566

  • FAMILY CASE MANAGEMENT - RECEIVES COMMUNITY ENROLLMENT FORMS FROM FAMILIES, MAKES CONTACT WITH THE ENROLLED FAMILY TO DISCUSS PROGRAMS OFFERED BY PROJECT ALIVE AND ASSISTS IN FINDING NEEDED RESOURCES, I.E.-CLINICAL TRIAL INFORMATION, LOCAL SUPPORT SERVICES, PHYSICIAN INFORMATION, ETC.

    Expenses $221,780

  • IN PERSON - THE YEARLY FAMILY FAIR BRINGS MPS II FAMILIES, THE MEDICAL COMMUNITY, EDUCATORS, AND INDUSTRY TOGETHER TO ATTEND SESSIONS ON SUBJECTS IMPORTANT TO THE COMMUNITY. FAMILIES HAVE THE OPPORTUNITY TO TALK WITH INDUSTRY PARTNERS, OTHER SUPPORT ORGANIZATIONS, AND MEET OTHER FAMILIES WHO ARE AFFECTED BY MPS II.

    Expenses $194,143 · Grants $17,030 · Revenue $7,784

  • HELPING HANDS PROGRAM - THIS PROGRAM IS TO RECOGNIZE FAMILIES THAT ARE DEALING WITH A MAJOR MEDICAL CRISIS WITH THEIR CHILD OR SUPPORT FOR THE DEATH OF A CHILD. PROJECT ALIVE WILL SEND A $50-$100 GIFT CARD FOR FOOD OR GAS TO PROVIDE SMALL RELIEF FOR THIS TIME. WE ALSO SEND FLOWERS FROM THE BOARD TO FUNERALS TO HONOR THE CHILD.

    Expenses $4,735

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Andrew Hoffman

    CHAIR

    Total calculated
    $0
    Hours/week
    2

  • Kyle Underwood

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2

  • Jeanette Henriquez

    TREASURER

    Total calculated
    $0
    Hours/week
    2

  • Julie David Ferullo

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • John Barbour

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Cory Blain

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Jenn Estevez

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Kevin Fuhrmann

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Daiza Gordon

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Nathan Grant

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Adam Haas

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Kyrah Jones

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Miriam Pedroza

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Ashly Wiebelt

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Kristin McKay

    PRESIDENT

    Total calculated
    $88,293
    From this org
    $82,870
    From related orgs
    $0
    Other
    $5,423
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2024
Filed
27 October 2025
IRS schema version
2024v5.2
Source object
202503019349300135

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