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← DOWN SYNDROME DIAGNOSIS NETWORK

Form 990 for tax year 2022

Filed by DOWN SYNDROME DIAGNOSIS NETWORK.

Totals

Total revenue
$636,269
Total expenses
$575,865
Contributions and grants received
$509,792
Grants paid
$17,500
Program service revenue
$118,949
Investment income
$7,110
Other revenue
$418
Total assets, end of year
$701,264
Total liabilities, end of year
$13,027
Net assets or fund balances, end of year
$688,237
Program services expenses (Part IX)
$420,736
Management and general expenses
$62,817
Fundraising expenses
$92,312
Program service expenses (Part III)
$420,736

Program services were 73.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $4,815

  • 1e · Government grants (contributions)

    $47,690

  • 1f · All other contributions, gifts and grants

    $457,287

  • 2a · Program service revenue: RETREAT REGISTRATIONS

    total $109,187 · related or exempt $109,187

  • 2b · Program service revenue: RETREAT EXHIBITORS

    total $9,762 · related or exempt $9,762

  • 3 · Investment income

    total $7,110 · excluded $7,110

  • 8a · Fundraising events: gross income

    $0

  • 8a · Fundraising events: contributions included on line 1c

    $4,815

  • 8b · Fundraising events: direct expenses

    $0

  • 8c · Net income from fundraising events

    total $0

  • 10a · Gross sales of inventory

    $199

  • 10b · Cost of goods sold

    $0

  • 10c · Net income from sales of inventory

    total $199 · related or exempt $199

  • 11a · Other revenue: MISCELLANEOUS

    total $219 · excluded $219

  • 11e · Other revenue, total

    $219

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $16,000 · program services $16,000

  • 2 · Grants to domestic individuals

    total $1,500 · program services $1,500

  • 5 · Compensation of officers, directors and key employees

    total $69,310 · program services $34,655 · management and general $6,931 · fundraising $27,724

  • 7 · Other salaries and wages

    total $48,140 · program services $42,685 · management and general $4,814 · fundraising $641

  • 10 · Payroll taxes

    total $9,216 · program services $6,068 · management and general $922 · fundraising $2,226

  • 11c · Fees: accounting

    total $40,769 · management and general $40,769

  • 12 · Advertising and promotion

    total $1,387 · management and general $1,387

  • 13 · Office expenses

    total $49,234 · program services $32,420 · management and general $4,924 · fundraising $11,890

  • 14 · Information technology

    total $2,866 · program services $1,887 · management and general $287 · fundraising $692

  • 17 · Travel

    total $65,530 · program services $65,530

  • 19 · Conferences, conventions and meetings

    total $258,718 · program services $209,579 · fundraising $49,139

  • 22 · Depreciation, depletion and amortization

    total $311 · management and general $311

  • 23 · Insurance

    total $2,472 · management and general $2,472

  • 24a · Other expenses: GIFT COMMITTEE EXPENSES

    total $9,697 · program services $9,697

  • 24b · Other expenses: MEDICAL OUTREACH

    total $715 · program services $715

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $631,183 · end of year $110,294

  • 2 · Savings and temporary cash investments

    beginning of year $10,083 · end of year $404,136

  • 3 · Pledges and grants receivable

    end of year $23,780

  • 8 · Inventories for sale or use

    beginning of year $1,226 · end of year $1,226

  • 9 · Prepaid expenses and deferred charges

    end of year $10,079

  • 10a · Land, buildings and equipment: cost or other basis

    $152,604

  • 10b · Land, buildings and equipment: accumulated depreciation

    $855

  • 10c · Land, buildings and equipment, net

    beginning of year $1,009 · end of year $151,749

  • 17 · Accounts payable and accrued expenses

    beginning of year $15,668 · end of year $13,027

  • 27 · Net assets without donor restrictions

    beginning of year $627,833 · end of year $688,237

Mission and programs · 2022

Mission

THE MISSION OF THE DOWN SYNDROME DIAGNOSIS NETWORK IS TO CONNECT, SUPPORT, AND PROVIDE ACCURATE INFORMATION TO PARENTS - AND THE MEDICAL PROFESSIONALS WHO SERVE THEM - FROM THE TIME OF DIAGNOSIS THROUGH AGE 3 WHILE FOSTERING THE OPPORTUNITY FOR LIFELONG CONNECTIONS.

