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CURE JM FOUNDATION

EIN 35-2222262 LEESBURG, VA

Browse the largest nonprofits in Virginia

Revenue 2024
$2,486,838
Expenses 2024
$2,661,142

Program services were 80.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G19
Classification
1200
Street
19309 WINMEADE DR SUITE 204

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

TO FIND BETTER TREATMENTS AND A CURE FOR JUVENILE MYOSITIS AND IMPROVE THE LIVES OF FAMILIES.

  • THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: (1) 210,629 TO CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE (CARRA) (2) 170,000 TO MEDICAL COLLEGE OF WISCONSIN (3) 128,797 TO DUKE UNIVERSITY (4) 125,000 TO THE UNIVERSITY OF CALIFORNIA (5) 112,500 TO BINGHAMTON UNIVERSITY STATE UNIVERSITY OF NEW YORK (6)70,000 TO GEORGE WASHINGTON UNIVERSITY (7) 65,641 TO NUCLEIC ACID THERAPY ACCELERATOR (8) 63,750 TO ST. MARIANNA UNIVESIY SCHOOL OF MEDICINE (9) 62,500 TO SEATTLE CHILDREN'S HOSPITAL FOUNDATION (10) 47,000 LURIE CHILDREN'S HOSPITAL (11) 23,000 TO THE UNIVERSITY OF LIVERPOOL (12) 16,000 TO NATIONAL INSTITUTES OF HEALTH (13) 12,440 RADY CHILDEN'S HOSPITAL SAN DIEGO (14) 10,000 TO BAMBINO GESU HOSPITAL (15) 10,000 TO BOSTON CHILDREN'S HOSPITAL (16) 10,000 TO THE CHILDREN'S HOSPIAL OF ATLANTA EMORY (17) 10,000 TO CHILDREN'S HOSPITAL OF COLORADO (18) 10,000 TO THE CHILDREN'S HOSPITAL OF LOS ANGELES (19) 10,000 TO THE CHILDREN'S HOSPITAL OF ORANGE COUNTY (20) 10,000 TO THE CINCINNATI CHILDREN'S HOSPITAL (21) 10,000 TO JOHNS HOPKINS CHILDREN'S CENTER (22) 10,000 TO JOHN HOPKINS DEPARTMENT OF MEDICINE (23) 10,000 TO SCOTTISH RITE FOR CHILDREN (24) 10,000 UNIVERSITY OF PITTSBURGH MEDICAL CENTER CHILDREN'S HOSPITAL OF PITTSBURGH (25) 5,000 TO C.S. MOTT CHILDREN'S HOSPITAL UNIVERSITY OF MICHIGAN HEALTH (26) TEXAS CHILDREN'S HOSPIAL (27) 5,000 UNIVERSIT OF ALABAMA AT BIRMINGHAM (28) 4,992 TO VANDERBILT UNIVERSITY (29) 3,750 TO THE HOSPITAL FOR SICK CHILDREN (KNIGHT) (30) TO THE MYOSITIS ASSOCIATION 2,237 (31) 1,000 TO CHILDREN'S HOSPIAL A MONTEFIORE BRONX NEW YORK.

    Expenses $2,132,014 · Grants $1,123,530

  • THE ANNUAL NATIONAL FAMILY CONFERENCE & WALK STRONG TO CURE JM EVENT WAS HELD IN VARIOUS LOCATIONS ACROSS THE UNITED STATES, FAMILIES ATTENDED INCLUDING GRANDPARENTS, PARENTS, CHILDREN, TEENS, YOUNG ADULTS, MEDICAL PROFESSIONALS ALSO PARTICIPATED IN A MEDICAL CONFERENCE TO SHARE THE LATEST ADVANCEMENTS IN JM RESEARCH AND TREATMENTS. FAMILIES CAPPED THE WEEKEND WITH ATTENDANCE AT THE WALK STRONG TO CURE JM EVENTS.

  • THE ORGANIZATION IS COMMITTED TO INCREASING AWARENESS AND EDUCATION OF THIS RARE, INCURABLE AUTOIMMUNE DISEASE AS WELL AS PROVIDING A SUPPORT COMMUNITY FOR IMPACTED FAMILIES. THESE EFFORTS ARE ACCOMPLISHED THROUGHT A VARIETY OF METHODS SUCH AS: ATTENDANCE AT MEDICAL CONFERENCES REPRESENTING CURE JM FOUNDATION AND ITS WORK/ACTIVITIES; DISTRIBUTION OF PRINTED INFORMATION CARDS, BROCHURES AND EDUCATIONAL BOOKS TO IMPACTED FAMILIES AND THE MEDICAL COMMUNITY; DISTRIBUTION OF WELCOME KITS TO NEWLY DIAGNOSED FAMILIES; NEWSLETTERS; EDUCATIONAL EVENTS AND GATHERINGS; FAMILY SUPPORT; SURVEY AND METRIC TOOLS; MAINTENANCE OF A PATIENT REGISTRY AND MESSAGE BOARD AND UPDATES/MAINTENANCE OF THE ORGANIZTION'S WEBSITE.

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Kristine Alderfer

    CHAIR

    Total calculated
    $0
    Hours/week
    1

  • Justin Whitney

    PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Tim Shelby

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Denise Koch

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Debbie Daum

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Shari Hume

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Tom Hume

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Dr Tracy Van Ness

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Karen Berman

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Zach Harrison

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Randy Putt

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Michelle Best

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Julie Houpt

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Anna Schwartz-Ramsey

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • John Caldwell

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • James Minow

    EXECUTIVE DI

    Total calculated
    $183,109
    From this org
    $183,109
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $183,109
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $183,109

  • Andrew Heaton PhD

    CHIEF SCIENT

    Total calculated
    $161,936
    From this org
    $161,936
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $161,936
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $161,936

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $2,486,838
    Expenses
    $2,661,142
    Contributions
    $1,788,846
    Grants paid
    $1,123,530
  • 2023
    Revenue
    $2,318,946
    Expenses
    $2,062,981
    Contributions
    $1,888,288
    Grants paid
    $994,848
  • 2022
    Revenue
    $2,243,763
    Expenses
    $2,055,068
    Contributions
    $1,720,508
    Grants paid
    $894,988

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $1,824,036
    Expenses
    $1,760,953
    Assets (EOY)
    $2,112,799

  • 2021 · 990

    Revenue
    $1,824,036
    Expenses
    $1,760,953
    Assets (EOY)
    $2,112,799

  • 2020 · 990

    Revenue
    $2,232,153
    Expenses
    $1,987,838
    Assets (EOY)
    $2,049,716

  • 2019 · 990

    Revenue
    $1,907,570
    Expenses
    $1,964,707
    Assets (EOY)
    $1,977,559

  • 2018 · 990

    Revenue
    $1,923,270
    Expenses
    $1,740,400
    Assets (EOY)
    $1,920,336

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 11 November 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.