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← NATIONAL PSORIASIS FOUNDATION

Form 990 for tax year 2022

Filed by NATIONAL PSORIASIS FOUNDATION.

What the amendment changed

Compared with the return it replaced , filed 2 February 2024. matched by us Only the return's totals, a 990-PF's accounting method and the names listed in Part VII (Part VIII on a 990-PF) are compared. We relate returns by organization, tax year and form, and order them by each return's own timestamp; the filer's own "amended return" checkbox is a separate fact.

Those are the same on the two returns, so the amendment changed something else.

Totals

Total revenue
$11,591,439
Total expenses
$13,763,392
Contributions and grants received
$9,711,727
Grants paid
$3,419,296
Program service revenue
$2,024,319
Investment income
$169,130
Other revenue
-$313,737
Total assets, end of year
$13,817,026
Total liabilities, end of year
$4,798,376
Net assets or fund balances, end of year
$9,018,650
Program services expenses (Part IX)
$10,617,407
Management and general expenses
$1,684,139
Fundraising expenses
$1,461,846
Program service expenses (Part III)
$10,617,407

Program services were 77.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $101,702

  • 1b · Membership dues

    $30,734

  • 1c · Fundraising events

    $1,978,709

  • 1e · Government grants (contributions)

    $962,251

  • 1f · All other contributions, gifts and grants

    $6,638,331

  • 1g · Noncash contributions included above

    $48,752

  • 2a · Program service revenue: ADVERTISING INCOME

    total $1,080,905 · unrelated business $1,080,905

  • 2b · Program service revenue: PRODUCT CERTIFICATION

    total $440,789 · related or exempt $440,789

  • 2c · Program service revenue: SCIENTIFIC ADVISORY

    total $229,999 · related or exempt $229,999

  • 2d · Program service revenue: PATIENT RECRUITMENT

    total $203,918 · related or exempt $203,918

  • 2e · Program service revenue: CONSULTING

    total $68,108 · related or exempt $68,108

  • 2f · All other program service revenue

    total $600 · related or exempt $600

  • 3 · Investment income

    total $239,338 · excluded $239,338

  • 5 · Royalties

    total $44,962 · excluded $44,962

  • 7a · Gross sales of assets other than inventory

    securities $3,145,781

  • 7b · Less cost or other basis and sales expenses

    securities $3,125,989 · other assets $90,000

  • 7c · Gain or loss

    securities $19,792 · other assets -$90,000

  • 7d · Net gain or loss

    total -$70,208 · excluded -$70,208

  • 8a · Fundraising events: gross income

    $0

  • 8a · Fundraising events: contributions included on line 1c

    $1,978,709

  • 8b · Fundraising events: direct expenses

    $358,927

  • 8c · Net income from fundraising events

    total -$358,927 · excluded -$358,927

  • 10a · Gross sales of inventory

    $228

  • 10b · Cost of goods sold

    $0

  • 10c · Net income from sales of inventory

    total $228 · related or exempt $228

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $2,422,633 · program services $2,422,633

  • 3 · Grants to foreign organizations and individuals

    total $996,663 · program services $996,663

  • 5 · Compensation of officers, directors and key employees

    total $844,745 · program services $574,427 · management and general $168,949 · fundraising $101,369

  • 7 · Other salaries and wages

    total $4,537,816 · program services $3,085,715 · management and general $907,563 · fundraising $544,538

  • 8 · Pension plan contributions

    total $136,340 · program services $92,711 · management and general $27,268 · fundraising $16,361

  • 9 · Other employee benefits

    total $514,189 · program services $349,648 · management and general $102,838 · fundraising $61,703

  • 10 · Payroll taxes

    total $418,042 · program services $284,269 · management and general $83,608 · fundraising $50,165

  • 11b · Fees: legal

    total $114,106 · program services $77,592 · management and general $22,821 · fundraising $13,693

  • 11c · Fees: accounting

    total $65,436 · program services $44,497 · management and general $13,087 · fundraising $7,852

  • 11d · Fees: lobbying

    total $229,678 · program services $229,678

  • 11e · Fees: professional fundraising services

    total $65,763 · fundraising $65,763

  • 11f · Fees: investment management

    total $29,369 · management and general $29,369

  • 11g · Fees: other

    total $817,615 · program services $654,847 · management and general $54,932 · fundraising $107,836

