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Nonprofiteer
← NATIONAL DOWN SYNDROME CONGRESS

Form 990 for tax year 2025

Filed by NATIONAL DOWN SYNDROME CONGRESS.

Totals

Total revenue
$2,091,467
Total expenses
$1,874,625
Contributions and grants received
$982,801
Grants paid
$42,800
Program service revenue
$903,422
Investment income
$30,980
Other revenue
$174,264
Total assets, end of year
$744,605
Total liabilities, end of year
$173,695
Net assets or fund balances, end of year
$570,910
Program services expenses (Part IX)
$1,464,407
Management and general expenses
$130,171
Fundraising expenses
$280,047
Program service expenses (Part III)
$1,464,407

Program services were 78.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • SEAN SMITH

    PRESIDENT

    Total calculated
    $0
    Hours/week
    10

  • ANTHONY ZANFORDINO

    1ST VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    4

  • BEAU BROOKS

    2ND VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    6

  • NICOLE BAUMER

    3RD VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • ZACHARY CARROLL

    4TH VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • ANDRE PINEDA

    TREASURER

    Total calculated
    $0
    Hours/week
    6

  • DAVID CHAPLIN

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • KISHORE VELLODY

    PAST PRESIDENT

    Total calculated
    $0
    Hours/week
    4

  • BRADLEY CARLISLE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • ANNA EBENSEN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • BETH FORAKER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • HANNAH LACOUR

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • CANDICE MOFFIT

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • JEFF SCOTT

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • NOEMI SPINAZZI

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • CLAIR WALLACE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • JAMES HUDSON

    EXECUTIVE DIRECTOR

    Total calculated
    $193,886
    From this org
    $157,243
    From related orgs
    $0
    Other
    $36,643
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $157,243
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $36,643
    Filer's total
    $193,886

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2025
Filed
4 May 2026
IRS schema version
2025v4.1
Source object
202611259349302006

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