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NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC

EIN 95-3018799 SILVER SPRING, MD

Revenue 2025
$9,807,320
Expenses 2025
$9,133,802

Program services were 79.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G030
Classification
2100
Street
8737 COLESVILLE RD

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • PAUL WAXLAX

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    5 + 1 related

  • BRITTANY SMITH

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    5 + 2 related

  • MARK SPOTTS

    TREASURER

    Total calculated
    $0
    Hours/week
    5

  • KRISTI LENGYEL

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • DEREK BAUER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JULIE BLUM

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • ANGELIQUE BORDEY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • FRANCES BRIONES

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • CHIP BURKHALTER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • LISA CARLTON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • MARK CARROLL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SARA CHIEFFO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • DANIELLE CLARK

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • ANDREW DUFFY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JUIAN GANGOLLI

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • TANJALA GIPSON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JONATHAN GOLDSTEIN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • RICH GOLLUB

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • LISA HENSKE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • LESLEY HOLMES

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SHAFALI JESTE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • DAVID JOHNSTON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2 + 1 related

  • BILL JOSEPH

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JESSICA KREFTING

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • PATROSKI LAWSON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $9,807,320
    Expenses
    $9,133,802
    Contributions
    $6,133,143
    Grants paid
    $1,040,281
  • 2024
    Revenue
    $10,000,895
    Expenses
    $8,660,018
    Contributions
    $7,048,334
    Grants paid
    $730,927
  • 2023
    Revenue
    $10,016,383
    Expenses
    $8,467,648
    Contributions
    $6,747,948
    Grants paid
    $845,292
  • 2023
    Revenue
    $10,016,383
    Expenses
    $8,467,648
    Contributions
    $6,747,948
    Grants paid
    $845,292
  • 2022
    Revenue
    $8,909,542
    Expenses
    $8,063,684
    Contributions
    $7,016,851
    Grants paid
    $1,032,155
  • 2022
    Revenue
    $8,909,542
    Expenses
    $8,063,684
    Contributions
    $7,016,851
    Grants paid
    $1,032,155

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Declared on its 2025 return

Declared as related by

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.