  • 12 · Advertising and promotion

    total $422,551 · program services $413,697 · fundraising $8,854

  • 13 · Office expenses

    total $893,329 · program services $598,996 · management and general $52,983 · fundraising $241,350

  • 16 · Occupancy

    total $342,828 · program services $233,123 · management and general $68,566 · fundraising $41,139

  • 19 · Conferences, conventions and meetings

    total $705,625 · program services $497,017 · management and general $17,626 · fundraising $190,982

  • 22 · Depreciation, depletion and amortization

    total $46,006 · program services $31,284 · management and general $9,201 · fundraising $5,521

  • 24a · Other expenses: TAXES

    total $30,584 · management and general $30,584

  • 24e · All other expenses

    total $130,074 · program services $30,610 · management and general $94,744 · fundraising $4,720

  • 26 · Joint costs (an allocation of the lines above)

    total $289,051 · program services $216,601 · management and general $28,031 · fundraising $44,419

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $2,356,360 · end of year $2,155,746

  • 3 · Pledges and grants receivable

    beginning of year $2,277,242 · end of year $1,788,781

  • 4 · Accounts receivable

    beginning of year $512,018 · end of year $703,034

  • 8 · Inventories for sale or use

    beginning of year $6,666 · end of year $4,370

  • 9 · Prepaid expenses and deferred charges

    beginning of year $127,501 · end of year $152,539

  • 10a · Land, buildings and equipment: cost or other basis

    $593,189

  • 10b · Land, buildings and equipment: accumulated depreciation

    $207,821

  • 10c · Land, buildings and equipment, net

    beginning of year $508,044 · end of year $385,368

  • 11 · Investments: publicly traded securities

    beginning of year $8,159,880 · end of year $8,511,304

  • 15 · Other assets

    beginning of year $30,164 · end of year $115,884

  • 17 · Accounts payable and accrued expenses

    beginning of year $873,517 · end of year $617,899

  • 18 · Grants payable

    beginning of year $2,312,500 · end of year $3,845,657

  • 19 · Deferred revenue

    beginning of year $160,792 · end of year $168,500

  • 25 · Other liabilities

    beginning of year $78,466 · end of year $166,320

  • 27 · Net assets without donor restrictions

    beginning of year $7,475,871 · end of year $5,506,333

  • 28 · Net assets with donor restrictions

    beginning of year $3,076,729 · end of year $3,512,317

Mission and programs · 2022

Mission

THE NATIONAL PSORIASIS FOUNDATION PROVIDES PEOPLE WITH PSORIASIS AND PSORIATIC ARTHRITIS THE SERVICES THEY NEED TO BEST MANAGE THEIR CONDITION, WHILE PROMOTING RESEARCH TO FIND A CURE.

Activities or mission (Part I)

TO DRIVE EFFORTS TO CURE PSORIATIC DISEASE AND IMPROVE THE LIVES OF THOSE AFFECTED.

