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DOWN SYNDROME DIAGNOSIS NETWORK

EIN 46-3042112 STILLWATER, MN

Browse the largest nonprofits in Minnesota

Revenue 2023
$562,113
Expenses 2023
$618,904

Program services were 81.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G25
Classification
1000
Street
PO BOX 140

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2023

Mission

TO CONNECT SUPPORT AND PROVIDE ACCURATE INFORMATION TO FAMILIES WITH A DOWN SYNDROME DIAGNOSIS

Activities or mission (Part I)

TO CONNECT, SUPPORT, AND PROVIDE ACCURATE INFORMATION TO FAMILIES WITH A DOWN SYNDROME DIAGNOSIS

  • CONNECT - DSDN HOSTS ANNUAL RETREATS FOR MOMS AND DADS (SEPARATELY) OF CHILDREN WITH DOWN SYNDROME TO ALLOW THEM TO CONNECT, BE INSPIRED,RECHARGE, AND WORK ON SERVICE PROJECTS FOR FUTURE EXPECTANT AND NEWPARENTS. THE RETREATS ARE A 2-DAY EVENT WITH MEALS INCLUDED,MOTIVATIONAL SPEAKERS, PAMPERING SESSIONS, AND ACTIVITIES TO PROMOTE CONNECTION AMONGST ATTENDEES. REVENUE LISTED ABOVE INCLUDES REGISTRATION AND ACTIVITY FEES, EXHIBITOR FEES, AND RETREAT SPONSORSHIPS.

    Expenses $506,916 · Revenue $139,366

  • INFORM - DSDN'S BOARD MEMBERS AND VOLUNTEERS ATTEND DOWN SYNDROME RELATED CONFERENCES TO SHARE INFORMATION ABOUT DSDN'S SERVICES TO FAMILIES, LOCAL DOWN SYNDROME ORGANIZATIONS, AND MEDICAL PROFESSIONALS. DSDN TEAM MEMBERS ALSO ATTEND NATIONAL MEDICAL CONFERENCES TO ADVOCATE FOR AN UNBIASED, UP-TO-DATE AND FACTUAL DOWN SYNDROME DIAGNOSIS FORFAMILIES, AS WELL AS TO SHARE ABOUT DSDN'S SERVICES. DSDN ALSO CREATES AND DISTRIBUTES MATERIALS ON DELIVERING A DOWN SYNDROME DIAGNOSIS TO LOCAL ORGANIZATIONS AND MEDICAL PROFESSIONALS.

  • SUPPORT - DSDN PROVIDES SUPPORT TO EXPECTANT AND NEW FAMILIES THROUGH ONLINE SUPPORT GROUPS, WHICH ARE NOW PART OF A DSDN MOBILE APP. DSDN ALSO PROVIDES PREGNANCY GIFTS, NEW BABY GIFTS, AND WELCOME GIFTS WHEN A NEW FAMILY JOINS OUR COMMUNITY, AS WELL AS CARE PACKAGES WHEN A CHILD IS IN THE HOSPITAL, AND MEMORIAL GIFTS WHEN A CHILD PASSES AWAY. EACH YEAR, DSDN ALSO OFFERS ADOPTION GRANTS FOR FAMILIES IN THE PROCESS OF ADOPTING A CHILD WITH DOWN SYNDROME. ALSO PART OF OUR SUPPORT SERVICES, DSDN OFFERS SCHOLARSHIPS TO ATTEND THE DSDN ROCKIN' MOM AND ROCKIN' DAD RETREATS. DSDN ALSO AWARDED GRANTS TO LOCAL DOWN SYNDROME ORGANIZATIONS.

As filed on the 2023 return.

Officers and directors · 2023

As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Kathleen Seitz

    PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Patricia Nesbitt

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Julia Kaufman

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Taryn Lagonigro

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Jenny Di Benedetto

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Cassandra Drake

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Ben Hughes

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Michael Pascual

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Jennifer Dingman

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Tony Nowicki

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Anna Yen Kim

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Sarah Mesa-Haas

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Melissa Shutwell

    EXECUTIVE DIRECTOR

    Total calculated
    $80,250
    From this org
    $80,250
    From related orgs
    $0
    Other
    $0
    Hours/week
    32

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2023
    Revenue
    $562,113
    Expenses
    $618,904
    Contributions
    $415,864
    Grants paid
    $13,750
  • 2022
    Revenue
    $636,269
    Expenses
    $575,865
    Contributions
    $509,792
    Grants paid
    $17,500

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $500,167
    Expenses
    $505,978
    Assets (EOY)
    $643,501

  • 2020 · 990

    Revenue
    $409,033
    Expenses
    $255,579
    Assets (EOY)
    $633,954

  • 2020 · 990

    Revenue
    $423,411
    Expenses
    $423,720
    Assets (EOY)
    $633,644

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Form 990-N e-Postcard, tax year 2014

Tax period
1 January 2014 to 31 December 2014
Principal officer
Heather Bradley
Mailing address
PO Box 140Stillwater MN 55082
Website
www.dsdiagnosisnetwork.org

As filed, from the IRS e-Postcard file of 2 November 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.

Grants made

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2023, the newest we have parsed for this organization.