Totals
- Total revenue
- $221,722
- Total expenses
- $253,805
- Contributions and grants received
- $29,379
- Grants paid
- $135,421
- Program service revenue
- $0
- Investment income
- $192,343
- Other revenue
- $0
- Total assets, end of year
- $4,741,377
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $4,741,377
- Program services expenses (Part IX)
- $252,895
- Management and general expenses
- $362
- Fundraising expenses
- $548
- Program service expenses (Part III)
- $252,895
Program services were 99.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1a · Federated campaigns
$28,907
-
1f · All other contributions, gifts and grants
$472
-
3 · Investment income
total $192,343 · excluded $192,343
-
8c · Net income from fundraising events
total $0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $135,421 · program services $135,421
-
11a · Fees: management
total $20 · management and general $20
-
11c · Fees: accounting
total $290 · management and general $290
-
12 · Advertising and promotion
total $548 · fundraising $548
-
17 · Travel
total $2,379 · program services $2,379
-
23 · Insurance
total $52 · management and general $52
-
24a · Other expenses: Research Supplies
total $4,820 · program services $4,820
-
24b · Other expenses: Sponsored Research
total $103,675 · program services $103,675
-
24c · Other expenses: Research Contract Srvcs
total $6,600 · program services $6,600
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $39,172 · end of year $67,631
-
2 · Savings and temporary cash investments
beginning of year $4,734,288 · end of year $4,658,746
-
14 · Intangible assets
end of year $15,000
-
31 · Retained earnings, endowment or other funds
beginning of year $4,773,460 · end of year $4,741,377
Mission and programs · 2025
Mission
To invest in scientific and translational research of personalized genetic treatments for children impacted by severe genetic disease.
Activities or mission (Part I)
Our mission is to bring an end to the long tail of genetic disease
-
CONTINUED A DRUG DISCOVERY PROGRAM FOR A NOVEL ALLELE SELECTIVE ANTISENSE OLIGONUCLEOTIDE MOLECULE TO KNOCKDOWN THE MUTANT KCNQ2 CAUSING DEVELOPMENT AND EPILEPTIC ENCEPHALOPATHY.
Expenses $252,895
As filed on the 2025 return.
Listed in Part VII
-
Rohan SethROHAN SETH
President
- Total calculated
- $0
- Hours/week
- 40
-
Corey LongCOREY LONG
Board Member
- Total calculated
- $0
- Hours/week
- 0.5
-
Cinnamon ChuCINNAMON CHU
Treasurer
- Total calculated
- $0
- Hours/week
- 1
-
Amber BahlAMBER BAHL
Board Member
- Total calculated
- $0
- Hours/week
- 0.5
-
Rohan DangROHAN DANG
Secretary
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$100,000
Advanced ASO Research
-
$14,104
DNA Research
-
$14,000
Nuero Devel Gene Research
-
$6,062
Genetic Research
-
$650
KCNQ Research
Provenance
- Return type
- form_990
- Tax year
- 2025
- Filed
- 13 May 2026
- IRS schema version
- 2025v4.1
- Source object
- 202611339349304626
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