  • RESEARCHNPF CONTINUED TO LEAD COLLABORATIVE, TRANSFORMATIONAL RESEARCH BY ENSURING THAT FUNDING EXTRAMURAL RESEARCH REMINED A PRIORITY. IN FY 2023, NPF INVESTED OVER $3.4M IN RESEARCH GRANTS AND FELLOWSHIP AWARDS, INCLUDING 9 AWARDS TO RESEARCHERS STUDYING THE PREVENTION, TREATMENT, AND MECHANISMS OF PSA. INTRODUCED IN 2020, THE NPF HAS INVESTED OVER $3M TOWARDS THE PSORIASIS PREVENTION INITIATIVE GRANT, A STUDY AIMED AT PREVENTING THE ONSET ON CARDIOVASCULAR DISEASE IN PEOPLE WITH PSORIATIC DISEASE, AND TO PROVIDE, TIMELY, ADEQUATE TREATMENT FOR THOSE DEEMED TO BE AT HIGH RISK OF DEVELOPING CARDIOVASCULAR DISEASE. IN FY 2023, THE PILOT PHASE OF THE UNIVERSITY OF PENNSYLVANIA-LED STUDY ON CVD CONCLUDED AND PLANNING BEGAN FOR THE LAUNCH OF THE FULL STUDY. THIS UNIQUE, SCALABLE MODEL THAT TESTS CARE COORDINATION ACROSS DERMATOLOGISTS AND PRIMARY CARE PROVIDERS SAW PROMISING EARLY RESULTS IN THE PILOT STUDY AND WILL GROW TO 20 SITES IN FY 2024. OF THE 25% OF PEOPLE IN PHASE ONE WHO WERE IDENTIFIED AS HAVING AS HIGH RISK FOR CARDIOVASCULAR DISEASE, 85% FOLLOWED THROUGH WITH AN APPOINTMENT WITH THEIR HEALTH CARE PROVIDER TO ADDRESS CARDIOVASCULAR DISEASE. THE PSA DIAGNOSTIC TEST GRANT WAS ALSO RENEWED FOR TWO INSTITUTIONS WORKING TO DEVELOP A DIAGNOSTIC TEST FOR PSORIATIC ARTHRITIS (PSA). NPF CONTINUED ITS INVESTMENT IN THE MORE THAN SKIN DEEP MENTAL HEALTH GRANT, WHICH FUNDS RESEARCH AIMED AT ADDRESSING MENTAL HEALTH ISSUES, A MAJOR PSORIATIC DISEASE COMORBIDITY. THE NPF COLLABORATED WITH PUBLIC-PRIVATE PARTNERS IN THE ACCELERATED MEDICINES PARTNERSHIP FOR AUTOIMMUNE AND IMMUNE-MEDIATED DISEASES INITIATIVE, PUBLISHED SEVERAL ABSTRACTS AND PAPERS, AND BROUGHT THE INTERNALLY GENERATED DATA TO THE COMMUNITY.

    Expenses $4,438,880 · Grants $3,419,296 · Revenue $600

  • PROFESSIONAL EDUCATIONNPF CONTINUED TO EXPAND AND STRENGTHEN MEDICAL EDUCATION PROGRAMMING TARGETING HEALTH CARE PROVIDERS AT ALL LEVELS AND STAGES OF CAREER. THE 24TH ANNUAL NPF RESIDENTS' MEETING OFFERED DERMATOLOGY RESIDENTS THE LATEST IN PSORIATIC DISEASE TREATMENT PRESENTED BY EXPERTS IN THE FIELD. NPF LAUNCHED A FIRST OF ITS KIND, MEDICAL SCHOOL CURRICULUM TO HELP STUDENTS GAIN A DEEPER UNDERSTANDING OF PSORIATIC DISEASE. THROUGH ITS DEDICATION TO EDUCATING HEALTH CARE PROVIDERS ON PSORIATIC DISEASE AND ITS RELATED DISEASES, NPF HAS EARNED ACCREDITATION AS A PROVIDER OF CONTINUING MEDICAL EDUCATION. IT'S PART OF OUR EFFORTS TO ENSURE ALL DIFFERENT TYPES OF HEALTH CARE PROVIDERS UNDERSTAND THIS COMPLICATED DISEASE. NPF OFFERS THE PSOUND BYTES CME PODCAST, WEBINARS, AND IN-PERSON CLASSES AND SEMINARS FOR A WIDE RANGE OF AUDIENCES AND PUBLISHES THE JOURNAL OF PSORIASIS AND PSORIATIC ARTHRITIS, A PEER REVIEWED OUTLET FEATURING CME ARTICLES.

    Expenses $940,744 · Revenue $229,999

  • ADVOCACYNPF CONTINUED TO ADVOCATE ON BOTH STEP THERAPY AND COPAY ACCUMULATOR ADJUSTMENT PROGRAMS TO ENSURE PATIENTS HAVE AFFORDABLE ACCESS TO THERAPIES. NPF ALSO LEVERAGED THOUSANDS OF ADVOCATES TO WORK FOR HEALTH INSURANCE COVERAGE IMPROVEMENTS FOR THE MILLIONS OF PEOPLE LIVING WITH PSORIATIC DISEASE, WHILE ALSO WORKING TO IMPROVE THE SAFETY AND AFFORDABILITY OF PSORIASIS AND PSA TREATMENTS AND INCREASING FEDERAL SUPPORT FOR PSORIATIC DISEASE RESEARCH.

