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← CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION

Form 990 for tax year 2023

Filed by CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION.

Totals

Total revenue
$3,146,217
Total expenses
$3,449,342
Contributions and grants received
$2,401,347
Grants paid
$373,923
Program service revenue
$669,258
Investment income
$70,749
Other revenue
$4,863
Total assets, end of year
$2,028,346
Total liabilities, end of year
$1,142,979
Net assets or fund balances, end of year
$885,367
Program services expenses (Part IX)
$1,621,462
Management and general expenses
$1,420,269
Fundraising expenses
$407,611
Program service expenses (Part III)
$1,621,462

Program services were 47.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $0

  • 1b · Membership dues

    $0

  • 1c · Fundraising events

    $7,500

  • 1d · Related organizations

    $0

  • 1e · Government grants (contributions)

    $90,394

  • 1f · All other contributions, gifts and grants

    $2,303,453

  • 1g · Noncash contributions included above

    $0

  • 2a · Program service revenue: Corporate Advisory Board

    total $640,000 · related or exempt $0 · unrelated business $0 · excluded $640,000

  • 2b · Program service revenue: Peer Support Program Webinars

    total $29,258 · related or exempt $29,258 · unrelated business $0 · excluded $0

  • 2f · All other program service revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 3 · Investment income

    total $70,749 · related or exempt $70,749 · unrelated business $0 · excluded $0

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 5 · Royalties

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 6a · Gross rents

    real property $0 · personal property $0

  • 6b · Less rental expenses

    real property $0 · personal property $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 6d · Net rental income or loss

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 7a · Gross sales of assets other than inventory

    securities $0 · other assets $0

  • 7b · Less cost or other basis and sales expenses

    securities $0 · other assets $0

  • 7c · Gain or loss

    securities $0 · other assets $0

  • 7d · Net gain or loss

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 8a · Fundraising events: gross income

    $0

  • 8a · Fundraising events: contributions included on line 1c

    $7,500

  • 8b · Fundraising events: direct expenses

    $0

  • 8c · Net income from fundraising events

    total $0 · unrelated business $0 · excluded $0

  • 9a · Gaming: gross income

    $0

  • 9b · Gaming: direct expenses

    $0

  • 9c · Net income from gaming

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 10a · Gross sales of inventory

    $0

  • 10b · Cost of goods sold

    $0

  • 10c · Net income from sales of inventory

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 11d · All other revenue

    total $4,863 · related or exempt $4,863 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $4,863

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $372,923 · program services $372,923

  • 2 · Grants to domestic individuals

    total $1,000 · program services $1,000

  • 3 · Grants to foreign organizations and individuals

    total $0 · program services $0

  • 4 · Benefits paid to or for members

    total $0 · program services $0

  • 5 · Compensation of officers, directors and key employees

    total $656,734 · program services $46,119 · management and general $557,632 · fundraising $52,983

  • 6 · Compensation of disqualified persons

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 7 · Other salaries and wages

    total $1,076,030 · program services $399,707 · management and general $426,974 · fundraising $249,349

  • 8 · Pension plan contributions

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 9 · Other employee benefits

    total $45,981 · program services $16,900 · management and general $18,143 · fundraising $10,938

  • 10 · Payroll taxes

    total $22,923 · program services $8,425 · management and general $9,045 · fundraising $5,453

  • 11a · Fees: management

    total $30,597 · program services $7,707 · management and general $17,325 · fundraising $5,565

  • 11b · Fees: legal

    total $39,747 · program services $4,665 · management and general $35,082 · fundraising $0

  • 11c · Fees: accounting

    total $24,448 · program services $0 · management and general $24,448 · fundraising $0

  • 11d · Fees: lobbying

    total $114,000 · program services $114,000 · management and general $0 · fundraising $0

  • 11e · Fees: professional fundraising services

    total $0 · fundraising $0

  • 11f · Fees: investment management

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11g · Fees: other

    total $557,075 · program services $460,491 · management and general $79,045 · fundraising $17,539

  • 12 · Advertising and promotion

    total $10,298 · program services $3,042 · management and general $3,833 · fundraising $3,423

  • 13 · Office expenses

    total $11,483 · program services $499 · management and general $8,546 · fundraising $2,438

  • 14 · Information technology

    total $189,518 · program services $104,748 · management and general $56,545 · fundraising $28,225

  • 15 · Royalties

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 16 · Occupancy

    total $50,302 · program services $17,829 · management and general $21,543 · fundraising $10,930

  • 17 · Travel

    total $170,054 · program services $40,761 · management and general $112,953 · fundraising $16,340

