Form 990 for tax year 2024

Totals

Total revenue

$2,486,838

Total expenses

$2,661,142

Contributions and grants received

$1,788,846

Grants paid

$1,123,530

Program service revenue

$0

Investment income

$155,414

Other revenue

$542,578

Total assets, end of year

$2,406,778

Total liabilities, end of year

$0

Net assets or fund balances, end of year

$2,406,778

Program services expenses (Part IX)

$2,132,014

Management and general expenses

$120,133

Fundraising expenses

$408,995

Program service expenses (Part III)

$2,132,014

Program services were 80.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2024

• THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: (1) 210,629 TO CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE (CARRA) (2) 170,000 TO MEDICAL COLLEGE OF WISCONSIN (3) 128,797 TO DUKE UNIVERSITY (4) 125,000 TO THE UNIVERSITY OF CALIFORNIA (5) 112,500 TO BINGHAMTON UNIVERSITY STATE UNIVERSITY OF NEW YORK (6)70,000 TO GEORGE WASHINGTON UNIVERSITY (7) 65,641 TO NUCLEIC ACID THERAPY ACCELERATOR (8) 63,750 TO ST. MARIANNA UNIVESIY SCHOOL OF MEDICINE (9) 62,500 TO SEATTLE CHILDREN'S HOSPITAL FOUNDATION (10) 47,000 LURIE CHILDREN'S HOSPITAL (11) 23,000 TO THE UNIVERSITY OF LIVERPOOL (12) 16,000 TO NATIONAL INSTITUTES OF HEALTH (13) 12,440 RADY CHILDEN'S HOSPITAL SAN DIEGO (14) 10,000 TO BAMBINO GESU HOSPITAL (15) 10,000 TO BOSTON CHILDREN'S HOSPITAL (16) 10,000 TO THE CHILDREN'S HOSPIAL OF ATLANTA EMORY (17) 10,000 TO CHILDREN'S HOSPITAL OF COLORADO (18) 10,000 TO THE CHILDREN'S HOSPITAL OF LOS ANGELES (19) 10,000 TO THE CHILDREN'S HOSPITAL OF ORANGE COUNTY (20) 10,000 TO THE CINCINNATI CHILDREN'S HOSPITAL (21) 10,000 TO JOHNS HOPKINS CHILDREN'S CENTER (22) 10,000 TO JOHN HOPKINS DEPARTMENT OF MEDICINE (23) 10,000 TO SCOTTISH RITE FOR CHILDREN (24) 10,000 UNIVERSITY OF PITTSBURGH MEDICAL CENTER CHILDREN'S HOSPITAL OF PITTSBURGH (25) 5,000 TO C.S. MOTT CHILDREN'S HOSPITAL UNIVERSITY OF MICHIGAN HEALTH (26) TEXAS CHILDREN'S HOSPIAL (27) 5,000 UNIVERSIT OF ALABAMA AT BIRMINGHAM (28) 4,992 TO VANDERBILT UNIVERSITY (29) 3,750 TO THE HOSPITAL FOR SICK CHILDREN (KNIGHT) (30) TO THE MYOSITIS ASSOCIATION 2,237 (31) 1,000 TO CHILDREN'S HOSPIAL A MONTEFIORE BRONX NEW YORK.

  Expenses $2,132,014 · Grants $1,123,530

• THE ANNUAL NATIONAL FAMILY CONFERENCE & WALK STRONG TO CURE JM EVENT WAS HELD IN VARIOUS LOCATIONS ACROSS THE UNITED STATES, FAMILIES ATTENDED INCLUDING GRANDPARENTS, PARENTS, CHILDREN, TEENS, YOUNG ADULTS, MEDICAL PROFESSIONALS ALSO PARTICIPATED IN A MEDICAL CONFERENCE TO SHARE THE LATEST ADVANCEMENTS IN JM RESEARCH AND TREATMENTS. FAMILIES CAPPED THE WEEKEND WITH ATTENDANCE AT THE WALK STRONG TO CURE JM EVENTS.

• THE ORGANIZATION IS COMMITTED TO INCREASING AWARENESS AND EDUCATION OF THIS RARE, INCURABLE AUTOIMMUNE DISEASE AS WELL AS PROVIDING A SUPPORT COMMUNITY FOR IMPACTED FAMILIES. THESE EFFORTS ARE ACCOMPLISHED THROUGHT A VARIETY OF METHODS SUCH AS: ATTENDANCE AT MEDICAL CONFERENCES REPRESENTING CURE JM FOUNDATION AND ITS WORK/ACTIVITIES; DISTRIBUTION OF PRINTED INFORMATION CARDS, BROCHURES AND EDUCATIONAL BOOKS TO IMPACTED FAMILIES AND THE MEDICAL COMMUNITY; DISTRIBUTION OF WELCOME KITS TO NEWLY DIAGNOSED FAMILIES; NEWSLETTERS; EDUCATIONAL EVENTS AND GATHERINGS; FAMILY SUPPORT; SURVEY AND METRIC TOOLS; MAINTENANCE OF A PATIENT REGISTRY AND MESSAGE BOARD AND UPDATES/MAINTENANCE OF THE ORGANIZTION'S WEBSITE.

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

• CHILDHOOD ARTHRITIS & RHEUMATOLOGY

  $210,629

  SUPPORT THE EXPANSIO

• MEDICAL COLLEGE OF WISCONSIN

  $170,000

• DUKE UNIVERSITY MEDICAL CENTER

  $128,797

• UNIV CALIFORNIA SF BENIOFF CHILDRE

  $125,000

• BINGHAMTON UNIV STATE OF NEW YORK

  $112,500

• THE GEORGE WASHINGTON UNIVERSITY

  $70,000

• SEATTLE CHILDEREN'S HOSPITAL FOUNDA

  $62,500

• LURIE CHILDREN'S HOSPITAL OF CHICAG

  $47,000

• NATIONAL INSTITUTES OF HEALTH

  $16,000

  RESEARCH

• RADY CHILDREN'S HOSPITAL SAN DIEGO

  $12,440

  SUPPORT THE CURE OF

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type

form_990

Tax year

2024

Filed

2 June 2025

IRS schema version

2024v5.0

Source object

202641549349300609

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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