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Nonprofiteer
← NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC

Form 990 for tax year 2025

Filed by NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC.

Totals

Total revenue
$9,807,320
Total expenses
$9,133,802
Contributions and grants received
$6,133,143
Grants paid
$1,040,281
Program services expenses (Part IX)
$7,267,682
Management and general expenses
$632,658
Fundraising expenses
$1,233,462
Program service expenses (Part III)
$7,267,682

Program services were 79.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • PAUL WAXLAX

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    5 + 1 related

  • BRITTANY SMITH

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    5 + 2 related

  • MARK SPOTTS

    TREASURER

    Total calculated
    $0
    Hours/week
    5

  • KRISTI LENGYEL

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • DEREK BAUER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JULIE BLUM

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • ANGELIQUE BORDEY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • FRANCES BRIONES

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • CHIP BURKHALTER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • LISA CARLTON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • MARK CARROLL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SARA CHIEFFO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • DANIELLE CLARK

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • ANDREW DUFFY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JUIAN GANGOLLI

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • TANJALA GIPSON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JONATHAN GOLDSTEIN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • RICH GOLLUB

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • LISA HENSKE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • LESLEY HOLMES

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SHAFALI JESTE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • DAVID JOHNSTON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2 + 1 related

  • BILL JOSEPH

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JESSICA KREFTING

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • PATROSKI LAWSON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • LAURA MARKS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JIM O'HEIR

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • NOOR PANJWANI

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • ANDREW SPERLING

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • VANESSA VAZQUEZ

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • KARI LUTHER ROSBECK

    PRESIDENT & CEO

    Total calculated
    $287,368
    From this org
    $254,957
    From related orgs
    $0
    Other
    $32,411
    Hours/week
    54 + 1 related

    Schedule J breakdown matched by us

    Base
    $227,552
    Bonus
    $27,405
    Other
    $0
    Deferred
    $7,997
    Nontaxable benefits
    $24,414
    Filer's total
    $287,368

  • JAMIE SAYLOR

    CHIEF FINANCIAL OFFICER

    Total calculated
    $148,811
    From this org
    $143,473
    From related orgs
    $0
    Other
    $5,338
    Hours/week
    45 + 3 related

  • STEVEN ROBERDS

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $287,347
    From this org
    $256,275
    From related orgs
    $0
    Other
    $31,072
    Hours/week
    45

    Schedule J breakdown matched by us

    Base
    $229,467
    Bonus
    $26,808
    Other
    $0
    Deferred
    $7,895
    Nontaxable benefits
    $23,177
    Filer's total
    $287,347

  • DEAN RAGER-AGUIAR

    VICE PRESIDENT, TRANSLATIO

    Total calculated
    $225,306
    From this org
    $191,780
    From related orgs
    $0
    Other
    $33,526
    Hours/week
    45

    Schedule J breakdown matched by us

    Base
    $169,526
    Bonus
    $22,254
    Other
    $0
    Deferred
    $6,144
    Nontaxable benefits
    $27,382
    Filer's total
    $225,306

  • LISA MOSS

    VICE PRESIDENT, DONOR RELA

    Total calculated
    $164,847
    From this org
    $136,007
    From related orgs
    $0
    Other
    $28,840
    Hours/week
    45

    Schedule J breakdown matched by us

    Base
    $120,281
    Bonus
    $15,726
    Other
    $0
    Deferred
    $4,401
    Nontaxable benefits
    $24,439
    Filer's total
    $164,847

  • GAIL SAUNDERS

    DIRECTOR, COMMUNITY PROGRAMS

    Total calculated
    $118,717
    From this org
    $103,236
    From related orgs
    $0
    Other
    $15,481
    Hours/week
    45

  • HEATHER RADTKE

    DIRECTOR, CLINICAL PROGRAMS

    Total calculated
    $135,437
    From this org
    $119,764
    From related orgs
    $0
    Other
    $15,673
    Hours/week
    45

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 5a · Pay contingent on this organization's revenues
  • 6a · Pay contingent on this organization's net earnings

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5b · Pay contingent on a related organization's revenues
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 5
KARI LUTHER ROSBECK, STEVE ROBERDS, JAMIE SAYLOR, DEAN RAGER-AGUIAR, GAIL SAUNDERS, HEATHER RADTKE, AND LISA MOSS, ALL HAVE INCENTIVE COMPENSATION EQUAL TO A PERCENTAGE OF THEIR SALARIES BASED ON KEY PERFORMANCE OBJECTIVES AS ESTABLISHED BY THEIR COMPENSATION COMMITTEE.
PART I, LINE 6
KARI LUTHER ROSBECK, STEVE ROBERDS, JAMIE SAYLOR, DEAN RAGER-AGUIAR, GAIL SAUNDERS, HEATHER RADTKE, AND LISA MOSS, ALL HAVE INCENTIVE COMPENSATION EQUAL TO A PERCENTAGE OF THEIR SALARIES BASED ON KEY PERFORMANCE OBJECTIVES AS ESTABLISHED BY THEIR COMPENSATION COMMITTEE.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2025
Filed
23 April 2026
IRS schema version
2025v4.1
Source object
202631139349300018

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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