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Nonprofiteer
← NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC

Form 990 for tax year 2024

Filed by NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC.

Totals

Total revenue
$10,000,895
Total expenses
$8,660,018
Contributions and grants received
$7,048,334
Grants paid
$730,927
Program services expenses (Part IX)
$6,714,704
Management and general expenses
$597,112
Fundraising expenses
$1,348,202
Program service expenses (Part III)
$6,714,704

Program services were 77.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • WILLIAM JOSEPH

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    5

  • PAUL WAXLAX

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    5 + 1 related

  • BRITTANY SMITH

    TREASURER

    Total calculated
    $0
    Hours/week
    5 + 1 related

  • LESLEY HOLMES

    SECRETARY

    Total calculated
    $0
    Hours/week
    5

  • DEREK BAUER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • FRANCES BRIONES

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JULIE BLUM

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • MATT BOLGER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • CHIP BURKHALTER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • LISA CARLTON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • MARK CARROLL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JULIAN GANGOLLI

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • TANJALA GIPSON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JONATHAN GOLDSTEIN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • STEVEN GOLDSTEIN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SHAFALI JESTE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JESSICA KREFTING

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • DARCY KRUEGER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • PATROSKI LAWSON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • KRISTI LENGYEL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • HEATHER LENS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • LAURA MARKS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • MUSTAFA SAHIN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SEAN SHILLINGER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • ANDREW SPERLING

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • MARK SPOTTS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • VANESSA VAZQUEZ

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • KARI LUTHER ROSBECK

    PRESIDENT & CEO

    Total calculated
    $261,894
    From this org
    $229,751
    From related orgs
    $2,321
    Other
    $29,822
    Hours/week
    54 + 1 related

    Schedule J breakdown matched by us

    Base
    $207,898 + $2,100 related
    Bonus
    $21,853 + $221 related
    Other
    $0
    Deferred
    $7,220
    Nontaxable benefits
    $22,602
    Filer's total
    $259,573 + $2,321 related

  • CYNTHIA ARCURI

    CHIEF FINANCIAL OFFICER

    Total calculated
    $201,902
    From this org
    $184,176
    From related orgs
    $9,693
    Other
    $8,033
    Hours/week
    45 + 1 related

    Schedule J breakdown matched by us

    Base
    $166,658 + $8,771 related
    Bonus
    $17,518 + $922 related
    Other
    $0
    Deferred
    $5,814
    Nontaxable benefits
    $2,219
    Filer's total
    $192,209 + $9,693 related

  • STEVEN ROBERDS

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $272,694
    From this org
    $243,817
    From related orgs
    $0
    Other
    $28,877
    Hours/week
    45

    Schedule J breakdown matched by us

    Base
    $221,251
    Bonus
    $22,566
    Other
    $0
    Deferred
    $7,509
    Nontaxable benefits
    $21,368
    Filer's total
    $272,694

  • DEAN RAGER-AGUIAR

    VICE PRESIDENT, TRANSLATIO

    Total calculated
    $214,250
    From this org
    $183,132
    From related orgs
    $0
    Other
    $31,118
    Hours/week
    45

    Schedule J breakdown matched by us

    Base
    $163,575
    Bonus
    $19,557
    Other
    $0
    Deferred
    $5,863
    Nontaxable benefits
    $25,255
    Filer's total
    $214,250

  • LISA MOSS

    VICE PRESIDENT, DONOR RELA

    Total calculated
    $155,908
    From this org
    $129,161
    From related orgs
    $0
    Other
    $26,747
    Hours/week
    45

    Schedule J breakdown matched by us

    Base
    $116,082
    Bonus
    $13,079
    Other
    $0
    Deferred
    $4,178
    Nontaxable benefits
    $22,569
    Filer's total
    $155,908

  • JAYE ISHAM

    CHIEF OUTREACH OFFICER

    Total calculated
    $159,958
    From this org
    $154,028
    From related orgs
    $0
    Other
    $5,930
    Hours/week
    45

    Schedule J breakdown matched by us

    Base
    $140,182
    Bonus
    $13,846
    Other
    $0
    Deferred
    $4,609
    Nontaxable benefits
    $1,321
    Filer's total
    $159,958

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 5a · Pay contingent on this organization's revenues
  • 6a · Pay contingent on this organization's net earnings

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5b · Pay contingent on a related organization's revenues
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 5
KARI LUTHER ROSBECK, STEVE ROBERDS, CYNTHIA ARCURI, DEAN AGUIAR, JAYE ISHAM, AND LISA MOSS, ALL HAVE INCENTIVE COMPENSATION EQUAL TO A PERCENTAGE OF THEIR SALARIES BASED ON KEY PERFORMANCE OBJECTIVES AS ESTABLISHED BY THEIR COMPENSATION COMMITTEE.
PART I, LINE 6
KARI LUTHER ROSBECK, STEVE ROBERDS, CYNTHIA ARCURI, DEAN AGUIAR, JAYE ISHAM, AND LISA MOSS ALL HAVE INCENTIVE COMPENSATION EQUAL TO A PERCENTAGE OF THEIR SALARIES BASED ON KEY PERFORMANCE OBJECTIVES AS ESTABLISHED BY THEIR COMPENSATION COMMITTEE.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2024
Filed
11 April 2025
IRS schema version
2024v5.1
Source object
202531019349300508

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