Skip to content
Nonprofiteer
← AMERICAN THROMBOSIS AND HEMOSTASISNETWORK INC

Form 990 for tax year 2023

Filed by AMERICAN THROMBOSIS AND HEMOSTASISNETWORK INC.

Totals

Total revenue
$13,573,899
Total expenses
$16,433,621
Contributions and grants received
$12,829,029
Grants paid
$4,715,723
Program service revenue
$0
Investment income
$740,677
Other revenue
$4,193
Total assets, end of year
$5,433,549
Total liabilities, end of year
$808,004
Net assets or fund balances, end of year
$4,625,545
Program services expenses (Part IX)
$13,435,490
Management and general expenses
$2,998,131
Fundraising expenses
$0
Program service expenses (Part III)
$13,435,490

Program services were 81.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1e · Government grants (contributions)

    $4,995,579

  • 1f · All other contributions, gifts and grants

    $7,833,450

  • 3 · Investment income

    total $119,710 · excluded $119,710

  • 7a · Gross sales of assets other than inventory

    securities $2,833,100

  • 7b · Less cost or other basis and sales expenses

    securities $2,212,133

  • 7c · Gain or loss

    securities $620,967

  • 7d · Net gain or loss

    total $620,967 · excluded $620,967

  • 11d · All other revenue

    total $4,193 · excluded $4,193

  • 11e · Other revenue, total

    $4,193

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $4,715,723 · program services $4,715,723

  • 5 · Compensation of officers, directors and key employees

    total $1,379,500 · program services $1,131,190 · management and general $248,310

  • 7 · Other salaries and wages

    total $5,500,504 · program services $3,977,250 · management and general $1,523,254

  • 8 · Pension plan contributions

    total $278,427 · program services $202,777 · management and general $75,650

  • 9 · Other employee benefits

    total $366,808 · program services $268,982 · management and general $97,826

  • 10 · Payroll taxes

    total $504,495 · program services $374,099 · management and general $130,396

  • 11b · Fees: legal

    total $115,960 · program services $105,184 · management and general $10,776

  • 11c · Fees: accounting

    total $45,883 · management and general $45,883

  • 11f · Fees: investment management

    total $32,979 · management and general $32,979

  • 11g · Fees: other

    total $333,135 · program services $259,224 · management and general $73,911

  • 13 · Office expenses

    total $200,686 · program services $133,684 · management and general $67,002

  • 14 · Information technology

    total $2,310,917 · program services $2,190,317 · management and general $120,600

  • 19 · Conferences, conventions and meetings

    total $578,060 · program services $77,060 · management and general $501,000

  • 23 · Insurance

    total $38,554 · management and general $38,554

  • 24e · All other expenses

    total $31,990 · management and general $31,990

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $681,789 · end of year $605,909

  • 3 · Pledges and grants receivable

    beginning of year $1,810,411 · end of year $1,011,954

  • 9 · Prepaid expenses and deferred charges

    beginning of year $163,603 · end of year $185,772

  • 10a · Land, buildings and equipment: cost or other basis

    $4,410,217

  • 10b · Land, buildings and equipment: accumulated depreciation

    $4,410,217

  • 10c · Land, buildings and equipment, net

    beginning of year $0 · end of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $5,711,462 · end of year $3,629,914

  • 17 · Accounts payable and accrued expenses

    beginning of year $642,753 · end of year $658,004

  • 19 · Deferred revenue

    beginning of year $2,461,874 · end of year $150,000

  • 27 · Net assets without donor restrictions

    beginning of year $4,960,916 · end of year -$1,164,710

  • 28 · Net assets with donor restrictions

    beginning of year $301,722 · end of year $5,790,255

Mission and programs · 2023

Mission

THE AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK (ATHN) IS A NONPROFIT ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLEEDING AND CLOTTING DISORDERS. WE'RE USING TECHNOLOGY TO SECURE DATA, ADVANCE KNOWLEDGE, TRANSFORM CARE--AND ULTIMATELY IMPROVE LIVES.

  • ATHN SYSTEMS:THIS PROGRAM COMPRISES THE SOFTWARE SYSTEMS AND CAPABILITIES REQUIRED AS A STEWARD OF A SECURE NATIONAL DATABASE USED TO SUPPORT CLINICAL OUTCOMES ANALYSIS, RESEARCH, AND PUBLIC HEALTH WITH REPORTING BY OVER 140 TREATMENT CENTERS, GOVERNMENT ENTITIES, AND RESEARCHERS.

    Expenses $4,376,851

  • COMMUNITY COUNTS CDC PUBLIC HEALTH SURVEILLANCE PROJECT (CDC):THIS FEDERAL PROJECT IS LED BY ATHN IN PARTNERSHIP WITH THE CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC) AND THE U.S. HEMOPHILIA TREATMENT CENTER NETWORK. ITS AIM IS TO COLLECT DATA ON PEOPLE WITH BLEEDING AND CLOTTING DISORDERS AND INCREASE KNOWLEDGE, MONITOR TRENDS, IDENTIFY RISK FACTORS, AND MORE. IN 2020, THE CDC RENEWED ATHN'S 5-YEAR COOPERATIVE AGREEMENT TO CONTINUE THE COMMUNITY COUNTS PROJECT AND:- STRENGTHEN COLLABORATION WITH TREATMENT CENTERS - CONTINUE DATA AND SPECIMEN COLLECTION AND TRANSFER- EVALUATE DATA QUALITY AND IMPROVEMENT- SHARE INFORMATION WITH THE COMMUNITYUSING ATHN SYSTEMS, OVER 453,000 SURVEILLANCE FORMS HAVE BEEN SUBMITTED TO CDC FOR MORE THAN 141,000 UNIQUE PATIENTS.

