Form 990 for tax year 2023

Totals

Total revenue

$3,378,951

Total expenses

$3,133,076

Contributions and grants received

$3,995,610

Grants paid

$1,435,000

Program service revenue

$0

Investment income

$14,549

Other revenue

-$631,208

Total assets, end of year

$3,197,751

Total liabilities, end of year

$626,408

Net assets or fund balances, end of year

$2,571,343

Program services expenses (Part IX)

$2,386,438

Management and general expenses

$378,737

Fundraising expenses

$367,901

Program service expenses (Part III)

$2,386,438

Program services were 76.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2023

• RESEARCH - THE CHILDREN'S HEART FOUNDATION FUNDS THE MOST PROMISING CONGENITAL HEART DEFECT (CHD)RESEARCH. SINCE 1996, CHF HAS INVESTED $18 MILLION INTO CHD RESEARCH AND SCIENTIFIC COLLABORATIONS.IN 2023 CHF FUNDED NEARLY $1.5 MILLION IN CHD RESEARCH AND SCIENTIFIC COLLABORATIONS ACROSS FOUR KEY INITIATIVES: 1. INDEPENDENT RESEARCH FUNDED BY THE FOUNDATION, 2. COLLABORATIVE RESEARCH WITH THE HEART ASSOCIATION THROUGH JOINT CONGENITAL HEART DEFECT RESEARCH AWARDS, 3. FUNDING THE AMERICAN ACADEMY OF PEDIATRICS' PEDIATRIC CARDIOLOGY RESEARCH FELLOWSHIP AWARD, AND 4. FUNDING CARDIAC NETWORKS UNITED (CNU), A NATIONAL PEDIATRIC AND CONGENITAL CARDIOVASCULAR RESEARCH NETWORK.CHF PROVIDED FUNDING FOR THE FOLLOWING INDEPENDENT RESEARCH:-HEE CHEOL CHO, PHD (JOHNS HOPKINS MEDICINE) RECEIVED FUNDING FROM THE CHILDREN'S HEART FOUNDATION FOR HIS WORK ON HUMAN STEM-CELL DERIVED PACEMAKERS FOR PEDIATRIC CARDIAC PACING.-JULIET EMAMAULLEE, MD, PHD (UNIVERSITY OF SOUTHERN CALIFORNIA, CHILDREN'S HOSPITAL OF LOS ANGELES) RECEIVED FUNDING FROM THE CORTNEY GIVES BAK FOUNDATION, AS WELL AS THE CHILDREN'S HEART FOUNDATION, FOR HER EFFORTS ON PREDICTIVE BIOMAKERS TO INFORM TRANSPLANT CANDIDACY IN FONTAN ASSOCIATED LIVER DISEASE.-JOHN LADISA, PHD (MEDICAL COLLEGE OF WISCONSIN) RECEIVED FUNDING FROM THE CHILDREN'S HEART FOUNDATION FOR HIS EFFORTS ON MECHANICAL STIMULI AS A PREDICTOR OF ADVERSE OUTCOMES AFTER PULMONARY VEIN STENTING.-MARK RODEFELD, MD (INDIANA UNIVERSITY) RECEIVED FUNDING FROM THE HALEY FOUNDATION, AS WELL AS THE CHILDREN'S HEART FOUNDATION, FOR HIS EFFORTS ON THE SELF-POWERED FONTAN PUMP.THESE RESEARCH EFFORTS WILL HELP EXPERTS LEARN MORE ABOUT THE LIFE-LONG CARE NEEDS OF INDIVIDUALS LIVING WITH CHDS AND HOW TO CONTINUE TO IMPROVE THEIR OVERALL QUALITY OF LIFE.THE CHILDREN'S HEART FOUNDATION PROVIDES FUNDING TO CARDIAC NETWORKS UNITED TO IMPROVE OUTCOMES FOR CHILDREN WITH CHDS. ONE OF CNU'S CURRENT RESEARCH EFFORTS - THE PAC3 CHEST TUBE PROJECT - IS NOW BEING IMPLEMENTED AT NEARLY 20 U.S. HOSPITALS AS RESEARCHERS CONSIDER THE OPTIMAL TIME FOR CHEST TUBE REMOVAL IN YOUNG CHD PATIENTS.IN ADDITION, THE FOUNDATION FUNDED THE AMERICAN ACADEMY OF PEDIATRICS' 2023 PEDIATRIC CARDIOLOGY RESEARCH FELLOWSHIP AWARD GIVEN TO MICHAEL KIM, DO, OF CINCINATTI CHILDREN'S HEALTH. HIS RESEARCH - VIRTUAL REALITY SIMULATION TO IMPROVE PARENT DISCHARGE EDUCATION AND READINESS FOR THE TRANSITION TO HOME AFTER CONGENITAL HEART SURGERY (CHS)- AIMS TO INCORPORATE VIRTUAL REALITY SIMULATION AS PART OF DISCHARGE EDUCATION FOR PARENTS AND CAREGIVERS OF CONGENITAL HEART SURGERY PATIENTS TO IDENTIFY SIGNS OF CARDIAC COMPROMISE.

