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Nonprofiteer
← NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC

Form 990 for tax year 2022

Filed by NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC.

What the amendment changed

Compared with the return it replaced , filed 14 April 2023. matched by us Only the Part I totals and the names listed in Part VII are compared. We relate returns by organization, tax year and form, and order them by each return's own timestamp; the filer's own "amended return" checkbox is a separate fact.

Both are the same on the two returns, so the amendment changed something else.

Totals

Total revenue
$8,909,542
Total expenses
$8,063,684
Contributions and grants received
$7,016,851
Grants paid
$1,032,155
Program services expenses (Part IX)
$6,282,814
Management and general expenses
$647,355
Fundraising expenses
$1,133,515
Program service expenses (Part III)
$6,282,814

Program services were 77.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • PETER CRINO MD PHD

    CHAIR

    Total calculated
    $0
    Hours/week
    5

  • WILLIAM JOSEPH

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    5 + 1 related

  • PAUL WAXLAX

    TREASURER

    Total calculated
    $0
    Hours/week
    5 + 1 related

  • JESSICA KREFTING

    SECRETARY

    Total calculated
    $0
    Hours/week
    5

  • DEREK BAUER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • JULIE BLUM

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • MATT BOLGER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • EDWARD BURKHALTER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • LISA CARLTON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • MARK CARROLL

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • SARA CHIEFFO

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • DAVID COIT

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • MARGARET COX

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • JULIAN GANGOLLI

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • TANJALA GIPSON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • STEVEN GOLDSTEIN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • ROB GRANDIA

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • DANA HOLINKA

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • LESLEY HOLMES

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • DARCY KRUEGER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • PATROSKI LAWSON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • KRISTI LENGYEL

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • HEATHER LENS

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • LAURA MARKS

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • DIANE MCSWAIN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • MUSTAFA SAHIN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • SEAN SHILLINGER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • BRITTANY SMITH

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • VANESSA VAZQUEZ

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • TARA ZIMMERMAN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • KARI LUTHER ROSBECK

    PRESIDENT & CEO

    Total calculated
    $249,382
    From this org
    $217,716
    From related orgs
    $2,756
    Other
    $28,910
    Hours/week
    54 + 1 related

    Schedule J breakdown matched by us

    Base
    $191,956 + $2,430 related
    Bonus
    $25,505 + $323 related
    Other
    $255 + $3 related
    Deferred
    $6,882
    Nontaxable benefits
    $22,028
    Filer's total
    $246,626 + $2,756 related

  • CYNTHIA ARCURI

    CHIEF FINANCIAL OFFICER

    Total calculated
    $167,857
    From this org
    $146,692
    From related orgs
    $11,324
    Other
    $9,841
    Hours/week
    42 + 3 related

    Schedule J breakdown matched by us

    Base
    $142,007 + $10,963 related
    Bonus
    $4,642 + $358 related
    Other
    $43 + $3 related
    Deferred
    $3,199
    Nontaxable benefits
    $6,642
    Filer's total
    $156,533 + $11,324 related

  • RICHARD GOLLUB

    CHIEF FINANCIAL OFFICER

    Total calculated
    $93,619
    From this org
    $80,583
    From related orgs
    $4,241
    Other
    $8,795
    Hours/week
    42 + 3 related

  • STEVEN ROBERDS

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $259,515
    From this org
    $233,206
    From related orgs
    $0
    Other
    $26,309
    Hours/week
    45

    Schedule J breakdown matched by us

    Base
    $206,593
    Bonus
    $26,355
    Other
    $258
    Deferred
    $7,153
    Nontaxable benefits
    $19,156
    Filer's total
    $259,515

  • DEAN RAGER-AGUIAR

    VICE PRESIDENT, TRANSLATIONAL RESEARCH

    Total calculated
    $191,475
    From this org
    $164,261
    From related orgs
    $0
    Other
    $27,214
    Hours/week
    45

    Schedule J breakdown matched by us

    Base
    $153,455
    Bonus
    $10,668
    Other
    $138
    Deferred
    $5,221
    Nontaxable benefits
    $21,993
    Filer's total
    $191,475

  • LISA MOSS

    VICE PRESIDENT, DONOR RELATIONS

    Total calculated
    $146,062
    From this org
    $122,204
    From related orgs
    $0
    Other
    $23,858
    Hours/week
    45

  • JAYE ISHAM

    SENIOR VICE PRESIDENT, STRATEGIC COMMUNICATIONS

    Total calculated
    $138,004
    From this org
    $133,868
    From related orgs
    $0
    Other
    $4,136
    Hours/week
    45

  • APRIL COOPER

    VICE PRESIDENT, COMMUNITY PROGRAMS

    Total calculated
    $139,668
    From this org
    $114,370
    From related orgs
    $0
    Other
    $25,298
    Hours/week
    45

  • ASHLEY POUNDERS

    DIRECTOR OF MEDICAL AFFAIRS

    Total calculated
    $125,495
    From this org
    $111,519
    From related orgs
    $0
    Other
    $13,976
    Hours/week
    45

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 5a · Pay contingent on this organization's revenues
  • 6a · Pay contingent on this organization's net earnings

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5b · Pay contingent on a related organization's revenues
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 5
KARI LUTHER ROSBECK, RICHARD GOLLUB, STEVE ROBERDS, CYNTHIA ARCURI, DEAN AGUIAR, JAYE ISHAM, LISA MOSS, ASHLEY POUNDERS, AND APRIL COOPER ALL HAVE INCENTIVE COMPENSATION EQUAL TO A PERCENTAGE OF THEIR SALARIES BASED ON KEY PERFORMANCE OBJECTIVES AS ESTABLISHED BY THEIR COMPENSATION COMMITTEE.
PART I, LINE 6
KARI LUTHER ROSBECK, RICHARD GOLLUB, STEVE ROBERDS, CYNTHIA ARCURI, DEAN AGUIAR, JAYE ISHAM, LISA MOSS, ASHLEY POUNDERS, AND APRIL COOPER ALL HAVE INCENTIVE COMPENSATION EQUAL TO A PERCENTAGE OF THEIR SALARIES BASED ON KEY PERFORMANCE OBJECTIVES AS ESTABLISHED BY THEIR COMPENSATION COMMITTEE.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2022
Filed
17 September 2024
IRS schema version
2022v5.0
Source object
202432689349300943

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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