UNDIAGNOSED DISEASES NETWORK FOUNDATION

As filed

Subsection

03

NTEE code

G12

Classification

1000

Street

1012 14TH ST NW STE 500

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Other organizations at this address

5 other organizations in the IRS Business Master File list the same street address. matched by us

This address is a suite or unit (STE 500). Organizations that share one are often clients of the same office-services firm, accountant or registered agent rather than related to each other.

We match the street line and ZIP code as the IRS gives them, ignoring case and outer spaces and nothing else, so "AVE" and "AVENUE" count as different streets and this list can miss some. A shared address can mean related organizations or a shared office, but it can also be a registered agent, a mail drop or a service provider holding mail for unrelated clients. It is not, by itself, evidence that two organizations are connected.

• EVERYLIFE FOUNDATION FOR RARE DISEASES

  EIN 26-4614274

• GLOBAL GENES

  EIN 26-3331487

• NATIONAL FRAGILE X FOUNDATION

  EIN 84-0960471

• RARE ACCESS PROJECT INC

  EIN 82-4444757

• THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC

  EIN 31-1405490

Mission and programs · 2024

• PATIENT NAVIGATION PROGRAM - THE PATIENT NAVIGATION PROGRAM SUPPORTS PATIENTS AND FAMILIES WITH UNDIAGNOSED AND ULTRA-RARE DISEASE CONDITIONS. ONCE ENROLLED, PATIENTS AND FAMILIES ARE ASSIGNED A PATIENT NAVIGATOR THAT WILL WORK WITH THEM ONE-ON-ONE TO ADDRESS THEIR NEEDS AND HELP THEM NAVIGATE THE DIAGNOSTIC AND THERAPEUTIC ODYESSEYS.

  Expenses $941,747 · Grants $2,500

• GENERAL PROGRAMS - CONTINUING, STRENGTHENING, AND EXPANDING THE UNDIAGNOSED DISEASES NETWORK, A RESEARCH INSTITUTE BACKED BY THE NATIONAL INSTITUTE OF HEALTH THAT SEEKS TO PROVIDE ANSWERS FOR PATIENTS AND FAMILIES AFFECTED BY UNDIAGNOSED DISEASES.

  Expenses $438,676

• OUTREACH AND EDUCATION - UNDIAGNOSED AND ULTRA-RARE PATIENTS CAN CALL THE UDNF TO ACCESS INFORMATION ABOUT RESEARCH OPPORTUNITIES, DIAGNOSTIC RESOURCES, THERAPEUTIC MATCHING, TECHNOLOGICAL DEVELOPMENTS, SOCIAL SERVICES, AND ADVOCACY RESOURCES. WE NETWORK WITH PATIENT ADVOCACY ORGANIZATIONS, COMMUNITY HEALTH PROVIDERS, RESEARCHERS, SOCIAL SERVICE PROVIDERS, AND FUNDERS.

  Expenses $16,000

• OTHER PROGRAMS - COLUMBUS FOUNDATION GRANT

  Expenses $3,338

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

• 2024

  Revenue

  $328,998

  Expenses

  $1,427,906

  Contributions

  $324,360

  Grants paid

  $2,500

• 2023

  Revenue

  $2,579,825

  Expenses

  $218,337

  Contributions

  $2,571,504

  Grants paid

  $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990-EZ

  Revenue

  $0

  Expenses

  $0

  Assets (EOY)

  $0

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Form 990-N e-Postcard, tax year 2022

Tax period

1 January 2022 to 31 December 2022

Principal officer

Show names as filed Amy GrayAMY GRAY

Mailing address

1012 14TH STREET NW SUITE 500WASHINGTON DC 20005

Website

udnf.org

As filed, from the IRS e-Postcard file of 9 November 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

• SILICON VALLEY COMMUNITY FOUNDATION

  $2,500,000

  2023 · Health

• COLUMBUS FOUNDATION

  $20,000

  2024 · HEALTH

• COLUMBUS FOUNDATION

  $18,000

  2023 · HEALTH

• AMERICAN ONLINE GIVING FOUNDATION INC

  $13,047

  2024 · GENERAL SUPPORT

• AMERICAN ONLINE GIVING FOUNDATION INC

  $0

  2025 · GENERAL SUPPORT

Other IRS files