Activities or mission (Part I)

TO CONNECT SUPPORT AND PROVIDE ACCURATE INFORMATION TO FAMILIES WITH A DOWN SYNDROME DIAGNOSIS

  • CONNECT - DSDN HOSTS ANNUAL RETREATS FOR MOMS AND DADS (SEPARATELY) OF CHILDREN WITH DOWN SYNDROME TO ALLOW THEM TO CONNECT, BE INSPIRED, RECHARGE, AND WORK ON SERVICE PROJECTS FOR FUTURE EXPECTANT AND NEW PARENTS. THE RETREATS ARE A 2-DAY EVENT WITH MEALS INCLUDED, MOTIVATIONAL SPEAKERS, PAMPERING SESSIONS, AND ACTIVITIES TO PROMOTE CONNECTION AMONGST ATTENDEES. REVENUE LISTED ABOVE INCLUDES REGISTRATION AND ACTIVITY FEES, EXHIBITOR FEES, AND RETREAT SPONSORSHIPS.

    Expenses $402,521 · Revenue $119,148

  • INFORM - DSDN'S BOARD MEMBERS AND VOLUNTEERS ATTEND DOWN SYNDROME RELATED CONFERENCES TO SHARE INFORMATION ABOUT DSDN'S SERVICES TO FAMILIES, LOCAL DOWN SYNDROME ORGANIZATIONS, AND MEDICAL PROFESSIONALS. DSDN TEAM MEMBERS ALSO ATTEND NATIONAL MEDICAL CONFERENCES TO ADVOCATE FOR AN UNBIASED, UP-TO-DATE AND FACTUAL DOWN SYNDROME DIAGNOSIS FOR FAMILIES, AS WELL AS TO SHARE ABOUT DSDN'S SERVICES. DSDN ALSO CREATES AND DISTRIBUTES MATERIALS ON DELIVERING A DOWN SYNDROME DIAGNOSIS TO LOCAL ORGANIZATIONS AND MEDICAL PROFESSIONALS.

    Expenses $715

  • SUPPORT - DSDN PROVIDES SUPPORT TO EXPECTANT AND NEW FAMILIES THROUGH ONLINE SUPPORT GROUPS, WHICH ARE NOW PART OF A DSDN MOBILE APP. DSDN ALSO PROVIDES PREGNANCY GIFTS, NEW BABY GIFTS, AND WELCOME GIFTS WHEN A NEW FAMILY JOINS OUR COMMUNITY, AS WELL AS CARE PACKAGES WHEN A CHILD IS IN THE HOSPITAL, AND MEMORIAL GIFTS WHEN A CHILD PASSES AWAY. EACH YEAR, DSDN ALSO OFFERS ADOPTION GRANTS FOR FAMILIES IN THE PROCESS OF ADOPTING A CHILD WITH DOWN SYNDROME. ALSO PART OF OUR SUPPORT SERVICES, DSDN OFFERS SCHOLARSHIPS TO ATTEND THE DSDN ROCKIN' MOM AND ROCKIN' DAD RETREATS. DSDN ALSO AWARDED GRANTS TO LOCAL DOWN SYNDROME ORGANIZATIONS.

    Expenses $17,500 · Grants $17,500

As filed on the 2022 return.

Listed in Part VII

  • Kathleen Seitz

    PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Patricia Nesbitt

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Julia Kaufman

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Taryn Lagonigro

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Jenny Di Benedetto

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Cassandra Drake

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Ben Hughes

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Michael Pascual

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Anthony Sisernos

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Jennifer Dingman

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Tony Nowicki

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Jennifer Jacob

    EXECUTIVE DIRECTOR

    Total calculated
    $52,115
    From this org
    $52,115
    From related orgs
    $0
    Other
    $0
    Hours/week
    32

  • Melissa Shutwell

    EXECUTIVE DIRECTOR

    Total calculated
    $0
    Hours/week
    32

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2022
Filed
13 June 2024
IRS schema version
2022v5.0
Source object
202441659349301704

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