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NATIONAL FRAGILE X FOUNDATION

EIN 84-0960471 WASHINGTON, DC

Browse the largest nonprofits in District of Columbia

Revenue 2025
$2,291,142
Expenses 2025
$2,187,406

Program services were 68.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H20
Classification
1000
Street
1012 14TH ST NW STE 500

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Other organizations at this address

5 other organizations in the IRS Business Master File list the same street address. matched by us

This address is a suite or unit (STE 500). Organizations that share one are often clients of the same office-services firm, accountant or registered agent rather than related to each other.

We match the street line and ZIP code as the IRS gives them, ignoring case and outer spaces and nothing else, so "AVE" and "AVENUE" count as different streets and this list can miss some. A shared address can mean related organizations or a shared office, but it can also be a registered agent, a mail drop or a service provider holding mail for unrelated clients. It is not, by itself, evidence that two organizations are connected.

Mission and programs · 2025

Mission

THE NATIONAL FRAGILE X FOUNDATION SERVES THE ENTIRE FRAGILE X COMMUNITY TO LIVE THEIR BEST LIVES BY PROVIDING THE KNOWLEDGE, RESOURCES, AND TOOLS UNTIL, AND EVEN AFTER, MORE EFFECTIVE TREATMENTS AND A CURE ARE ACHIEVED.

Activities or mission (Part I)

TO PROVIDE UNWAVERING SUPPORT FOR EVERY FAMILY AFFECTED BY FRAGILE X WHILE RELENTLESSLY PURSUING A CURE.

  • EDUCATION AND SUPPORT - THE NFXF PROVIDES PERSONALIZED SUPPORT, RESOURCES AND REFERRALS TO INDIVIDUALS AND FAMILIES ON THE MULTITUDE OF ISSUES THEY FACE, INCLUDING DIAGNOSIS, GENETICS, BEHAVIOR, TREATMENTS, EDUCATIONAL PLANNING, EMPLOYMENT AND ADULT ISSUES. THE NFXF ORGANIZES EDUCATIONAL CONENT INCLUDING RESOURCES, WEBINARS, VIRUTAL EVENTS, AND EDUCATIONAL CONFERENCES FOR FAMILIES AND PROFESSIONALS ABOUT FRAGILE X SYNDROME AND THE ASSOCIATED CONDITIONS AND DISORDERS TO PROVIDE HOPE AND HELP FAMILIES OVERCOME THE DAILY CHALLENGES OF LIVING WITH FX.

    Expenses $331,437 · Revenue $815

  • RESEARCH GRANTS - THE NFXF FACILITATES SEVERAL MAJOR RESEARCH STRATEGIES. THE NFXF DATA REPOSITORY, WHICH LEVERAGES PREVIOUSLY COLLECTED DATA FOR NEW PROOF-OF-CONCEPT DRUG TREAMTENT, OUTCOME MEASURE DEVELOPMENT, AND OTHER MEANINGFUL SCIENTIFIC WORK. THE NFXF ALSO FUNDS SUMMER SCHOLAR RESEARCH AWARDS TO PROMOTE THE DEVELOPMENT OF YOUNGER SCIENTISTS IN THE FIELD. THE NFXF ALSO ENABLES A RESEARCH READINESS PROGRAM, A COLLABORATIVE PIPELINE SUPPORTING THE DEVELOPMENT AND EXECUTION OF SCIENTIFICALLY-SOUND, RELEVANT, PATIENT-CENTRIC RESEARCH FROM INITIAL PROGRAM DEVELOPMENT THROUGH RESULTS DISSEMINATION.

