Totals
- Total revenue
- $17,526
- Total expenses
- $227,533
- Contributions and grants received
- $750
- Grants paid
- $226,833
- Program service revenue
- $0
- Investment income
- $16,776
- Other revenue
- $0
- Total assets, end of year
- $0
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $0
- Program services expenses (Part IX)
- $226,833
- Management and general expenses
- $700
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $226,833
Program services were 99.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$750
-
3 · Investment income
total $3 · excluded $3
-
7a · Gross sales of assets other than inventory
securities $16,773
-
7c · Gain or loss
securities $16,773
-
7d · Net gain or loss
total $16,773 · excluded $16,773
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $226,833 · program services $226,833
-
11c · Fees: accounting
total $700 · management and general $700
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $33,987
-
2 · Savings and temporary cash investments
beginning of year $4,176
-
11 · Investments: publicly traded securities
beginning of year $180,139
-
27 · Net assets without donor restrictions
beginning of year $218,302
Mission and programs · 2024
Mission
TO SUPPORT FAMILIES WITH FRAGILE X SYNDROME.
-
TO SUPPORT RESEARCH AND EDUCATION ON FRAGILE X SYNDROME
Expenses $226,833 · Grants $226,833
As filed on the 2024 return.
Listed in Part VII
-
Christina Chartouni-CalleCHRISTINA CHARTOUNI-CALLE
SECRETARY
- Total calculated
- $0
- Hours/week
- 1
-
Mark GrimmelMARK GRIMMEL
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Michele KaplanMICHELE KAPLAN
PRESIDENT
- Total calculated
- $0
- Hours/week
- 1
-
Paul KaplanPAUL KAPLAN
TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
Ari RollnickARI ROLLNICK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Vanessa Chartouni-De La SernaVANESSA CHARTOUNI-DE LA SERNA
VICE PRES
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
UC DAVIS MIND INSTITUTE
$135,000
DONATION
-
$70,000
DONATION
-
UM FRAGILE X
$21,833
DONATION
Assets distributed on this return
Schedule N, as filed: what the organization did with its assets when it liquidated or dissolved, or disposed of more than a quarter of them, and who received them. A recipient with an EIN is usually a successor organization; filers also list expenses such as legal fees here.
-
UC DAVIS MIND INSTITUTE
$135,000
Liquidation · CASH · Dec 31, 2024 · 501C(3)
-
$70,000
Liquidation · CASH · Dec 31, 2024 · 501C(3)
-
UM FRAGILE X
$21,833
Liquidation · CASH · Dec 31, 2024 · 501C(3)
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 5 November 2025
- IRS schema version
- 2024v5.0
- Source object
- 202533109349302188
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