    Expenses $4,066,902 · Grants $3,510,008

  • ATHN RESEARCH PROGRAMS:ATHN, IN CONJUNCTION WITH OUR 140+ HEMOPHILIA TREATMENT CENTERS (HTCS) ACROSS THE UNITED STATES, LEADS OR SUPPORTS A NUMBER OF PROGRAMS THAT LEVERAGE OUR STAFF EXPERTISE AND INFRASTRUCTURE.OUR LEADING 2023 RESEARCH PROGRAMS INCLUDE:ATHN TRANSCENDS - THE WORLD'S LARGEST NATURAL HISTORY STUDY OF PEOPLE AFFECTED BY NON-NEOPLASTIC HEMATOLOGIC CONDITIONS, WAS CREATED IN RESPONSE TO THE NATIONAL HEART, LUNG, AND BLOOD INSTITUTE'S (NHLBI) BLUEPRINT FOR FACTOR VIII INHIBITOR CLINICAL TRIALS. WITH THE PRIMARY AIM OF DETERMINING THE SAFETY OF ALL THERAPIES UTILIZED IN THIS POPULATION.ATHN TRANSCENDS PLANS TO ENROLL PARTICIPANTS INTO VARIOUS COHORTS BASED ON DIAGNOSIS. ATHN TRANSCENDS' STUDY ARCHITECTURE IS DESIGNED TO ENCOURAGE THE CREATION OF MODULES EXPLORING SPECIFIC SAFETY AND EFFECTIVENESS ENDPOINTS. IN ADDITION, THE ATHN RESEARCH BIOREPOSITORY, LOCATED AT VERSITI, BLOOD CENTER OF WISCONSIN, WILL STORE BIOSPECIMENS FROM ATHN TRANSCENDS FOR FUTURE RESEARCH.ATHN TRANSCENDS IS ORGANIZED INTO SEVEN (7) COHORTS: 1. HEMOPHILIA 2. VON WILLEBRAND DISEASE 3. THROMBOSIS/THROMBOPHILIA4. NON-NEOPLASTIC HEMATOLOGIC CONDITIONS5. BLEEDING NOT OTHERWISE SPECIFIED (NOS) 6. RARE BLOOD DISORDERS7. CONGENITAL PLATELET DISORDERS

    Expenses $3,536,429 · Grants $1,190,705

  • NATIONAL HEMOPHILIA PROGRAM COORDINATING CENTER (NHPCC):THE NHPCC SUPPORTS A COLLABORATIVE AND INTEGRATED NATIONAL INFRASTRUCTURE OF REGIONAL HEMOPHILIA NETWORKS TO PROMOTE ACCESS AND QUALITY OF CARE FOR PEOPLE WITH BLOOD DISORDERS. THE NHPCC IS FUNDED BY A HEALTH RESOURCES AND SERVICES ADMINISTRATION (HRSA) COOPERATIVE AGREEMENT THROUGH ATHN, ITS SPONSORING ORGANIZATION. ATHN RECEIVED A NEW FIVE-YEAR COOPERATIVE AGREEMENT IN JUNE 2022 CARRYING THE PROJECT INTO 2027. THE NHPCC'S QUALITY IMPROVEMENT PROGRAM USES EVIDENCE-BASED PRACTICES TO IMPROVE ACCESS TO CARE, TRANSITION OF CARE, PATIENT ENGAGEMENT, AND MORE. THIS PROGRAM HAS USED RESULTS OF THE FIRST-EVER NATIONAL PATIENT NEEDS ASSESSMENT, COMPLETED BY THE NHPCC, TO PRIORITIZE AND LAUNCH QUALITY IMPROVEMENT INITIATIVES AT HTCS ACROSS THE U.S.

    Expenses $699,123

  • CDC COVID VTE PROGRAM:IN PARTNERSHIP WITH THE ASSOCIATION OF UNIVERSITY CENTERS ON DISABILITIES (AUCD), ATHN PARTICIPATED IN A STUDY NAMED MONITORING OF VENOUS THROMBOEMBOLISMS AMONG NON-HOSPITALIZED COVID-19 SURVIVORS.

    Expenses $51,657 · Grants $15,010

  • ATHN DATA QUALITY COUNTS IS HELPING ATHN AFFILIATES ENRICH THE ATHN DATASET. THE PROMISE OF USING DATA FOR RESEARCH, SURVEILLANCE, AND QUALITY IMPROVEMENT RELIES ON DATA THAT IS COMPLETE AND ACCURATE. ATHN DATA QUALITY COUNTS PROVIDES THE CRITICAL FUNDING NEEDED TO BUILD DATA MANAGEMENT CAPACITY ACROSS THE ATHN AFFILIATE NETWORK AND ENRICH THEATHNDATASET. SINCE OUR INCEPTION, ATHN HAS DISTRIBUTED OVER $8.1M IN DQC GRANTS TO OUR NETWORK OF HTCS.