  Expenses $2,159,271 · Grants $1,435,000

• AWARENESS- CONGENITAL HEART WALKS: THE CHILDREN'S HEART FOUNDATION'S CONGENITAL HEART WALK SERIES IS THE NATION'S LARGEST WALK SERIES SOLELY DEDICATED TO RAISING AWARENESS AND FUNDS FOR CONGENITAL HEART DEFECT RESEARCH. 30 CONGENITAL HEART WALK EVENTS TOOK PLACE IN 2023. THE WALKS OFFER A CHANCE TO STRENGTHEN OUR COMMUNITY AND SPREAD AWARENESS ABOUT AMERICA'S MOST COMMON BIRTH DEFECT - CHDS, AND WE RAISED MORE THAN $2,000,000!FUNDRAISING EVENTS AND CAMPAIGNS: VARIOUS FUNDRAISING EVENTS AND CAMPAIGNS TOOK PLACE THROUGHOUT 2023, INCLUDING #GIVINGTUESDAY, HEART MONTH, VOLUNTEERAPPRECIATION MONTH, AND OUR MATCHING FROM THE HEART CAMPAIGN - ALL OF WHICH HELPED RAISE AWARENESS AND FUNDS OF THE CHILDREN'S HEART FOUNDATION'S CRITICAL MISSION.GENERAL AWARENESS: THE CHILDREN'S HEART FOUNDATION UTILIZES SOCIAL MEDIA AND VIDEO STORYTELLING TO SPREAD FURTHER AWARENESS OF CHDS AND CHF. OUR SOCIAL MEDIA EFFORTS FOCUS ON SHARING STORIES OF CHILDREN, ADULTS, AND FAMILIES IMPACTED BY CHDS, AS WELL AS TELLING OUR AUDIENCE ABOUT THE IMPORTANT RESEARCH EFFORTS WE ARE FUNDING. THESE TOOLS HELP US REACH PEOPLE WHO MAY NOT HAVE PREVIOUSLY KNOWN ABOUT OUR IMPORTANT WORK.

  Expenses $121,613

• ADVOCACY - WE ENDEAVORED TO CREATE MORE AWARENESS OF THE NEED FOR ADVOCACY FOR THOSE WITH CHDS AND THEIR FAMILY MEMBERS BY TELLING THEIR STORY ON OUR WEBSITES, IN VIDEO, AND THROUGH SPECIAL BROADCAST PRODUCTIONS, LIKE THE PBS VISIONARIES SERIES. OUR ADVOCACY EFFORTS FOCUS ON RAISING AWARENESS OF THE NEED FOR INCREASED FUNDING FOR RESEARCH, SURVIVIVAL, LONGEVITY AND QUALITY OF LIFE EFFORTS WHICH HAVE DRAMATICALLY INCREASED FOR CHD PATIENTS. THERE HAS BEEN A 37.5% DECREASE IN BABIES DYING AT BIRTH WHICH IS A TREMENDOUS RESULT, BUT WE KNOW THAT BABIES ARE STILL BEING BORN DAILY WITH CHDS.WE INTEND TO PROVIDE MORE EDUCATIONAL AND OUTREACH OPPORTUNITIES AROUND THE CURRENT ENVIRONMENT FOR CONGENITAL HEART DEFECTS. OUR ADVOCACY EFFORTS SEEK TO EDUCATE OUR COMMUNITIES ON THE SIGNIFICANCE OF CONGENITAL HEART DEFECTS AND ITS IMPACT ON INDIVIDUALS AND FAMILIES.

