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THALASSEMIA FOUNDATION OF AMERICA INC

EIN 11-1971539 NEW YORK, NY

Browse the largest nonprofits in New York

Revenue 2024
$3,550,630
Expenses 2024
$2,296,214

Program services were 75.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
Classification
1000
Street
330 7TH AVE STE 200

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

TO ENHANCE THE QUALITY OF PATIENTS' LIVES WHILE TAKING THE NECESSARY STEPS TOWARD FINDING A CURE FOR THIS FATAL BLOOD DISEASE.

  • RESARCH GRANTS - PAYMENTS FOR MEDICAL RESEARCH TO ENHANCE KNOWLEDGE IN TREATMENT AND EVENTUAL CURE.

    Expenses $337,511 · Grants $250,000

  • PUBLIC INFORMATION - GENERAL INFORMATION FOR THE GENERAL PUBLIC: FILMS, BROCHURES, AND LEGISLATIVE SYMPOSIUM FOR THE MEDICAL PROFESSION.

    Expenses $359,841

  • PATIENT SERVICES - BLOOD FOR PATIENTS AND DIRECT PATIENT AID.

    Expenses $948,485

  • TO ENHANCE THE QUALITY OF PATIENTS LIVES WHILE TAKING THE NECESSARY STEPS TOWARDS FINDING A CURE.

    Expenses $81,987

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Craig Butler

    EXECUTIVE DI

    Total calculated
    $163,942
    From this org
    $163,942
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $163,942
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $163,942
  • Amy Sullivan

    MAJOR GIFTS

    Total calculated
    $105,000
    From this org
    $105,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40
  • Carmine Abruzzo

    DIRECTOR

    Total calculated
    $0
  • Yasmeen Anis-Shah

    DIRECTOR

    Total calculated
    $0
  • Tracy Antonelli

    DIRECTOR

    Total calculated
    $0
  • Cammie Brandofino

    DIRECTOR

    Total calculated
    $0
  • Nunzio Cazzetta

    DIRECTOR

    Total calculated
    $0
  • Amy Celento

    DIRECTOR

    Total calculated
    $0
  • Julia Cenzaprano

    DIRECTOR

    Total calculated
    $0
  • Mary Ann Cervoni-Iaia

    DIRECTOR

    Total calculated
    $0
  • Jennie Rose Chieco

    DIRECTOR

    Total calculated
    $0
  • Peter Chieco

    DIRECTOR

    Total calculated
    $0
  • Michelle Chieco-Lenz

    DIRECTOR

    Total calculated
    $0
  • Sarah Baqueri Connolly

    DIRECTOR

    Total calculated
    $0
  • Terri Difillipo

    DIRECTOR

    Total calculated
    $0
  • Robert Ficarra

    DIRECTOR

    Total calculated
    $0
  • Josephine Flood

    DIRECTOR

    Total calculated
    $0
  • Frank Fusaro

    DIRECTOR

    Total calculated
    $0
  • Amnish Goel

    DIRECTOR

    Total calculated
    $0
  • Dean Hernan

    DIRECTOR

    Total calculated
    $0
  • Christine Horton

    DIRECTOR

    Total calculated
    $0
  • Ben Li

    DIRECTOR

    Total calculated
    $0
  • John Mancino

    DIRECTOR

    Total calculated
    $0
  • Valerie Mancino

    DIRECTOR

    Total calculated
    $0
  • Steve Milvid

    DIRECTOR

    Total calculated
    $0

The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $3,550,630
    Expenses
    $2,296,214
    Contributions
    $3,024,305
    Grants paid
    $250,000
  • 2023
    Revenue
    $2,812,580
    Expenses
    $2,224,356
    Contributions
    $2,573,054
    Grants paid
    $200,000
  • 2022
    Revenue
    $2,306,555
    Expenses
    $2,165,404
    Contributions
    $2,284,539
    Grants paid
    $100,000

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $3,029,482
    Expenses
    $1,903,459
    Assets (EOY)
    $5,144,098
  • 2020 · 990

    Revenue
    $1,565,758
    Expenses
    $1,703,072
    Assets (EOY)
    $4,659,141
  • 2019 · 990

    Revenue
    $1,066,981
    Expenses
    $2,173,442
    Assets (EOY)
    $4,652,443
  • 2018 · 990

    Revenue
    $2,248,215
    Expenses
    $2,099,709
    Assets (EOY)
    $5,160,832
  • 2017 · 990

    Revenue
    $3,491,342
    Expenses
    $1,949,379
    Assets (EOY)
    $4,960,002
  • 2017 · 990

    Revenue
    $3,491,342
    Expenses
    $1,949,379
    Assets (EOY)
    $4,960,002
  • 2016 · 990

    Revenue
    $2,541,590
    Expenses
    $1,692,000
    Assets (EOY)
    $3,695,115
  • 2015 · 990

    Revenue
    $2,114,602
    Expenses
    $1,733,931
    Assets (EOY)
    $2,565,824
  • 2014 · 990

    Revenue
    $1,810,249
    Expenses
    $1,755,137
    Assets (EOY)
    $2,300,519
  • 2013 · 990

    Revenue
    $1,839,561
    Expenses
    $1,771,796
    Assets (EOY)
    $2,218,192

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

  • NEW YORK BLOOD CENTER

    $50,000

    2023

  • BOSTON MEDICAL CENTER CORP

    $50,000

    2023

  • REGENTS OF THE UNIVERSITY OF CA

    $50,000

    2023

  • REGENTS OF THE UNIVERSITY OF CA

    $50,000

    2024

  • CHILDRENS HOSPITAL OF PHILADELPHI

    $50,000

    2024

  • LINDSLEY F KIMBALL RESEARCH INSTITU NEW YORK BLOOD CENTER

    $50,000

    2024

  • BRIGHAM AND WOMENS HOSPITAL

    $50,000

    2024

  • UNIVERSITY OF MD

    $50,000

    2024

  • CLEVELAND STATE UNIVERSITY

    $50,000

    2022

  • NEW YORK BLOOD CENTER

    $50,000

    2022

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.