    Expenses $284,396 · Grants $87,085 · Revenue $97,738

  • ADVOCACY - THE NFXF ORGANIZES AND SUPPORTS A VARIETY OF PERSONAL AND LEGISLATIVE ADVOCACY INITIATIVES. THIS INCLUDES THE VIBRANT AND DEDICATED NETWORK OF VOLUNTEER-LED CHAPTERS ACROSS THE U.S., THE COMMUNITY SUPPORT NETWORK, THESE CHAPTERS DELIVER THE NFXF MISSION ON A LOCAL LEVEL. THE NFXF FACILITATES A YEAR-ROUND LEGISLATIVE ADVOCACY PROGRAM THAT INCLUES AN ANNUAL FLY IN FOR FAMILIES LIVING WITH FRAGILE X TO ADVOCATE FOR RESEARCH FUNDIN-G FOR FRAGILE X AND LEGISLATION THAT POSITIVELY IMPACTS THE COMMUNITY.

    Expenses $266,535 · Revenue $5,590

  • Expenses $609,473 · Grants $113,061

As filed on the 2025 return.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Hilary Rosselot

    EXECUTIVE DIRECTOR

    Total calculated
    $160,298
    From this org
    $158,158
    From related orgs
    $0
    Other
    $2,140
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $158,158
    Bonus
    $0
    Other
    $0
    Deferred
    $2,140
    Nontaxable benefits
    $0
    Filer's total
    $160,298

  • Jordan Crody

    BOARD TREASURER

    Total calculated
    $0
    Hours/week
    0

  • Peggy Flanigan

    BOARD SECRETARY

    Total calculated
    $0
    Hours/week
    0

  • Jacquelyn Colemna

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    0

  • Jill Dolan

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    0

  • Denny Haugen

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    0

  • Susan Howell

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    0

  • Tamaro Hudson

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    0

  • Michele Kaplan

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    0

  • Rebecca Shaffer

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    0

  • Kerry Stedke

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    0

  • David Tillman

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    0

  • Vicki Wilkens

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    0

  • Reymundo Lazano

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    0

  • Laurie Bridges

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    0

  • Kara Frech

    BOARD VICE-PRESIDENT

    Total calculated
    $0
    Hours/week
    0

  • Kristin Bogart

    SENIOR DIRECTOR, DEVELOPMENT & COMMUNICATION

    Total calculated
    $124,204
    From this org
    $109,382
    From related orgs
    $0
    Other
    $14,822
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $2,291,142
    Expenses
    $2,187,406
    Contributions
    $2,128,834
    Grants paid
    $200,146
  • 2024
    Revenue
    $2,134,157
    Expenses
    $2,124,722
    Contributions
    $1,570,715
    Grants paid
    $161,470
  • 2023
    Revenue
    $1,802,073
    Expenses
    $1,800,882
    Contributions
    $1,507,800
    Grants paid
    $159,325
  • 2022
    Revenue
    $3,240,795
    Expenses
    $2,091,542
    Contributions
    $2,562,898
    Grants paid
    $156,514

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $1,652,718
    Expenses
    $1,506,649
    Assets (EOY)
    $1,539,237

  • 2020 · 990

    Revenue
    $1,500,226
    Expenses
    $1,460,086
    Assets (EOY)
    $1,458,448

  • 2019 · 990

    Revenue
    $1,467,262
    Expenses
    $1,454,731
    Assets (EOY)
    $1,201,001

  • 2018 · 990

    Revenue
    $1,780,480
    Expenses
    $1,741,386
    Assets (EOY)
    $1,243,520

  • 2018 · 990

    Revenue
    $1,780,480
    Expenses
    $1,741,386
    Assets (EOY)
    $1,243,520

  • 2017 · 990

    Revenue
    $1,752,853
    Expenses
    $1,654,106
    Assets (EOY)
    $1,227,026

  • 2016 · 990

    Revenue
    $1,952,796
    Expenses
    $1,582,225
    Assets (EOY)
    $1,067,742

  • 2015 · 990

    Revenue
    $1,252,938
    Expenses
    $1,271,958
    Assets (EOY)
    $677,132

  • 2014 · 990

    Revenue
    $1,917,363
    Expenses
    $1,990,816
    Assets (EOY)
    $613,438

  • 2013 · 990

    Revenue
    $1,404,829
    Expenses
    $1,402,781
    Assets (EOY)
    $668,769

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.