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Nonprofiteer
← THALASSEMIA FOUNDATION OF AMERICA INC

Form 990 for tax year 2024

Filed by THALASSEMIA FOUNDATION OF AMERICA INC.

Totals

Total revenue
$3,550,630
Total expenses
$2,296,214
Contributions and grants received
$3,024,305
Grants paid
$250,000
Program service revenue
$0
Investment income
$240,226
Other revenue
$286,099
Total assets, end of year
$7,568,909
Total liabilities, end of year
$657,493
Net assets or fund balances, end of year
$6,911,416
Program services expenses (Part IX)
$1,727,824
Management and general expenses
$249,793
Fundraising expenses
$318,597
Program service expenses (Part III)
$1,727,824

Program services were 75.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1e · Government grants (contributions)

    $215,579

  • 1f · All other contributions, gifts and grants

    $2,808,726

  • 3 · Investment income

    total $240,226 · related or exempt $240,226

  • 11a · Other revenue: FEDERAL TAX CREDITS

    total $286,099 · related or exempt $286,099

  • 11e · Other revenue, total

    $286,099

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $250,000 · program services $250,000

  • 7 · Other salaries and wages

    total $792,824 · program services $497,898 · management and general $67,423 · fundraising $227,503

  • 8 · Pension plan contributions

    total $15,169 · program services $11,858 · management and general $1,952 · fundraising $1,359

  • 10 · Payroll taxes

    total $151,214 · program services $96,737 · management and general $17,623 · fundraising $36,854

  • 11c · Fees: accounting

    total $121,243 · management and general $121,243

  • 11d · Fees: lobbying

    total $96,000 · program services $96,000

  • 11g · Fees: other

    total $496,277 · program services $487,355 · management and general $4,642 · fundraising $4,280

  • 13 · Office expenses

    total $231,188 · program services $192,744 · management and general $14,875 · fundraising $23,569

  • 16 · Occupancy

    total $107,796 · program services $68,990 · management and general $16,864 · fundraising $21,942

  • 19 · Conferences, conventions and meetings

    total $16,966 · program services $16,966

  • 22 · Depreciation, depletion and amortization

    total $10,039 · program services $4,776 · management and general $3,672 · fundraising $1,591

  • 23 · Insurance

    total $7,498 · program services $4,500 · management and general $1,499 · fundraising $1,499

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $2,605,306 · end of year $5,253,896

  • 2 · Savings and temporary cash investments

    beginning of year $1,306,459 · end of year $506,263

  • 3 · Pledges and grants receivable

    beginning of year $196,070 · end of year $386,982

  • 4 · Accounts receivable

    beginning of year $52,500 · end of year $52,500

  • 9 · Prepaid expenses and deferred charges

    beginning of year $354,965 · end of year $218,546

  • 10a · Land, buildings and equipment: cost or other basis

    $364,507

  • 10b · Land, buildings and equipment: accumulated depreciation

    $348,000

  • 10c · Land, buildings and equipment, net

    beginning of year $16,535 · end of year $16,507

  • 15 · Other assets

    beginning of year $1,845,161 · end of year $1,134,215

  • 17 · Accounts payable and accrued expenses

    beginning of year $34,657 · end of year $80,929

  • 19 · Deferred revenue

    beginning of year $206,122 · end of year $182,792

  • 25 · Other liabilities

    beginning of year $479,217 · end of year $393,772

  • 27 · Net assets without donor restrictions

    beginning of year $5,065,637 · end of year $6,167,158

  • 28 · Net assets with donor restrictions

    beginning of year $591,363 · end of year $744,258

Mission and programs · 2024

Mission

TO ENHANCE THE QUALITY OF PATIENTS' LIVES WHILE TAKING THE NECESSARY STEPS TOWARD FINDING A CURE FOR THIS FATAL BLOOD DISEASE.

  • RESARCH GRANTS - PAYMENTS FOR MEDICAL RESEARCH TO ENHANCE KNOWLEDGE IN TREATMENT AND EVENTUAL CURE.

    Expenses $337,511 · Grants $250,000

  • PUBLIC INFORMATION - GENERAL INFORMATION FOR THE GENERAL PUBLIC: FILMS, BROCHURES, AND LEGISLATIVE SYMPOSIUM FOR THE MEDICAL PROFESSION.

    Expenses $359,841

  • PATIENT SERVICES - BLOOD FOR PATIENTS AND DIRECT PATIENT AID.

    Expenses $948,485

  • TO ENHANCE THE QUALITY OF PATIENTS LIVES WHILE TAKING THE NECESSARY STEPS TOWARDS FINDING A CURE.