    Expenses $1,222,549

  • EDUCATION, OUTREACH, AND PATIENT SERVICESNPF CONTINUED EXECUTING ON A 3-YEAR GRANT FROM THE CENTERS FOR DISEASE CONTROL AND PREVENTION CHRONIC DISEASE EDUCATION AND AWARENESS (CDEA) PROGRAM TOTALING NEARLY $1 MILLION TO RAISE AWARENESS ABOUT PSORIASIS AS AN IMMUNE-MEDIATED, SYSTEMIC INFLAMMATORY DISEASE AMONG THE GENERAL PUBLIC, PUBLIC HEALTH PROFESSIONALS, AND HEALTH CARE PROVIDERS. FUNDING FROM THIS GRANT HAS SUPPORTED NPF CONTINUING MEDICAL EDUCATION (CME) PROGRAMS, PATIENT NAVIGATION CENTER (PNC), AND NPF OUTREACH AND AWARENESS ACTIVITIES.SINCE 2016, NPF'S PATIENT NAVIGATION CENTER HAS SUPPORTED OVER 85,000 PATIENTS AND THEIR CAREGIVERS WITH FREE, PERSONALIZED SUPPORT DESIGNED TO HELP THEM UNDERSTAND PSORIATIC DISEASE AND TREATMENT OPTIONS, NAVIGATE INSURANCE CHALLENGES, AND FIND THE APPROPRIATE HEALTH CARE PROVIDER. NPF ADVANCE MAGAZINE CONTINUED TO PROVIDE THE LATEST INFORMATION, STORIES, AND RESOURCES FIVE TIMES ANNUALLY FOR OVER 25,000 PRINT SUBSCRIBERS AND HUNDREDS OF THOUSANDS OF ONLINE READERS. EACH WEEK, MORE THAN 283,000 PEOPLE RECEIVED ADVANCE WEEKLY, THE OFFICIAL PATIENT-FOCUSED E-NEWSLETTER OF NPF.NPF PROVIDED A COMPREHENSIVE SET OF EDUCATIONAL AND INFORMATIONAL RESOURCES TO OVER 3.6 MILLION VISITORS TO PSORIASIS.ORG AND ASSOCIATED SITES. AS THE TOP SEARCH RESULT FOR SCALP PSORIASIS AND 2ND RESULT FOR PSORIASIS, NPF PROVIDED ACCURATE HEALTH AND MEDICAL INFORMATION TO MILLIONS LIVING WITH PSORIATIC DISEASE. NPF WAS ALSO CITED IN 8.7K OUTSIDE ARTICLES.

    Expenses $4,015,234 · Revenue $713,043

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Ron Grau

    CHAIR

    Total calculated
    $0
    Hours/week
    1

  • Carol Ostrow

    CHAIR-ELECT

    Total calculated
    $0
    Hours/week
    1

  • Eyal Ofir

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    1

  • Mike Refermat

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Richard Seiden

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Raymond Chip Newton

    PAST CHAIR

    Total calculated
    $0
    Hours/week
    1

  • Jonathan Scott

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Larry Green MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Mary Carroll

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Michael Graff

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Mark Oberman

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Jason Lichten MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Pete Miller

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Matthew T Kiselica

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • April Armstrong MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Elaine Husni MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Leah McCormick Howard

    PRESIDENT/CEO

    Total calculated
    $307,347
    From this org
    $291,746
    From related orgs
    $0
    Other
    $15,601
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $275,746
    Bonus
    $16,000
    Other
    $0
    Deferred
    $12,920
    Nontaxable benefits
    $2,681
    Filer's total
    $307,347

  • Ronald Goldsman

    CHIEF FINANCIAL OFFICER

    Total calculated
    $145,530
    From this org
    $142,053
    From related orgs
    $0
    Other
    $3,477
    Hours/week
    40

  • Jennifer Fagerstrom

    CHIEF REVENUE OFFICER

    Total calculated
    $262,425
    From this org
    $237,132
    From related orgs
    $0
    Other
    $25,293
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $220,132
    Bonus
    $17,000
    Other
    $0
    Deferred
    $11,354
    Nontaxable benefits
    $13,939
    Filer's total
    $262,425

