Form 990 for tax year 2022

Totals

Total revenue

$2,243,763

Total expenses

$2,055,068

Contributions and grants received

$1,720,508

Grants paid

$894,988

Program service revenue

$0

Investment income

$9,728

Other revenue

$513,527

Total assets, end of year

$2,301,494

Total liabilities, end of year

$0

Net assets or fund balances, end of year

$2,301,494

Program services expenses (Part IX)

$1,723,034

Management and general expenses

$131,036

Fundraising expenses

$200,998

Program service expenses (Part III)

$1,723,034

Program services were 83.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2022

• THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: (1) 320,447 TO DUKE UNIVERSITY (2) 123,750 TO THE UNIVERSITY OF CALIFORNIA (3) 114,500 TO LURIE CHILDREN'S HOSPITAL (4) 105,000 GEORGE WASHINGTON UNIVERSITY MEDICAL FACULTY ASSOCIATION (5) 80,768 TO THE SEATTLE CHILDREN'S HOSPITAL (6) 63,061.98 TO THE CHILDREN'S ARTHRITIS & RHEUMATOLOGY RESSEARCH ALLIANCE (7) 49,883 TO THE NATIONWIDE CHILDREN'S HOSPITAL (8) 37,842 TO THE UNIVERSITY OF BATH, UNITED KINGDOM (9) 37,500 TO BAYLOR COLLEGE OF MEDICINE (10) 37,298 TO HOSPITAL FOR SICK CHILDREN, TORONTO, CANADA (11) 32,500 TO MEDICAL COLLEGE OF WISCONSIN (12) 22,500 TO UNIVERSITY COLLEGE, LONDON, UNITED KINGDOM (13) 10,000 TO CONGRESS PRAGUE, LITHUANIA (14) 10,000 TO MONTEFIORE, AND (15) 5,000 TO REGENTS OF THE UNIVERSITY OF MINNESOTA.

  Expenses $1,723,034 · Grants $894,988

• THE ANNUAL NATIONAL FAMILY CONFERENCE & WALK STRONG TO CURE JM EVENT WAS HELD IN VARIOUS LOCATIONS ACROSS THE UNITED STATES. FAMILIES ATTENDED INCLUDING GRANDPARENTS, PARENTS, CHILDREN, TEENS, YOUNG ADULTS. MEDICAL PROFESSIONALS ALSO PARTICIPATED IN A MEDICAL CONFERENCE TO SHARE THE LATEST ADVANCEMENTS IN JM RESEARCH AND TREATMENTS. FAMILIES CAPPED THE WEEKEND WITH ATTENDANCE AT THE WALK STRONG TO CURE JM EVENTS.

• THE ORGANIZATION IS COMMITTED TO INCREASING AWARENESS AND EDUCATION OF THIS RARE, INCURABLE AUTOIMMUNE DISEASE AS WELL AS PROVIDING A SUPPORT COMMUNITY FOR IMPACTED FAMILIES. THESE EFFORTS ARE ACCOMPLISHED THROUGH A VARIETY OF METHODS SUCH AS: ATTENDANCE AT MEDICAL CONFERENCES REPRESENTING CURE JM FOUNDATION AND ITS WORK/ACTIVITIES; DISTRIBUTION OF PRINTED INFORMATION CARDS, BROCHURES AND EDUCATIONAL BOOKS TO IMPACTED FAMILIES AND THE MEDICAL COMMUNITY; DISTRIBUTION OF WELCOME KITS TO NEWLY DIAGNOSED FAMILIES; NEWSLETTERS; EDUCATIONAL EVENTS AND GATHERINGS; FAMILY SUPPORT; SURVEY AND METRIC TOOLS; MAINTENANCE OF A PATIENT REGISTRY AND MESSAGE BOARD AND UPDATES/MAINTENANCE OF THE ORGANIZATION' S WEBSITE.

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

• DUKE UNIVERSITY MEDICAL CENTER

  $261,669

  JUVENILE IDIOPATHIC

• UNIVERSITY OF CALIFORNIA

  $123,750

  SUPPORT THE CURE OF

• THE GEORGE WASHINGTON UNIVERSITY

  $67,500

  STUDY TO EXPLORE REL

• SEATTLE CHILDRENS HOSPITAL

  $55,768

  SUPPORT CHILDREN'S

• NATIONWIDE CHILDREN'S HOSPITAL

  $49,883

  SUPPORT THE CURE OF

• CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE

  $48,062

  SUPPORT THE EXPANSIO

• BAYLOR COLLEGE OF MEDICINE

  $37,500

  SUPPORT THE CURE OF

• MEDICAL COLLEGE OF WISCONSIN INC

  $32,500

  SUPPORT DISEASE RESE

• MONTEFIORE

  $10,000

  SUPPORT THE CURE OF

Provenance

Return type

form_990

Tax year

2022

Filed

1 March 2024

IRS schema version

2022v5.0

Source object

202411369349313741

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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