- Revenue 2024
- $1,263,681
- Expenses 2024
- $1,885,833
Program services were 48.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H50
- Classification
- 8000
- Street
- 3300 COVERED WAGON ESTATES LN
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Amy Brin Jan - Feb
Executive Director
- Total calculated
- $325,921
- From this org
- $312,275
- From related orgs
- $0
- Other
- $13,646
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $0
- Bonus
- $0
- Other
- $312,275
- Deferred
- $7,712
- Nontaxable benefits
- $5,934
- Filer's total
- $325,921
-
Lindsey Taveren Jul - Dec
Interim Executive Director
- Total calculated
- $158,436
- From this org
- $113,844
- From related orgs
- $0
- Other
- $44,592
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $113,789
- Bonus
- $0
- Other
- $55
- Deferred
- $8,167
- Nontaxable benefits
- $36,425
- Filer's total
- $158,436
-
Allyson Eyermann
Deputy Director
- Total calculated
- $148,779
- From this org
- $121,718
- From related orgs
- $0
- Other
- $27,061
- Hours/week
- 40
-
Breanna McCormley Mar - Jul
Interim Executive Director
- Total calculated
- $99,870
- From this org
- $76,190
- From related orgs
- $0
- Other
- $23,680
- Hours/week
- 40
-
Dr Donald Pearl
Director
- Total calculated
- $0
- Hours/week
- 2
-
Dr Alison Christy
Director
- Total calculated
- $0
- Hours/week
- 1
-
Dr Geetanjali Rathore
Director
- Total calculated
- $0
- Hours/week
- 2
-
Jason Schmidt
Director
- Total calculated
- $0
- Hours/week
- 2
-
Jason Vinson
Director
- Total calculated
- $0
- Hours/week
- 0.5
-
Dr Madeline Chadehumbe
Director
- Total calculated
- $0
- Hours/week
- 2
-
Dr Sonika Agarwal
Director
- Total calculated
- $0
- Hours/week
- 2
-
Tristin West
Director
- Total calculated
- $0
- Hours/week
- 2
-
Dr Peter Kang
Ex Officio Child Neurology Society President
- Total calculated
- $0
- Hours/week
- 0.5
-
Dr Yasmin Khakoo
Ex Officio Child Neurology Society President Elect
- Total calculated
- $0
- Hours/week
- 4
-
Monique Terrell
Ex Officio Child Neurology Society Executive Director Non-voting Member
- Total calculated
- $0
- Hours/week
- 0.25
-
Dr Mary Zupanc
Ex Officio Honorary Director Non-voting member
- Total calculated
- $0
- Hours/week
- 4
-
Dr W Donald Shields
Ex Officio Honorary Director Non-voting member
- Total calculated
- $0
- Hours/week
- 2
-
Stephen Peters
President
- Total calculated
- $0
- Hours/week
- 5
-
Dr M Scott Perry
President Elect
- Total calculated
- $0
- Hours/week
- 4
-
Dr Ann Tilton
Past President
- Total calculated
- $0
- Hours/week
- 2
-
Dr John Millichap
Secretary
- Total calculated
- $0
- Hours/week
- 2
-
Dr Rebecca Schultz Feb - Dec
Treasurer
- Total calculated
- $0
- Hours/week
- 2
-
Dr Amaris Sanchez Larragoity
Director
- Total calculated
- $0
- Hours/week
- 2
-
Dr Shaun Hussain
Secretary
- Total calculated
- $0
- Hours/week
- 2
-
Timothy Engel Jan
Treasurer
- Total calculated
- $0
- Hours/week
- 0
The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $1,263,681
- Expenses
- $1,885,833
- Contributions
- $636,334
- Grants paid
- $245,738
-
2023
- Revenue
- $3,146,217
- Expenses
- $3,449,342
- Contributions
- $2,401,347
- Grants paid
- $373,923
-
2022
- Revenue
- $1,869,480
- Expenses
- $3,680,696
- Contributions
- $1,169,746
- Grants paid
- $481,375
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
-
2022 2023 PERF Grant - $150,000; 2023 Transition of Care Quality Improvement Grant - $25,000
-
$150,000
2022 2023 PERF Grant - $150,000
-
2023 2023 PERF Grant - $150,000
-
$150,000
2023 2023 PERF Grant - $150,000
-
2022 2022 Infantile Spasms Awareness Network Governance Grant - $36,375; 2022 Infantile Spasms Awareness Week Grant - $5,000
-
$31,000
2022 2022 Unrestricted Symposium Grant - $30,000; Dodge Research Grant Contribution - $1,000
-
2024 2023 Quality Improvement Grants Continued - $25000
-
2023 2023 Quality Improvement Grant
-
2022 2022 Transition of Care Quality Improvement Grant
-
$19,000
2024 2024 Swaiman Scholarship - $6000; 2024 Quality Improvement Transition of Care Grant - $13000
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
CHARITIES AID FOUNDATION AMERICA
$10,000
2022 CHARITABLE DONATION
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.