  Expenses $105,554 · Revenue $11,135

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

• ABIGAIL RODDIE-HAMLIN

  PRESIDENT & CEO

  Total calculated

  $170,498

  From this org

  $150,404

  From related orgs

  $0

  Other

  $20,094

  Hours/week

  40

  Schedule J breakdown matched by us

  Base

  $150,404

  Bonus

  $0

  Other

  $0

  Deferred

  $851

  Nontaxable benefits

  $19,243

  Filer's total

  $170,498

• KEVIN SLAWIN

  BOARD CHAIR

  Total calculated

  $0

  Hours/week

  10

• MARTHA HAUBER

  IMMEDIATE PAST BOARD CHAIR

  Total calculated

  $0

  Hours/week

  10

• LORI JONES

  SECRETARY

  Total calculated

  $0

  Hours/week

  10

• JIM BOLOTIN

  TREASURER

  Total calculated

  $0

  Hours/week

  10

• KATHRYN OSTEEN

  MEMBER

  Total calculated

  $0

  Hours/week

  10

• DANIELLE PRADAS

  MEMBER

  Total calculated

  $0

  Hours/week

  10

• SALLY POWERS

  MEMBER

  Total calculated

  $0

  Hours/week

  10

• WILLIAM ROACH

  MEMBER

  Total calculated

  $0

  Hours/week

  10

• DR JOHN COSTELLO

  MEMBER

  Total calculated

  $0

  Hours/week

  10

• KELLY WITTICH

  MEMBER

  Total calculated

  $0

  Hours/week

  10

• TAMARA THOMAS

  MEMBER

  Total calculated

  $0

  Hours/week

  10

• TAWANNA NISHIBAYAHSI

  MEMBER

  Total calculated

  $0

  Hours/week

  10

• JASON YOUNG

  MEMBER

  Total calculated

  $0

  Hours/week

  10

• TIERRA LEMON

  SR DIRECTOR OF FINANCE & OPERATIONS

  Total calculated

  $106,718

  From this org

  $91,152

  From related orgs

  $0

  Other

  $15,566

  Hours/week

  40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

• AMERICAN HEART ASSOCIATION

  $300,000

  CONGENITAL HEART DISEASE RESEARCH

• UNIVERSITY OF MICHIGAN HEART CENTER

  $300,000

  CARDIAC NETWORKS UNITED GRANT

• JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINE

  $200,000

  DR. HEE CHEOL CHO WAS GIVEN A 2 YEAR GRANT.

• THE MEDICAL COLLEGE OF WISCONSIN

  $200,000

  DR. JOHN LADISA WAS GIVEN A 2 YEAR GRANT.

• INDIANA UNIVERSITY

  $200,000

  DR. MARK RODEFELD WAS GIVEN A 2 YEAR GRANT.

• UNIVERSITY OF SOUTHERN CALIFORNIA

  $200,000

  DR. JULIET EMAMAULLEE WAS GIVEN A 2 YEAR GRANT AWARD CO-FUNDED CORTNEY GIVES BAK FOUNDATION

• AMERICAN ACADEMY OF PEDIATRICS

  $35,000

  CARDIOLOGY AND CARDIAC SURGERY RESEARCH FELLOWSHIP AWARD

Provenance

Return type

form_990

Tax year

2023

Filed

27 August 2024

IRS schema version

2023v5.1

Source object

202402559349300800

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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