    Expenses $81,987

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Craig Butler

    EXECUTIVE DI

    Total calculated
    $163,942
    From this org
    $163,942
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $163,942
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $163,942

  • Amy Sullivan

    MAJOR GIFTS

    Total calculated
    $105,000
    From this org
    $105,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Carmine Abruzzo

    DIRECTOR

    Total calculated
    $0

  • Yasmeen Anis-Shah

    DIRECTOR

    Total calculated
    $0

  • Tracy Antonelli

    DIRECTOR

    Total calculated
    $0

  • Cammie Brandofino

    DIRECTOR

    Total calculated
    $0

  • Nunzio Cazzetta

    DIRECTOR

    Total calculated
    $0

  • Amy Celento

    DIRECTOR

    Total calculated
    $0

  • Julia Cenzaprano

    DIRECTOR

    Total calculated
    $0

  • Mary Ann Cervoni-Iaia

    DIRECTOR

    Total calculated
    $0

  • Jennie Rose Chieco

    DIRECTOR

    Total calculated
    $0

  • Peter Chieco

    DIRECTOR

    Total calculated
    $0

  • Michelle Chieco-Lenz

    DIRECTOR

    Total calculated
    $0

  • Sarah Baqueri Connolly

    DIRECTOR

    Total calculated
    $0

  • Terri Difillipo

    DIRECTOR

    Total calculated
    $0

  • Robert Ficarra

    DIRECTOR

    Total calculated
    $0

  • Josephine Flood

    DIRECTOR

    Total calculated
    $0

  • Frank Fusaro

    DIRECTOR

    Total calculated
    $0

  • Amnish Goel

    DIRECTOR

    Total calculated
    $0

  • Dean Hernan

    DIRECTOR

    Total calculated
    $0

  • Christine Horton

    DIRECTOR

    Total calculated
    $0

  • Ben Li

    DIRECTOR

    Total calculated
    $0

  • John Mancino

    DIRECTOR

    Total calculated
    $0

  • Valerie Mancino

    DIRECTOR

    Total calculated
    $0

  • Steve Milvid

    DIRECTOR

    Total calculated
    $0

  • William Pisano

    DIRECTOR

    Total calculated
    $0

  • Laurie Pizzo

    DIRECTOR

    Total calculated
    $0

  • Paul Polo

    DIRECTOR

    Total calculated
    $0

  • Michael Pouchie

    DIRECTOR

    Total calculated
    $0

  • Michael Presto

    DIRECTOR

    Total calculated
    $0

  • Thomas Rotolo

    DIRECTOR

    Total calculated
    $0

  • Phil Rutigliano

    DIRECTOR

    Total calculated
    $0

  • Pranav Saha

    DIRECTOR

    Total calculated
    $0

  • Maria Saradpon

    DIRECTOR

    Total calculated
    $0

  • Radhika Sawh

    DIRECTOR

    Total calculated
    $0

  • Joseph Sciame

    DIRECTOR

    Total calculated
    $0

  • Frank Somma

    DIRECTOR

    Total calculated
    $0

  • Joseph M Tantillo

    DIRECTOR

    Total calculated
    $0

  • Teresa Tomaino

    DIRECTOR

    Total calculated
    $0

  • Joseph Di Trapani

    DIRECTOR

    Total calculated
    $0

  • James Ventola

    DIRECTOR

    Total calculated
    $0

  • Anthony Viola

    DIRECTOR

    Total calculated
    $0

  • Peter Pettinato Vmd

    DIRECTOR

    Total calculated
    $0

  • Tom Watral

    DIRECTOR

    Total calculated
    $0

  • Joseph Zuraw

    DIRECTOR

    Total calculated
    $0

  • Janice Cenzaprano

    TREASURER

    Total calculated
    $0

  • Ralph Colasanti

    PRESIDENT

    Total calculated
    $0

  • Maria Hadjidemetriou

    SECRETARY

    Total calculated
    $0

  • Dr Janet Kwiatkowski

    MEDICAL ADV

    Total calculated
    $0

  • Joseph Vigliotti

    VICE PRESIDE

    Total calculated
    $0

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

None.

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

  • REGENTS OF THE UNIVERSITY OF CA

    $50,000

  • CHILDRENS HOSPITAL OF PHILADELPHI

    $50,000

  • LINDSLEY F KIMBALL RESEARCH INSTITU NEW YORK BLOOD CENTER

    $50,000

  • BRIGHAM AND WOMENS HOSPITAL

    $50,000

  • UNIVERSITY OF MD

    $50,000

Provenance

Return type
form_990
Tax year
2024
Filed
4 May 2026
IRS schema version
2024v5.0
Source object
202601259349300925

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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