  • 18 · Travel or entertainment for public officials

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 19 · Conferences, conventions and meetings

    total $6,949 · program services $5,179 · management and general $1,500 · fundraising $270

  • 20 · Interest

    total $1,650 · program services $0 · management and general $1,650 · fundraising $0

  • 21 · Payments to affiliates

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 22 · Depreciation, depletion and amortization

    total $17,915 · program services $3,059 · management and general $10,719 · fundraising $4,137

  • 23 · Insurance

    total $9,613 · program services $0 · management and general $9,592 · fundraising $21

  • 24a · Other expenses: Bad Debt Expense

    total $25,000 · program services $0 · management and general $25,000 · fundraising $0

  • 24b · Other expenses: Dues & Subscriptions

    total $5,625 · program services $4,931 · management and general $694 · fundraising $0

  • 24c · Other expenses: Digital Access Equipment

    total $9,477 · program services $9,477 · management and general $0 · fundraising $0

  • 24e · All other expenses

    total $0 · program services $0 · management and general $0 · fundraising $0

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $170,536 · end of year $233,234

  • 2 · Savings and temporary cash investments

    beginning of year $1,063,446 · end of year $666,148

  • 3 · Pledges and grants receivable

    beginning of year $954,169 · end of year $411,531

  • 4 · Accounts receivable

    beginning of year $5,907 · end of year $1,300

  • 5 · Loans and receivables from officers and key people

    beginning of year $0 · end of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0 · end of year $0

  • 7 · Other notes and loans receivable

    beginning of year $0 · end of year $0

  • 8 · Inventories for sale or use

    beginning of year $0 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $8,896 · end of year $23,154

  • 10a · Land, buildings and equipment: cost or other basis

    $68,146

  • 10b · Land, buildings and equipment: accumulated depreciation

    $47,829

  • 10c · Land, buildings and equipment, net

    beginning of year $25,987 · end of year $20,317

  • 11 · Investments: publicly traded securities

    beginning of year $446,669 · end of year $493,398

  • 12 · Investments: other securities

    beginning of year $0 · end of year $0

  • 13 · Investments: program-related

    beginning of year $0 · end of year $0

  • 14 · Intangible assets

    beginning of year $0 · end of year $146,511

  • 15 · Other assets

    beginning of year $68,590 · end of year $32,753

  • 17 · Accounts payable and accrued expenses

    beginning of year $290,630 · end of year $460,055

  • 18 · Grants payable

    beginning of year $391,965 · end of year $442,269

  • 19 · Deferred revenue

    beginning of year $158,000 · end of year $125,000

  • 20 · Tax-exempt bond liabilities

    beginning of year $0 · end of year $0

  • 21 · Escrow or custodial account liability

    beginning of year $0 · end of year $0

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 23 · Secured mortgages and notes payable

    beginning of year $0 · end of year $0

  • 24 · Unsecured notes and loans payable

    beginning of year $90,000 · end of year $80,000

  • 25 · Other liabilities

    beginning of year $70,485 · end of year $35,655

  • 27 · Net assets without donor restrictions

    beginning of year $575,013 · end of year $30,996

  • 28 · Net assets with donor restrictions

    beginning of year $1,168,107 · end of year $854,371

Mission and programs · 2023

Mission

The mission of the Child Neurology Foundation is to serve as a collaborative center of education, resources, and support for children and their families living with neurologic conditions, and facilitate connection with medical professionals who care for them. The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support from those dedicated to treatments and cures. Our expanding network of patients and caregivers, volunteers and advocates, researchers and clinicians is committed to helping one another along the path that leads to the best quality of care - and the highest quality of life-for every child.

Activities or mission (Part I)

To serve as a collaborative center of education, resources, and support for children and their families living with neurologic conditions, and facilitate connection with medical professionals who care for them.

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $335,817 · Grants $321,804

  • COMMUNITY SUPPORT AND EDUCATION: In 2023 , CNF provided 47 families with Chromebooks and hotspots to better access telehealth, provided emotional support to over 262 families, reached over 460 clinicians with education, and built collaborations with over 68 other patient advocacy organizations via the Neurology Social Services Network (NSSN). Through the NSSN CNF provides access to local service organizations such as food shelves, transportation assistance, and housing assistance. In 2023, the NSSN processed 300 referrals providing resources across 47 states. In 2023 education program topics included family support, digital access, transition of care, shortening the diagnostic odyssey, care coordination, preventing epilepsy deaths, and clinical trials. CNF also collected insights from families and child neurologists via surveys and focus groups. This information influences the development of CNF programming going forward.

