- Revenue 2025
- $830,459
- Expenses 2025
- $327,936
Program services were 75.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- T30I
- Classification
- 1000
- Street
- 8737 COLESVILLE RD STE 400
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
RITA DIDOMENICO
CHAIR
- Total calculated
- $0
- Hours/week
- 2
-
BRITTANY SMITH
TREASURER
- Total calculated
- $0
- Hours/week
- 2 + 5 related
-
ROBERT GROVES III
SECRETARY
- Total calculated
- $0
- Hours/week
- 2
-
DAVID JOHNSTON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1 + 2 related
-
JIM MAGINN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DARREN MILES
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
LARRY O'FRIEL
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
MARK SCHAENGOLD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
MEGAN SELF
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
PAUL WAXLAX
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1 + 5 related
-
TIM DILLS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
KARI LUTHER ROSBECK
PRESIDENT & CEO
- Total calculated
- $287,368
- From this org
- $0
- From related orgs
- $254,957
- Other
- $32,411
- Hours/week
- 1 + 54 related
Schedule J breakdown matched by us
- Base
- $0 + $227,552 related
- Bonus
- $0 + $27,405 related
- Other
- $0
- Deferred
- $0 + $7,997 related
- Nontaxable benefits
- $0 + $24,414 related
- Filer's total
- $0 + $287,368 related
-
JAMIE SAYLOR
CHIEF FINANCIAL OFFICER
- Total calculated
- $148,811
- From this org
- $0
- From related orgs
- $143,473
- Other
- $5,338
- Hours/week
- 3 + 45 related
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $830,459
- Expenses
- $327,936
- Contributions
- $405,940
- Grants paid
- $246,000
-
2024
- Revenue
- $709,763
- Expenses
- $305,771
- Contributions
- $534,193
- Grants paid
- $239,000
-
2023
- Revenue
- $577,597
- Expenses
- $649,531
- Contributions
- $111,261
- Grants paid
- $572,625
-
2022
- Revenue
- $206,655
- Expenses
- $384,476
- Contributions
- $44,580
- Grants paid
- $308,000
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
-
2023 PROGRAM SUPPORT
-
2022 PROGRAM SUPPORT
-
2025 PROGRAM SUPPORT
-
2024 PROGRAM SUPPORT
Grants received
-
2024 For grant recipient's exempt purposes
-
2022 For grant recipient's exempt purposes
-
2023 For grant recipient's exempt purposes
-
$10,687
2023 UNRESTRICTED
-
2024 GENERAL SUPPORT
Related organizations
From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.
Declared on its 2025 return
-
NATIONAL TUBEROUS SCLEROSIS ASSOCIATION
501 (C)(3) · RESEARCH AND SUPPORT · MD
Declared as related by
-
NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC
On its 2025 return
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility SOUNK.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The IRS Business Master File ingested 5 October 2026, which is when the registration facts above were last refreshed for every organization. Returns through tax year 2025, the newest we have parsed for this organization.