- Revenue 2024
- $3,550,630
- Expenses 2024
- $2,296,214
Program services were 75.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- Classification
- 1000
- Street
- 330 7TH AVE STE 200
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2024
Mission
TO ENHANCE THE QUALITY OF PATIENTS' LIVES WHILE TAKING THE NECESSARY STEPS TOWARD FINDING A CURE FOR THIS FATAL BLOOD DISEASE.
-
RESARCH GRANTS - PAYMENTS FOR MEDICAL RESEARCH TO ENHANCE KNOWLEDGE IN TREATMENT AND EVENTUAL CURE.
Expenses $337,511 · Grants $250,000
-
PUBLIC INFORMATION - GENERAL INFORMATION FOR THE GENERAL PUBLIC: FILMS, BROCHURES, AND LEGISLATIVE SYMPOSIUM FOR THE MEDICAL PROFESSION.
Expenses $359,841
-
PATIENT SERVICES - BLOOD FOR PATIENTS AND DIRECT PATIENT AID.
Expenses $948,485
-
TO ENHANCE THE QUALITY OF PATIENTS LIVES WHILE TAKING THE NECESSARY STEPS TOWARDS FINDING A CURE.
Expenses $81,987
As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Craig ButlerCRAIG BUTLER
EXECUTIVE DI
- Total calculated
- $163,942
- From this org
- $163,942
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $163,942
- Bonus
- not reported
- Other
- not reported
- Deferred
- not reported
- Nontaxable benefits
- not reported
- Filer's total
- $163,942
-
Amy SullivanAMY SULLIVAN
MAJOR GIFTS
- Total calculated
- $105,000
- From this org
- $105,000
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Carmine AbruzzoCARMINE ABRUZZO
DIRECTOR
- Total calculated
- $0
-
Yasmeen Anis-ShahYASMEEN ANIS-SHAH
DIRECTOR
- Total calculated
- $0
-
Tracy AntonelliTRACY ANTONELLI
DIRECTOR
- Total calculated
- $0
-
Cammie BrandofinoCAMMIE BRANDOFINO
DIRECTOR
- Total calculated
- $0
-
Nunzio CazzettaNUNZIO CAZZETTA
DIRECTOR
- Total calculated
- $0
-
Amy CelentoAMY CELENTO
DIRECTOR
- Total calculated
- $0
-
Julia CenzapranoJULIA CENZAPRANO
DIRECTOR
- Total calculated
- $0
-
Mary Ann Cervoni-IaiaMARY ANN CERVONI-IAIA
DIRECTOR
- Total calculated
- $0
-
Jennie Rose ChiecoJENNIE ROSE CHIECO
DIRECTOR
- Total calculated
- $0
-
Peter ChiecoPETER CHIECO
DIRECTOR
- Total calculated
- $0
-
Michelle Chieco-LenzMICHELLE CHIECO-LENZ
DIRECTOR
- Total calculated
- $0
-
Sarah Baqueri ConnollySARAH BAQUERI CONNOLLY
DIRECTOR
- Total calculated
- $0
-
Terri DifillipoTERRI DIFILLIPO
DIRECTOR
- Total calculated
- $0
-
Robert FicarraROBERT FICARRA
DIRECTOR
- Total calculated
- $0
-
Josephine FloodJOSEPHINE FLOOD
DIRECTOR
- Total calculated
- $0
-
Frank FusaroFRANK FUSARO
DIRECTOR
- Total calculated
- $0
-
Amnish GoelAMNISH GOEL
DIRECTOR
- Total calculated
- $0
-
Dean HernanDEAN HERNAN
DIRECTOR
- Total calculated
- $0
-
Christine HortonCHRISTINE HORTON
DIRECTOR
- Total calculated
- $0
-
Ben LiBEN LI
DIRECTOR
- Total calculated
- $0
-
John MancinoJOHN MANCINO
DIRECTOR
- Total calculated
- $0
-
Valerie MancinoVALERIE MANCINO
DIRECTOR
- Total calculated
- $0
-
Steve MilvidSTEVE MILVID
DIRECTOR
- Total calculated
- $0
The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $3,550,630
- Expenses
- $2,296,214
- Contributions
- $3,024,305
- Grants paid
- $250,000
-
2023
- Revenue
- $2,812,580
- Expenses
- $2,224,356
- Contributions
- $2,573,054
- Grants paid
- $200,000
-
2022
- Revenue
- $2,306,555
- Expenses
- $2,165,404
- Contributions
- $2,284,539
- Grants paid
- $100,000
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $3,029,482
- Expenses
- $1,903,459
- Assets (EOY)
- $5,144,098
-
2020 · 990
- Revenue
- $1,565,758
- Expenses
- $1,703,072
- Assets (EOY)
- $4,659,141
-
2019 · 990
- Revenue
- $1,066,981
- Expenses
- $2,173,442
- Assets (EOY)
- $4,652,443
-
2018 · 990
- Revenue
- $2,248,215
- Expenses
- $2,099,709
- Assets (EOY)
- $5,160,832
-
2017 · 990
- Revenue
- $3,491,342
- Expenses
- $1,949,379
- Assets (EOY)
- $4,960,002
-
2017 · 990
- Revenue
- $3,491,342
- Expenses
- $1,949,379
- Assets (EOY)
- $4,960,002
-
2016 · 990
- Revenue
- $2,541,590
- Expenses
- $1,692,000
- Assets (EOY)
- $3,695,115
-
2015 · 990
- Revenue
- $2,114,602
- Expenses
- $1,733,931
- Assets (EOY)
- $2,565,824
-
2014 · 990
- Revenue
- $1,810,249
- Expenses
- $1,755,137
- Assets (EOY)
- $2,300,519
-
2013 · 990
- Revenue
- $1,839,561
- Expenses
- $1,771,796
- Assets (EOY)
- $2,218,192
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
-
NEW YORK BLOOD CENTER
$50,000
2023
-
BOSTON MEDICAL CENTER CORP
$50,000
2023
-
REGENTS OF THE UNIVERSITY OF CA
$50,000
2023
-
REGENTS OF THE UNIVERSITY OF CA
$50,000
2024
-
CHILDRENS HOSPITAL OF PHILADELPHI
$50,000
2024
-
LINDSLEY F KIMBALL RESEARCH INSTITU NEW YORK BLOOD CENTER
$50,000
2024
-
BRIGHAM AND WOMENS HOSPITAL
$50,000
2024
-
UNIVERSITY OF MD
$50,000
2024
-
CLEVELAND STATE UNIVERSITY
$50,000
2022
-
NEW YORK BLOOD CENTER
$50,000
2022
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
2023 GENERAL SUPPORT
-
2024 GENERAL SUPPORT
-
2022 GENERAL SUPPORT
-
2022 Humanitarian
-
2025
-
$38,650
2024 HEALTH
-
2023 Humanitarian
-
2024
-
CHARITIES AID FOUNDATION AMERICA
$22,045
2024 CHARITABLE DONATION
-
2022
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.