NATIONAL DOWN SYNDROME CONGRESS

As filed

Subsection

03

NTEE code

G25Z

Classification

1200

Street

ATTN FUELED COLLECTIVE 3825 EDWARDS

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

• NDSC RESOURCE CENTER - THE CENTER SERVES AS A NATIONAL RESOURCE FOR PARENTS, PROFESSIONALS, AND OTHERS SEEKING INFORMATION ABOUT DOWN SYNDROME. THESE RESOURCES ARE ACCESSIBLE VIA A TOLL-FREE PHONE NUMBER, THE NDSC WEBSITE, AND THROUGH A ROBUST SOCIAL MEDIA PRESENCE THAT PROVIDES EDUCATION, INFORMATION, AND REFERRALS TO INTERESTED PARTIES. TO ENHANCE EFFORTS IN PROVIDING RELEVANT AND CURRENT INFORMATION, NDSC ALSO HAS AN ACTIVE GOVERNMENT POLICY AND ADVOCACY TEAM. THIS TEAM INFORMS INDIVIDUALS CONNECTED TO THE NDSC COMMUNITY ABOUT CURRENT LEGISLATIVE INITIATIVES RELATED TO DOWN SYNDROME AND OTHER RELEVANT TOPICS. ADDITIONALLY, NDSC PRODUCES MONTHLY ELECTRONIC NEWSLETTERS AND PERIODIC FREE WEBINARS IN ENGLISH AND SPANISH. HOUSED WITHIN THE NATIONAL DOWN SYNDROME CONGRESS CENTER, THE NDSC CENTER FOR OUTREACH AND EDUCATION PROVIDES ONE-DAY SEMINARS AND CONFERENCES FOR PARENTS, SIBLINGS AND EDUCATORS IN VARIOUS LOCATIONS ACROSS THE COUNTRY.

  Expenses $1,015,241 · Grants $42,800 · Revenue $893,485

• ANNUAL CONVENTION - THE CONGRESS HOLDS A CONVENTION EACH YEAR AT A DIFFERENT LOCATION IN THE UNITED STATES TO EDUCATE PARENTS, PROFESSIONALS, AND SELF-ADVOCATES WITH DOWN SYNDROME ON CURRENT TOPICS.

  Expenses $413,585

• DSAIA - THE DSAIA PROGRAM BUILDS A COMMUNITY OF LIKE-MINDED LOCAL LEADERS OF DOWN SYNDROME ORGANIZATIONS BY SHARING BEST PRACTICES, RESOURCES, AND TOOLS TO HELP THEM BETTER RUN THEIR ORGANIZATIONS AT THE LOCAL LEVEL.

  Expenses $35,581 · Revenue $9,937

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

• 2025

  Revenue

  $2,091,467

  Expenses

  $1,874,625

  Contributions

  $982,801

  Grants paid

  $42,800

• 2023

  Revenue

  $1,931,676

  Expenses

  $1,934,348

  Contributions

  $984,736

  Grants paid

  $50,801

• 2022

  Revenue

  $1,401,237

  Expenses

  $1,586,655

  Contributions

  $579,694

  Grants paid

  $34,400

• 2022

  Revenue

  $1,419,457

  Expenses

  $1,502,839

  Contributions

  $786,818

  Grants paid

  $34,400

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990

  Revenue

  $732,155

  Expenses

  $930,611

  Assets (EOY)

  $533,990

• 2020 · 990

  Revenue

  $876,542

  Expenses

  $961,366

  Assets (EOY)

  $765,872

• 2019 · 990

  Revenue

  $1,428,349

  Expenses

  $1,486,527

  Assets (EOY)

  $850,251

• 2018 · 990

  Revenue

  $1,510,081

  Expenses

  $1,294,970

  Assets (EOY)

  $844,071

• 2017 · 990

  Revenue

  $1,136,910

  Expenses

  $1,209,760

  Assets (EOY)

  $678,136

• 2016 · 990

  Revenue

  $1,125,227

  Expenses

  $1,177,561

  Assets (EOY)

  $729,764

• 2015 · 990

  Revenue

  $956,048

  Expenses

  $1,140,090

  Assets (EOY)

  $744,067

• 2014 · 990

  Revenue

  $1,304,746

  Expenses

  $1,123,373

  Assets (EOY)

  $940,966

• 2013 · 990

  Revenue

  $1,042,037

  Expenses

  $1,003,303

  Assets (EOY)

  $790,181

• 2012 · 990

  Revenue

  — not reported

  Expenses

  $996,566

  Assets (EOY)

  $717,457

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

• NDSC FOUNDATION INC

  $23,500

  2022 · FINANCIAL ASSISTANCE

• DOWN SYNDROME AFFILIATES IN ACTION

  $10,000

  2023 · FINANCIAL ASSISTANCE

• GLOBAL DOWN SYNDROME FOUNDATION

  $9,000

  2023 · FINANCIAL ASSISTANCE

• SYRACUSE UNIVERSITY

  $5,100

  2025 · FINANCIAL ASSISTANCE

• UNIVERSITY OF TENNESSEE FOUNDATION

  $5,100

  2025 · FINANCIAL ASSISTANCE

• BERRY COLLEGE

  $5,100

  2025 · FINANCIAL ASSISTANCE

• DOWN SYNDROME DIAGNOSIS NETWORK

  $5,000

  2023 · FINANCIAL ASSISTANCE

Where these grants went next →

Grants received

• AMERICAN ONLINE GIVING FOUNDATION INC

  $27,183

  2024 · GENERAL SUPPORT

• DONOR ADVISED CHARITABLE GIVING

  $20,100

  2024 · HEALTH

• DONOR ADVISED CHARITABLE GIVING

  $14,250

  2023 · HEALTH

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $14,200

  2024 · For grant recipient's exempt purposes

• DOWN SYNDROME DIAGNOSIS NETWORK

  $13,750

  2023 · MEDICAL OUTREACH

• GEORGIA STATE UNIVERSITY FOUNDATION INC

  $10,500

  2023 · OPERATIONS & PROGRAM SUPPORT

• DONOR ADVISED CHARITABLE GIVING

  $10,100

  2022 · HEALTH

• DOWN SYNDROME DIAGNOSIS NETWORK

  $10,000

  2022 · MEDICAL OUTREACH

• AMERICAN ONLINE GIVING FOUNDATION INC

  $0

  2025 · GENERAL SUPPORT

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Other IRS files