  • Andrea Clay

    VP OF CORPORATE PARTNERSHIPS

    Total calculated
    $155,035
    From this org
    $146,606
    From related orgs
    $0
    Other
    $8,429
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $146,606
    Bonus
    $0
    Other
    $0
    Deferred
    $7,293
    Nontaxable benefits
    $1,136
    Filer's total
    $155,035

  • Kristine Bockmier

    VP OF FIELD DEVELOPMENT & OPERATIONS

    Total calculated
    $155,685
    From this org
    $146,058
    From related orgs
    $0
    Other
    $9,627
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $146,058
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $9,627
    Filer's total
    $155,685

  • Michael Macloed

    DIRECTOR OF PRINCIPAL GIVING

    Total calculated
    $160,213
    From this org
    $141,110
    From related orgs
    $0
    Other
    $19,103
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $138,210
    Bonus
    $2,900
    Other
    $0
    Deferred
    $6,407
    Nontaxable benefits
    $12,696
    Filer's total
    $160,213

  • Randy Beranek Officer Thru Dec 2021

    FORMER PRESIDENT/CEO

    Total calculated
    $312,272
    From this org
    $303,058
    From related orgs
    $0
    Other
    $9,214
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $303,058
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $9,214
    Filer's total
    $312,272

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 5a · Pay contingent on this organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 7 · Other non-fixed payments

Answered no

  • 4c · Equity-based compensation arrangement
  • 5b · Pay contingent on a related organization's revenues
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINES 4A-B
SCHEDULE J, PART I, LINE 4A: RANDY BERANAK RECEIVED A FINAL COMPENSATION PAYMENT OF $303,058 THAT WAS PAID OUT OVER TIME. SCHEDULE J, PART I, LINE 4B: EMPLOYER CONTRIBUTIONS TO 401K: LEAH MCCORMICK HOWARD - $12,920 JENNIFER FAGERSTROM - $11,354 MICHAEL MACLOED - $6,407 ANDREA CLAY - $7,293
PART I, LINE 5
THE EXECUTIVE TEAM PERFORMANCE-BASED BONUS PORTION OF COMPENSATION WAS BASED ON A COMBINATION OF THE EMPLOYEE'S PERFORMANCE AGAINST THEIR INDIVIDUAL OBJECTIVES, THE NPF MEETING ITS ANNUAL REVENUE AND NET INCOME TARGETS. THE FOUNDATION ACKNOWLEDGES ALL OF ITS OTHER EMPLOYEES THROUGH ANNUAL LUMP-SUM INCENTIVE AWARDS BASED ON MEETING INDIVIDUAL OBJECTIVES AND THE NPF MEETING ITS ANNUAL NET REVENUE AND NET INCOME TARGETS.
PART I, LINE 6
THE EXECUTIVE TEAM PERFORMANCE-BASED BONUS PORTION OF COMPENSATION WAS BASED ON A COMBINATION OF THE EMPLOYEE'S PERFORMANCE AGAINST THEIR INDIVIDUAL OBJECTIVES, THE NPF MEETING ITS ANNUAL REVENUE AND NET INCOME TARGETS. THE FOUNDATION ACKNOWLEDGES ALL OF ITS OTHER EMPLOYEES THROUGH ANNUAL LUMP-SUM INCENTIVE AWARDS BASED ON MEETING INDIVIDUAL OBJECTIVES AND THE NPF MEETING ITS ANNUAL NET REVENUE AND NET INCOME TARGETS.
PART I, LINE 7
THE EXECUTIVE TEAM PERFORMANCE-BASED BONUS PORTION OF COMPENSATION WAS BASED ON A COMBINATION OF THE EMPLOYEE'S PERFORMANCE AGAINST THEIR INDIVIDUAL OBJECTIVES, THE NPF MEETING ITS ANNUAL REVENUE AND NET INCOME TARGETS. THE FOUNDATION ACKNOWLEDGES ALL OF ITS OTHER EMPLOYEES THROUGH ANNUAL LUMP-SUM INCENTIVE AWARDS BASED ON MEETING INDIVIDUAL OBJECTIVES AND THE NPF MEETING ITS ANNUAL NET REVENUE AND NET INCOME TARGETS.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2022
Filed
22 October 2024
IRS schema version
2022v5.0
Source object
202432979349301428

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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