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← NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC

Form 990 for tax year 2023

Filed by NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC.

What the amendment changed

Compared with the return it replaced , filed 12 April 2024. matched by us Only the Part I totals and the names listed in Part VII are compared. We relate returns by organization, tax year and form, and order them by each return's own timestamp; the filer's own "amended return" checkbox is a separate fact.

Both are the same on the two returns, so the amendment changed something else.

Totals

Total revenue
$10,016,383
Total expenses
$8,467,648
Contributions and grants received
$6,747,948
Grants paid
$845,292
Program service revenue
$2,815,353
Investment income
$36,732
Other revenue
$416,350
Total assets, end of year
$16,085,768
Total liabilities, end of year
$2,088,420
Net assets or fund balances, end of year
$13,997,348
Program services expenses (Part IX)
$6,759,393
Management and general expenses
$557,964
Fundraising expenses
$1,150,291
Program service expenses (Part III)
$6,759,393

Program services were 79.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • WILLIAM JOSEPH

    CHAIR

    Total calculated
    $0
    Hours/week
    5

  • PAUL WAXLAX

    VICE-CHAIR

    Total calculated
    $0
    Hours/week
    5 + 1 related

  • BRITTANY SMITH

    TREASURER

    Total calculated
    $0
    Hours/week
    5 + 1 related

  • LESLEY HOLMES

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • PETER CRINO

    IMMEDIATE PAST CHAIR

    Total calculated
    $0
    Hours/week
    2

  • DEREK BAUER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • JULIE BLUM

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • MATT BOLGER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • CHIP BURKHALTER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • LISA CARLTON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • DAVID COIT

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • MARK CARROLL

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • JULIAN GANGOLLI

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • TANJALA GIPSON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • JONATHAN GOLDSTEIN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • STEVEN GOLDSTEIN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • ROB GRANDIA

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • DANA HOLINKA

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • SHAFALI JESTE

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • JESSICA KREFTING

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • DARCY KRUEGER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • PATROSKI LAWSON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • KRISTI LENGYEL

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • HEATHER LENS

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • LAURA MARKS

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • DIANE MCSWAIN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • MUSTAFA SAHIN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • SEAN SHILLINGER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • VANESSA VAZQUEZ

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • TARA ZIMMERMAN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • KARI LUTHER ROSBECK

    PRESIDENT & CEO

    Total calculated
    $255,423
    From this org
    $223,746
    From related orgs
    $2,260
    Other
    $29,417
    Hours/week
    54 + 1 related

    Schedule J breakdown matched by us

    Base
    $201,924 + $2,040 related
    Bonus
    $21,822 + $220 related
    Other
    $0
    Deferred
    $7,012
    Nontaxable benefits
    $22,405
    Filer's total
    $253,163 + $2,260 related

  • CYNTHIA ARCURI

    CHIEF FINANCIAL OFFICER

    Total calculated
    $195,786
    From this org
    $176,989
    From related orgs
    $9,315
    Other
    $9,482
    Hours/week
    42 + 1 related

    Schedule J breakdown matched by us

    Base
    $161,389 + $8,494 related
    Bonus
    $15,600 + $821 related
    Other
    $0
    Deferred
    $5,588
    Nontaxable benefits
    $3,894
    Filer's total
    $186,471 + $9,315 related

  • STEVEN ROBERDS

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $263,771
    From this org
    $237,208
    From related orgs
    $0
    Other
    $26,563
    Hours/week
    45

    Schedule J breakdown matched by us

    Base
    $214,711
    Bonus
    $22,497
    Other
    $0
    Deferred
    $7,291
    Nontaxable benefits
    $19,272
    Filer's total
    $263,771

  • DEAN RAGER-AGUIAR

    VICE PRESIDENT, TRANSLATIONAL RESEARCH

    Total calculated
    $205,816
    From this org
    $177,725
    From related orgs
    $0
    Other
    $28,091
    Hours/week
    45

    Schedule J breakdown matched by us

    Base
    $159,369
    Bonus
    $18,356
    Other
    $0
    Deferred
    $5,660
    Nontaxable benefits
    $22,431
    Filer's total
    $205,816

  • LISA MOSS

    VICE PRESIDENT, DONOR RELATIONS

    Total calculated
    $149,058
    From this org
    $124,914
    From related orgs
    $0
    Other
    $24,144
    Hours/week
    45

  • JAYE ISHAM

    CHIEF OUTREACH OFFICER

    Total calculated
    $142,644
    From this org
    $137,218
    From related orgs
    $0
    Other
    $5,426
    Hours/week
    45

  • ASHLEY POUNDERS

    DIRECTOR OF MEDICAL AFFAIRS

    Total calculated
    $128,448
    From this org
    $115,372
    From related orgs
    $0
    Other
    $13,076
    Hours/week
    45

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 5a · Pay contingent on this organization's revenues
  • 6a · Pay contingent on this organization's net earnings

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5b · Pay contingent on a related organization's revenues
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 5
KARI LUTHER ROSBECK, STEVE ROBERDS, CYNTHIA ARCURI, DEAN AGUIAR, JAYE ISHAM, LISA MOSS, AND ASHLEY POUNDERS ALL HAVE INCENTIVE COMPENSATION EQUAL TO A PERCENTAGE OF THEIR SALARIES BASED ON KEY PERFORMANCE OBJECTIVES AS ESTABLISHED BY THEIR COMPENSATION COMMITTEE.
PART I, LINE 6
KARI LUTHER ROSBECK, STEVE ROBERDS, CYNTHIA ARCURI, DEAN AGUIAR, JAYE ISHAM, LISA MOSS, AND ASHLEY POUNDERS ALL HAVE INCENTIVE COMPENSATION EQUAL TO A PERCENTAGE OF THEIR SALARIES BASED ON KEY PERFORMANCE OBJECTIVES AS ESTABLISHED BY THEIR COMPENSATION COMMITTEE.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2023
Filed
17 September 2024
IRS schema version
2023v5.1
Source object
202432689349301018

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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