    Expenses $1,285,645 · Grants $52,119 · Revenue $29,258

As filed on the 2023 return. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.

Listed in Part VII

  • Amy Brin Executive Director

    Ex Officio Non-voting Member

    Total calculated
    $655,160
    From this org
    $294,315
    From related orgs
    $0
    Other
    $360,845
    Hours/week
    45

    Schedule J breakdown matched by us

    Base
    $256,364
    Bonus
    $37,500
    Other
    $450
    Deferred
    $339,101
    Nontaxable benefits
    $21,744
    Filer's total
    $655,159

  • Breanna McCormley Former

    Director of Development

    Total calculated
    $153,693
    From this org
    $139,623
    From related orgs
    $0
    Other
    $14,070
    Hours/week
    45

  • Dr Amaris Sanchez Larragoity

    Director

    Total calculated
    $0
    Hours/week
    1

  • Dr Donald Pearl

    Director

    Total calculated
    $0
    Hours/week
    1

  • Dr John Millichap

    Director

    Total calculated
    $0
    Hours/week
    1

  • Dr Madeline Chadehumbe

    Director

    Total calculated
    $0
    Hours/week
    1

  • Dr Rebecca Schultz

    Director

    Total calculated
    $0
    Hours/week
    1

  • Dr Sonika Agarwal

    Director

    Total calculated
    $0
    Hours/week
    1

  • Dr Bruce Cohen

    Ex Officio Child Neurology Society Past President

    Total calculated
    $0
    Hours/week
    1

  • Dr Peter Kang

    Ex Officio Child Neurology Society President

    Total calculated
    $0
    Hours/week
    1

  • Monique Terrell

    Ex Officio Child Neurology Society Executive Director Non-voting Member

    Total calculated
    $0
    Hours/week
    1

  • Dr Mary Zupanc

    Ex Officio Honorary Director Non-voting member

    Total calculated
    $0
    Hours/week
    1

  • Dr W Donald Shields

    Ex Officio Honorary Director Non-voting member

    Total calculated
    $0
    Hours/week
    1

  • Stephen Peters

    President

    Total calculated
    $0
    Hours/week
    7

  • Dr M Scott Perry

    President Elect

    Total calculated
    $0
    Hours/week
    3

  • Dr Ann Tilton

    Past President

    Total calculated
    $0
    Hours/week
    3

  • Dr Shaun Hussain

    Secretary

    Total calculated
    $0
    Hours/week
    2

  • Timothy Engel

    Treasurer

    Total calculated
    $0
    Hours/week
    2

  • Dr Anup Patel

    Former President

    Total calculated
    $0
    Hours/week
    5

  • Dr Scott Pomeroy

    Former Past-President

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 1a · Health or social club dues or initiation fees
  • 1b · Written policy on the line-1a expenses
  • 2 · Substantiation required before reimbursing expenses
  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 4a · Severance or change-of-control payment
  • 7 · Other non-fixed payments

Answered no

  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

Schedule J, Part I, Line 1a
In 2023 the Foundation provided the Executive Director with the benefit of Delta Skyclub Membership. Receipts were required to substantiate the expense.
Schedule J, Part I, Line 3
Child Neurology Foundation contracted with TriNet, a cloud-based professional employer organization (PEO), and all employees of the CNF are co-employees with TriNet. The CNF's Board of Directors is responsible for hiring and setting the compensation of the Executive Director. The Board employs procedures including: a separate compensation committee, use of a compensation survey/study, review of other organization's 990s, and no involvement of persons with conflict of interest. The Board last set compensation in 2023.
Schedule J, Part I, Line 4
The Executive Director Amy Brin signed a resignation contract in late 2023 with the Board of Directors which included severance pay to be distributed after the negotiated final date of employment March 1, 2024. The severance package is accrued in the Foundation's 2023 personnel expenses as well as included in Part VII, Column F "Other Compensation" as well as in Schedule J, Column C "Retirement and other deferred compensation".
Schedule J, Part I, Line 7
All Foundation staff are eligible for an annual bonus, typically paid in January for the prior year's work. The 2022 bonus paid in 2023 is reflected in part B column ii. There is no 2023 deferred bonus included in Column C. Similarly, on Part VII, the 2022 bonus paid in 2023 is included in column D, and there is no deferred bonus for 2023 included in Column F. The Board Compensation Committee determines the bonus of the Executive Director based on the year end performance review. The Executive Director determines staff eligibility based on annual performance reviews. No 2023 bonuses were awarded.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
15 November 2024
IRS schema version
2023v5.0
Source object
202413209349302816

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