    Expenses $704,528

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Christopher E Walsh MD PhD

    CHAIR

    Total calculated
    $0
    Hours/week
    1

  • Tamara Vogel MBA

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Jim Munn RN Ms

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Robert Sidonio MD

    DIRECTOR

    Total calculated
    $6,000
    From this org
    $6,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    1

  • Duc Bobby Tran MD Msc

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Jennifer G Davila MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Tyler Buckner MD Msc

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Edith Rosato Rph Iom

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Michael Niekamp

    CHIEF FINANCIAL OFFICER

    Total calculated
    $314,769
    From this org
    $259,392
    From related orgs
    $0
    Other
    $55,377
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $223,542
    Bonus
    $33,750
    Other
    $2,100
    Deferred
    $14,031
    Nontaxable benefits
    $41,346
    Filer's total
    $314,769

  • Crystal Watson

    PRESIDENT AND CEO

    Total calculated
    $392,501
    From this org
    $331,982
    From related orgs
    $0
    Other
    $60,519
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $287,675
    Bonus
    $42,207
    Other
    $2,100
    Deferred
    $17,515
    Nontaxable benefits
    $43,004
    Filer's total
    $392,501

  • Tammuella Singleton

    CHIEF SCIENCE OFFICER

    Total calculated
    $357,133
    From this org
    $354,733
    From related orgs
    $0
    Other
    $2,400
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $234,733
    Bonus
    $120,000
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $2,400
    Filer's total
    $357,133

  • Moses Miles III

    CHIEF OPERATING OFFICER

    Total calculated
    $330,397
    From this org
    $294,021
    From related orgs
    $0
    Other
    $36,376
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $254,027
    Bonus
    $36,994
    Other
    $3,000
    Deferred
    $15,422
    Nontaxable benefits
    $20,954
    Filer's total
    $330,397

  • Srikanth Subramanya

    SENIOR DIRECTOR, ENGINEERING

    Total calculated
    $241,112
    From this org
    $167,462
    From related orgs
    $0
    Other
    $73,650
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $165,362
    Bonus
    $0
    Other
    $2,100
    Deferred
    $11,096
    Nontaxable benefits
    $62,554
    Filer's total
    $241,112

  • Nabil Daoud

    DIRECTOR, DATA SCIENCE

    Total calculated
    $223,926
    From this org
    $178,254
    From related orgs
    $0
    Other
    $45,672
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $156,354
    Bonus
    $19,800
    Other
    $2,100
    Deferred
    $9,507
    Nontaxable benefits
    $36,165
    Filer's total
    $223,926

  • Linda Magliocco

    VP, FINANCE AND ADMINISTRATION

    Total calculated
    $350,757
    From this org
    $281,903
    From related orgs
    $0
    Other
    $68,854
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $223,211
    Bonus
    $56,592
    Other
    $2,100
    Deferred
    $15,250
    Nontaxable benefits
    $53,604
    Filer's total
    $350,757

  • Troy Verbrugge

    LEAD SOFTWARE ENGINEER

    Total calculated
    $223,721
    From this org
    $190,458
    From related orgs
    $0
    Other
    $33,263
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $164,358
    Bonus
    $24,000
    Other
    $2,100
    Deferred
    $10,014
    Nontaxable benefits
    $23,249
    Filer's total
    $223,721

  • Carrie O'Neil

    DIRECTOR, RESEARCH PROGRAMS

    Total calculated
    $224,791
    From this org
    $195,435
    From related orgs
    $0
    Other
    $29,356
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $170,805
    Bonus
    $21,630
    Other
    $3,000
    Deferred
    $10,428
    Nontaxable benefits
    $18,928
    Filer's total
    $224,791

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Written employment contract
  • 3 · Approval by the board or compensation committee
  • 7 · Other non-fixed payments

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 7
ATHN STAFF ARE ELIGIBLE FOR ANNUAL BONUSES BASED ON THE ACHIEVMENT OF ANNUAL ORGANIZATIONAL AND INDIVIDUAL GOALS SET AT THE START OF EACH FISCAL YEAR. ANNUAL BONUS PAYMENTS ARE NOT GUARANTEED AND THE PRESIDENT & CEO DETERMINES THE ANNUAL BONUS DISTRIBUTION BASED ON THE ACHIEVEMENTS OF THE ORGANIZATION AND THE PERFORMANCE OF THE INDIVIDUAL STAFF MEMBERS FOLLOWING THE END OF EACH FISCAL YEAR. THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS EVALUATES THE OVERALL PERFORMANCE OF THE ORGANIZATION TO DETERMINE THE BONUS FOR THE PRESIDENT.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2023
Filed
5 November 2024
IRS schema version
2023v5.1
Source object
202423199349311162

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.